Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do my blood test results indicate celiac disease?

narchar

Recommended Posts

narchar Newbie
narchar
Posted

Hi everyone, I recently received my blood test results and have attached the relevant info below. I have a endoscopy in the coming week. After reading these message boards it seems like doctors don't always seem to be adapt at diagnosis of celiac or gluten sensitivity, so I want to have as much information as I can. 

 

Anti Tissue Transglutaminase Antibodies: 4.7 U/mL (RV: < 15.0 U/mL)

Gliadin deaminated IgG Antibodies: 2.70 (RV: <1.00) 

Endomysium IgA Antibodies: Positive (RV: Title 1/10)

Endomysium IgG Ab: Not detected (RV: Title <1/10)

 

Also, for the Ednomysium tests, what does "Title 1/10) represent? 

Thanks for the help! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
28 minutes ago, narchar said:

Hi everyone, I recently received my blood test results and have attached the relevant info below. I have a endoscopy in the coming week. After reading these message boards it seems like doctors don't always seem to be adapt at diagnosis of celiac or gluten sensitivity, so I want to have as much information as I can. 

 

Anti Tissue Transglutaminase Antibodies: 4.7 U/mL (RV: < 15.0 U/mL)

Gliadin deaminated IgG Antibodies: 2.70 (RV: <1.00) 

Endomysium IgA Antibodies: Positive (RV: Title 1/10)

Endomysium IgG Ab: Not detected (RV: Title <1/10)

 

Also, for the Ednomysium tests, what does "Title 1/10) represent? 

Thanks for the help! 

You not be in the US.  Our tests don't look like that.  Why not ask the doctor for an explanation?

narchar Newbie
narchar
Posted
  • Author
13 minutes ago, kareng said:

You not be in the US.  Our tests don't look like that.  Why not ask the doctor for an explanation?

I am an American but I am currently not in the living in the U.S. which is adding to the confusion. I have spoken with my doctor, but as I said, it seems like many people have had troubles with misdiagnosis. 

Thank you for the response. 

cyclinglady Grand Master
cyclinglady
Posted

The lab ranges are a bit odd, but I think you can tell that you have two positives.  It only takes one positive on the panel to move forward.  I only was positive on the DGP IgA, yet I had significant gut damage.  The next step would be a Gastroenterologist referral to obtain biopsies to confirm a celiac disease diagnosis.  

Open Original Shared Link

Karen is right.  Please talk to your doctor because we are not doctors and those lab ranges are a bit different.  I just wanted to stress that it only takes one positive on the panel to move forward.  

narchar Newbie
narchar
Posted
  • Author

That is correct that I have two positives. 

I already have a biopsy scheduled for this coming week, but I am wanting to have as much information as I can have before and after. 

I am curious if I return with a negative biopsy if that could mean that I am celiac sensitive or if it means that I have nothing to worry about. 

Thank you for the response! 

Gemini Experienced
Gemini
Posted
1 hour ago, narchar said:

That is correct that I have two positives. 

I already have a biopsy scheduled for this coming week, but I am wanting to have as much information as I can have before and after. 

I am curious if I return with a negative biopsy if that could mean that I am celiac sensitive or if it means that I have nothing to worry about. 

Thank you for the response! 

Hello narchar......you have 2 positives and one of them, the Endomysium IgA, will only be positive from Celiac Disease.  No other disease will trigger a positive on that one.  It certainly is looking like Celiac to me.  Just remember that damage can be very patchy in the small intestine and if they don't take enough samples, a diagnosis can still be missed.  It can even be missed if they take numerous samples.......it all depends on the luck of the draw and if they hit a damaged area.  So, if after the biopsy they tell you no Celiac, a dietary trial is in order.  Gluten sensitivity only will not produce a positive EMA (Endomysium) test.  Good luck and tell them to take MANY samples!

narchar Newbie
narchar
Posted
  • Author

Thank you for all of the information. This is extremely helpful. I had read elsewhere that the Endomysium IgA test was a strong indicator, but it never hurts to double or triple check. I guess it looks like it's time for me to completely appreciate eating gluten before my endoscopy! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted
54 minutes ago, narchar said:

Thank you for all of the information. This is extremely helpful. I had read elsewhere that the Endomysium IgA test was a strong indicator, but it never hurts to double or triple check. I guess it looks like it's time for me to completely appreciate eating gluten before my endoscopy! 

Binge away, baby!  ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748
    rednecksurfer
    Newest Member
    rednecksurfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.