Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doc only tested for TTG - should I press for more?

samplemomof3

Recommended Posts

samplemomof3 Rookie
samplemomof3
Posted

I’ve been having diarrhea and headaches, daily for 18 days now. I have had many of the common celiac symptoms for most of my life, as well. 

I asked the doc to check for celiac. He ordered the tTG-IgA and nothing else. It finally came back and my results for 3.48 (which according to the <20 range for my test, is obviously a very strong negative). I’ve read that ttg could give a false negative of you are IgA deficient. 

I don’t want to annoy the doc and make him think I’m the queen of the internet, lol, but should I push for a full celiac panel and remind him that the ttg alone could give a false negative? 

Did any of you get a negative tTG-IgA, but actually still have celiac? Also, I should mention on my blood work, my hemoglobin is fine and not showing anemia (not sure if that’s what causes the immunoglobulin A deficiency or not.. I don’t know enough about that deficiency.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Yes you should get the full panel done. Maybe ask for a referral to a GI doctor since this has been going on for over 2 weeks. It might also be a good idea to get a stool sample tested for food borne illness if they haven't done it already.  I had salmonella for over 2 weeks once before the doctor tested. Doc kept insisting it was just IBS. Got an apology and some antibiotics.

cyclinglady Grand Master
cyclinglady
Posted

Yes, I tested negative to the TTG IgA.  My only positive on the celiac panel was the DGP IgA.  At the time of my diagnosis, I was very anemic.   But the Immunoglobulin A (IgA) test should have been run with the TTG IgA.  In celiac disease testing, it confirms if the celiac IgA tests actually work.  Without it, who knows if the TTG IgA test results are valid as some celiacs are Immunoglobulin A deficient?  

Do you have any of the risk factors?  It might make it easier to get the rest of the panel ordered.

Open Original Shared Link

Ravenwoodglass gave some excellent advice too.  In any case, keep persisting as the IgA deficiency y test should have been run.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,403
    • Most Online (within 30 mins)
      7,748
    yemjn
    Newest Member
    yemjn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      High school and starting a 504plan in FLORIDA

      By Scott Adams · Posted

      Navigating a new diagnosis and setting up a 504 plan in Florida can feel overwhelming, but you’re taking such an important step for your daughter! Common accommodations for students with conditions like celiac or gluten sensitivity include unrestricted bathroom access (with no arbitrary limits), permission to leave class or school abruptly if symptoms flare, excused absences for recovery days without requiring immediate doctor notes, and access to safe snacks or a designated eating area. Some families also request preferential seating near the door for easy exits, extended time on tests if fatigue is an issue, or the ability to keep medication/food in the classroom. As for strict bathroom policies, a 504 plan overrides those rules—your daughter’s medical needs legally take priority. It might help to specify in the plan that she requires ‘as-needed’ bathroom access or the ability to go home without penalty during a reaction. Many students thrive with these supports in place, but clear communication with teachers (and a backup advocate, like a school nurse) is key. Wishing your daughter a smooth transition—you’re already doing great by advocating for her!
    • Scott Adams
      is equate menstrual complete gluten free?

      By Scott Adams · Posted

      It looks like there are no gluten ingredients in it:
    • Scott Adams
      Confusion about my son's results

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Ballerinagirl4
      High school and starting a 504plan in FLORIDA

      By Ballerinagirl4 · Posted

      Hello,, Our daughter is a new diagnosis and I have requested a 504 plan to help her navigate her condition.  What are some accommodations people have requested and how are your students doing?  For example we have high school professors that do not allow students to use the restroom more than 3 time a semester? What happens if your student has a unsuspected gluten "episode" are they able to leave school to recover with out jumping through hoops like doctors appointments while she recovers AND the absence is excused. Thanks so much
    • trents
      Does Celiac disease affect blood pressure?

      By trents · Posted

      Malabsorption of vitamins and minerals from celiac disease tends to be global. So, if you are low in one or two things that have been tested, you are likely low in other vitamins and minerals as well. Routinely, we the admins on this forum recommend to those celiacs who were undiagnosed for years to supplement with sublingual B12, a high-potency B-complex, D3 (5000 to 10,000 IU daily), magnesium glycinate (the form of magnesium is important for optimum absorption and also to prevent a laxative effect) and zinc picolinate (the form is important). Please realize that an adult multivitamin is just not strong enough to effectively correct severe and long-standing deficiencies.  Make sure all supplements are gluten free. If you have access to a Costco store, there Kirkland Signature products and Nature Made lines are good choices, good quality, fairly economical and will specify on the label if they are gluten free. Many of them are gluten free.  I'm assuming your doctors have checked your potassium levels since you have been on blood pressure meds. Some of them will leach potassium from the body and potassium is a critical element in cardiac health. Also, many blood pressure meds cause coughing in a significant percentage of people: https://bloodpressureexplained.com/blood-pressure-medications-that-cause-coughing/
×
×
  • Create New...