High Ttg and hypothyroid question

[JST1980]

Hello. I was just told my 5 year old daughter had >100 on her ttg. I haven’t seen the labs yet and don’t remember what other tests were taken. Is there ever a false positive/ another reason why numbers would be so high? 

Also, her dad and 2 grandmothers have hypothyroidism. Her levels came back normal, but that’s something they say they have to continue to watch to see if it pops up. My second question is, could hypothyroid cause a false positive or is it just that those two diagnoses are common together? Could it cause a false positive it if she has normal thyroid levels? Thanks! 

[kareng]

3 minutes ago, JST1980 said:

Hello. I was just told my 5 year old daughter had >100 on her ttg. I haven’t seen the labs yet and don’t remember what other tests were taken. Is there ever a false positive/ another reason why numbers would be so high? 

Also, her dad and 2 grandmothers have hypothyroidism. Her levels came back normal, but that’s something they say they have to continue to watch to see if it pops up. My second question is, could hypothyroid cause a false positive or is it just that those two diagnoses are common together? Could it cause a false positive it if she has normal thyroid levels? Thanks! 

Usually, if it’s that high it is not from other issues.  Often thyroid issues are related to celiac 

Edited May 25, 2018 by kareng

[JST1980]

11 minutes ago, kareng said:

Usually, if it’s that high it is not from other issues.  Often thyroid issues are related to celiac 

Thanks! I literally just got this news so I know absolutely nothing. Does celiac CAUSE thyroid issues? 

[MichelleSC]

I also had blood test result over 100, so I understand how that can feel! I have no idea if the thyroid could be affecting it. I hope it gets worked out!

[cyclinglady]

I have both Autoimmune Thyroiditis and Celiac Disease.  Her very elevated TTG is most likely due to celiac disease and not to thyroiditis.    It should be confirmed by a endoscopy though.  You can also ask for her thyroid antibodies (different from celiac/gluten antibodies) to be run since it runs in the family.   Those can be elevated long before the thyroid starts acting up and showing on a standard thyroid thyroid panel.  Learn more if it runs in your family:

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Some 14 million Americans have Hashimoto’s Thyroiditis.  It is considered to be rare in small children.  Common though starting in teen years and beyond. 

Type 1 diabetes (TD1), thyroiditis and celiac disease are commonly linked (e.g. 10% of diabetics TD1 have celiac disease).  

Edited May 25, 2018 by cyclinglady

[JST1980]

Thank you so much for this information!

[Posterboy]

JST1980,

With Celiac's we often develop other food allergens.

If she is having or your  family members are having hypthyroidism problems you might try getting them off of Soy products.

20 hours ago, JST1980 said:

Also, her dad and 2 grandmothers have hypothyroidism

Here is a link to the research on "Unawareness of the Effects of Soy Intake on the Management of Congenital Hypothyroidism"

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It (Soy) can also affect the dose of levothyroxine needed in adults to control their hypothyroidism.

Here is the research on how Soy can effect hypothyroidism in adults already on levothyroxine  for hypothyroidism.

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I hope this is helpful.

*** this is not medical advice just research on my part (as listed) to provide the links as mentioned/noted in/by the thyroid pharmacist references that cyclinglady linked.

good luck on your continued journey.

2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

 

[JST1980]

On 5/25/2018 at 12:05 AM, MichelleSC said:

I also had blood test result over 100, so I understand how that can feel! I have no idea if the thyroid could be affecting it. I hope it gets worked out!

Thank you! 

I appreciate all of this information. Thank you!