Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My husband has celiac but I don't. Do I need to know anything during pregnancy?


Amy W

Recommended Posts

Amy W Newbie

My husband and I are wanting to grow our family soon :). He has celiac. He was diagnosed very young and has been gluten-free ever since. We keep a gluten-free house for simplicity sake but since i don't have it i'm not completely gluten-free, just mostly. He carries both genes which to my understanding means our kids will have celiac (please! correct me if I'm wrong on that). My questions are: Do i need to be completely gluten-free during pregnancy? Do i need to be completely gluten-free while breastfeeding? I've read that celiac can cause difficulty getting pregnant and play into miscarriages but does that only apply if the mother is the one with celiac? Thanks in advance for any help! I've already been learning so much just reading around :)

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Since you don't have celiac disease you should be able to eat gluten during pregnancy and even while breast feeding. Your child won't necessarily develop celiac disease just because it carries a gene for it--only a small percentage of those with the gene develop celiac disease. More info:
https://www.celiac.com/articles/24573/1/Is-the-Amount-of-a-Babys-First-Gluten-an-Important-Factor-in-Celiac-Disease/Page1.html

cyclinglady Grand Master

Your children have a 10 to 15% chance of developing celiac disease (first-degree relative).  Not a huge risk, so I would not worry!  There have been many studies about introducing gluten at specific times  and dosages to children.  A large one was just finished and they found that it did not matter when Gluten was introduced.  The bottom line is no one really knows.  

Open Original Shared Link

I just attended a celiac seminar with Dr.  Sheila Crowe, a celiac expert and 2017 President of the American Gastroenterologist Association.  She said that researchers now think that Enteric infections (e.g. virus) might be the culprit in triggering celiac disease.  Let’s face it, so many people do not develop celiac disease until later in life.  

Celiac disease can be linked to infertility but that often resolves in a gluten free diet and does not apply to you, a non-celiac.  

So, the bottom line is no one has any hard answers to your questions.    Your best bet would be to consider breastfeeding, have a vaginal birth, and let that toddler play in the dirt to help build up a good gut bionome and immune system.  Eat a healthy diet, rest  and exercise for a good pregnancy outcome.  

Keep researching, so that you will make the best decisions that work for you and your family.  There is no one right and perfect way!  

Amy W Newbie

Thanks y'all for the responses! And amen on the playing in the dirt plan :) Dirt is good for kids as far as i can tell!

squirmingitch Veteran

Not to mention it's FUN! And fun is good for the psyche. Aw heck, just invite me over & I'll play in the dirt with the little one too.:lol:

plumbago Experienced

Gluten free food is not regulated as it is a "specialty food." What this means is that unlike gluten-containing bread and other grains, gluten free bread has no required fortifications (iron, B vitamins, and folate). I'm almost positive that your doctor has recommended folate fortification to you and hopefully you are testing your vitamin levels.

Plumbago

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.