Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last time I ever eat out

CholoeS

By CholoeS
in Coping with Celiac Disease

Recommended Posts

CholoeS Rookie
CholoeS
Posted

Hi everyone my name is chole, I’ve been diganosed for 3 years now. Anyway 

Recently went to a place which has gluten free sandwiches and pizza, I ordered a sandwich only to realize that it had been crossed contaminated it had some knid of strange  sauce substance on it and particles from other food.

this upsets me a little but I think it’s best I just make my own food since people are so careless in the kitchen. Most don’t understand what cross contamination is (either that or they don’t care) if it’s cross contaminated then it’s not gluten free. Some of us are extremely sensitive 

Have a bit of a stomach ache just a wake up call I suppose the only person you can trust with your food is you.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Oh, so sorry you became ill.  We rarely eat out.  When we do, we try to find restaurants recommended by celiacs (like “Find Me Gluten Free”).    We read the reviews, if a few celiacs are happy and did not get sick, we’ll take the risk.  

    I hope you recover fast!  

squirmingitch Veteran
squirmingitch
Posted

Or eat only at places that are 100% gluten free.

Rob S. Contributor
Rob S.
Posted

I bought the NIMA.  If I go out , I test the meal. I have had many surprises where the most sophisticated staff brought cross contaminated food while the "dive" spots food was safe.   It is a pretty safe bet that any place that makes gluten-free pizzas or other baked item, along with non-gluten-free items that it will have cross contamination.

TrinaP Newbie
TrinaP
Posted
On ‎4‎/‎12‎/‎2018 at 10:23 AM, CholoeS said:

Hi everyone my name is chole, I’ve been diganosed for 3 years now. Anyway 

Recently went to a place which has gluten free sandwiches and pizza, I ordered a sandwich only to realize that it had been crossed contaminated it had some knid of strange  sauce substance on it and particles from other food.

this upsets me a little but I think it’s best I just make my own food since people are so careless in the kitchen. Most don’t understand what cross contamination is (either that or they don’t care) if it’s cross contaminated then it’s not gluten free. Some of us are extremely sensitive 

Have a bit of a stomach ache just a wake up call I suppose the only person you can trust with your food is you.

 

I tried to tell myself for a long time that I could eat out and just make sure what I ordered was gluten free and tell the kitchen. It doesn't work. I've stopped going out to eat altogether unless it's a place 100% gluten free. You are right, the only one you can trust with your food is you. My family tries to offer to do gluten free stuff for holidays and such; problem is it's hard enough for me to make food for me and they don't have the knowledge and awareness that I do. I bring all of my meals for family events and if I bring something there to "share" I make sure to be the first to take food or put mine completely separate. Others walk by and stick a cracker in a dish of dip not even realizing it's now off limits for me. It's tough but you do adjust and it's so much better then being sick.

Gemini Experienced
Gemini
Posted

Eating out safely is totally do-able but it highly depends on where you live.  The larger the city, where there would be more awareness and having a lot of teaching hospitals and medical really helps.  New England has very high awareness here and there are a few places where the owners are Celiac so those are the restaurants that I go to.  I have never been glutened in the ones where there are Celiac owners.  They get it right every time.  I would trust a Celiac owned restaurant before I would eat anything my family would prepare.  I have other Celiac's in my family and yes, they cheat and are careless.  So annoying.................

CholoeS Rookie
CholoeS
Posted
  • Author
On 4/13/2018 at 12:18 PM, squirmingitch said:

Or eat only at places that are 100% gluten free.

Haven’t found a place ? gluten free near me. Only gluten free Options never completely. Wish I lived near that...

16 hours ago, Gemini said:

Eating out safely is totally do-able but it highly depends on where you live.  The larger the city, where there would be more awareness and having a lot of teaching hospitals and medical really helps.  New England has very high awareness here and there are a few places where the owners are Celiac so those are the restaurants that I go to.  I have never been glutened in the ones where there are Celiac owners.  They get it right every time.  I would trust a Celiac owned restaurant before I would eat anything my family would prepare.  I have other Celiac's in my family and yes, they cheat and are careless.  So annoying.................

Ha maybe I should move to England 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    2. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
    3. Scott Adams
      - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    4. Florence Lillian
      - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) . I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir...
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,910
    • Most Online (within 30 mins)
      7,748
    Vicki Swor
    Newest Member
    Vicki Swor
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      Fermented foods, Kefir, Kombucha?

      By Florence Lillian · Posted

      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.