Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

saraszat

Recommended Posts

saraszat Newbie

Hi there!
I am looking for insight from anyone that may have insight on what is going on in my body. I have had 6 years of fuzzy head and GI issues (bloating, constipation, nausea, pain, discomfort). I cut out gluten 3 years ago. Then did a IgG mediated food allergy test with a holistic doctor and did a food elimination diet based on those results. So I now avoid dairy and gluten and tomato. I notice i have flare ups when I consume corn so I am trying to be more strict about it lately but I get a week long of nausea/heartburn/acid reflux when i do eat it.  I also started following a low fodmap diet a few months ago due to still not feeling great and when I follow all of these things (gluten free, dairy free, corn free, low fodmap) I feel the best I ever have, although it is very hard to sustain. Also, i still have random spouts of horrible heart burn and nausea occasionally and cannot pinpoint it. I also am on a PPI for this. I have had a hydrogen breath test in 2015 and it was negative. I also have had multiple EGD's and Colonoscopies that have been unrevealing besides a stomach ulcer which is now healed and some esophagus irritation most recently. I am now scared of eating so many foods because I have had so many days of not feeling right. I have considered getting more strict on the corn restriction or maybe considering nightshade free because I am not sure what to do/if Fodmap is really helping since it isnt all the time and I am stressed about what I can even eat anymore. Any suggestions or thoughts are appreciated!

Thanks in advanced,
Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Sounds like your following the food elimination diet and finding your issues pretty well. Might consider taking a digestive enzyme to help break down your foods. Everyone is a bit different in what their bodies handles I know some who can not handle fats and lots of protein and others like me who can not have carbs sugars and live on a keto diet of fats and protein. I also found meat/animal fats to be a enzyme issue with me so I avoid it and only still eat egg whites and sometimes fish or crab.
Your not alone, I have Celiac so gluten free, Corn allergy....that was a toughy and it is in damn near everything processes, whey allergy, lactose intolerant, soy intolerant, peanut intolerant and sugars/carbs cause my ulcerative colitis to flare....spices also have to be consumed in moderation...I often over use them and feel the consequences.

I get random rolling intolerance it seems...right now got a Iceberg lettuce intolerance with projectile vomiting.....red leaf is fine and I am completely freaked and and stumped by it. Oh well body says no I removed it. Sometimes eating foods so many meals in a row seems to cause a issues and my dietician suggest rotating foods even removing certain foods for 2-7 days at a time to prevent new issues. SO I rotate the seeds/nuts I eat for fats and the leafy greens I use, I also rotate cuisine herbs/seasonings/sauces weekly/bi weekly to keep me entertained with cooking.

Mast cell syndrome, Histamine Intolerance, and Tanins might be things to look into. The latter cut into my life a bit, I have to choose which higher histamine foods to eat for a meal and avoiding eating too many, I also have to avoid having to much iodine which can cause histamine and antibody reactions to be more severe. Tanins can harden proteins you eat making digestion harder, so avoid high tanin foods with high protein/fat meals. Funny how web of foods work.

You mention PPIs, have you had the acid tested? You need to know if you have a very acidic stomach or not. I am odd....My stomach is broken from a OD with caffeine when I was kid. So my pumps never turn off without PPIs...IE I just burp up acid all day and all night without them. But at the same time after testing I found the PH of my acid in the evenings was higher then it should be and not acidic enough just barely so I have to take a half-1 capsule of Betaine HCL with my Pancreatic Enzyme supplement in the evenings. Might be worth looking into.

Supplements, Constipation, muscle fatigue, and some fog issues can be attributed to Magnesium Deficiency, Natural Vitality Calm is best here starting off 1/4tsp dose and slowly up it over a week til the full dose or you get loose stools then back it back down. Gram measurements can be more accurate for dosing.....I learned the hard way lol.
B-Vitamins....work wonders with fogginess and energy and a complex blend of them is needed to work right. I use Liquid Health Stress & Energy and Neurological Support, 2tbsp each 3 times a day.
Vitamin D is another common issues with celiac and might be worth looking into.

fergusminto Apprentice

Hi Sara

In my experience there is no logic to food intolences and like you my first source of info was an IgG test which indicated all dairy, oats, eggs, soya and silly things like MSG, pears and cashew nuts! Through experience I have added preservatives suphates, sulphites etc. to that banned list.  In reality this means that I eat from scratch - no processed foods at all. I also know that the IgG test was 80% accurate.

There is no magic cure out there yet but the best thing to do is cook your own food from basic ingredients and do not go near take-aways.

Sorry not to be more helpful.

Bruce

ch88 Collaborator

You might try an alkaline diet. 

The body tries to maintain a certain level of IGG antibodies in the blood. The body can filter out antibodies through the digestive track and the kidneys. An overly acidic diet is hard on the kidneys.  Celiac disease can damage the kidneys and kidney stones are associated with digestive problems. The mechanism for how the bodies remove IGG antibodies I think is effected by ph and diet. A vegiterian diet (with low fructose consumption) is healthy for the kidneys.  Uric acid kidney stones are the most common type of kidney stone. 

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.