Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused about diagnosis

misa-21

Recommended Posts

misa-21 Newbie
misa-21
Posted

So I have recently had a blood test for Celiac Disease  and these are the results that came back: 
TISSUE TRANSGLUTAM AB IGA: 1 U/mL
GLIADIN DEAMIDATED AB,IGA: 45 Units
GLIADIN DEAMIDATED AB,IGG: 3 Units

TISSUE TRANSGLUTAM AB IGA:   
<4           No Antibody Detected
 > or = 4       Antibody Detected

GLIADIN DEAMIDATED AB,IGA: 
<20    Antibody not detected                                                
  >or=20     Antibody detected

GLIADIN DEAMIDATED AB, IGG
<20    Antibody not detected
   > or=20    Antibody detected

 

and I also had a biospy done on my intestine, which came back negative for Celiac. My doctor seems confused whether or not I have Celiac or not and wants me to do another biopsy after going on the gluten challenge for a longer period of time. I was just wondering what exactly my blood work meant and if you think there's any chance that I do not have Celiac? I should also mention that during the first gluten challenge (after being off gluten for 3 weeks) I did not have any stomachaches, just some bloating occasionally. But I recently went back to eating gluten because I was thinking of doing another endoscopy and I do feel a little off and maybe some brain fog but nothing major, I really would prefer to not do another endoscopy but I'm so confused.

Thanks ! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
21 minutes ago, misa_21 said:

So I have recently had a blood test for Celiac Disease  and these are the results that came back: 
TISSUE TRANSGLUTAM AB IGA: 1 U/mL
GLIADIN DEAMIDATED AB,IGA: 45 Units
GLIADIN DEAMIDATED AB,IGG: 3 Units

TISSUE TRANSGLUTAM AB IGA:   
<4           No Antibody Detected
 > or = 4       Antibody Detected

GLIADIN DEAMIDATED AB,IGA: 
<20    Antibody not detected                                                
  >or=20     Antibody detected

GLIADIN DEAMIDATED AB, IGG
<20    Antibody not detected
   > or=20    Antibody detected

 

and I also had a biospy done on my intestine, which came back negative for Celiac. My doctor seems confused whether or not I have Celiac or not and wants me to do another biopsy after going on the gluten challenge for a longer period of time. I was just wondering what exactly my blood work meant and if you think there's any chance that I do not have Celiac? I should also mention that during the first gluten challenge (after being off gluten for 3 weeks) I did not have any stomachaches, just some bloating occasionally. But I recently went back to eating gluten because I was thinking of doing another endoscopy and I do feel a little off and maybe some brain fog but nothing major, I really would prefer to not do another endoscopy but I'm so confused.

Thanks ! 

Welcome!  

Your blood tests results were like mine with only the DGP IgA being elevated, yet my biopsies revealed moderate to severe patches of intestinal damage.  Patches.  Celiac disease can be patchy.  It is easy to miss damage areas where you realize the small intestine is the size of a tennis court.  I think you need to get copies of your records.  See if your GI took the recommended amount of biopsies and at the appropriate locations.  Perhaps he just two 1 or 2 when the recommendation is often 4 or more.  Then you could just be starting to develop celiac disease too.  You mentioned a challenge.  How long had you been gluten free and how long was the challenge before you had the endoscopy?   Do you have any physical markers like anemia or another autoimmune issue?  What made you go in for testing?  Finally, you can not go by symptoms as they tend to overlap with so many other illnesses.    I had anemia when I was diagnosed.  No GI issues at all.  

misa-21 Newbie
misa-21
Posted
  • Author

Thank you for the insight! I was only off gluten for about 2-3 weeks and then I did the gluten challenge for 3 weeks. I do not have anything else wrong besides that I getstomach aches often and am very susceptible to stomach bugs. I originally went for testing to the doctor 2 years ago,  I was very sick for about a week (couldn't eat, constantly in the bathroom, very lethargic, aches), and they performed multiple blood tests. I actually came up positive for celiac indicators but they never told me until this year when I was at the doctor again (I know... crazy) so I went gluten free for the 2-3 weeks and I went to the GI after this. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748
    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.