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Celiac Disease and Hives (Chronic urticaria)

mh94
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mh94 Rookie
mh94
Posted

Hi all,

So I have recently been diagnosed with celiac disease. I had my blood test (positive) a few weeks ago and had an endoscopy and biopsy to confirm on Saturday. I have been experiencing many of the common symptoms as suspected but wanted to see if anyone else has had hives that they believe is associated with their celiac disease. To make it clear, it is definitely not Dermatitis herpetiformis. The hives come on very quickly I after I begin exercising, I am a pretty active person, tennis/football/running. But performing these activities is now not enjoyable. Sometimes if I take an antihistamine an hour or so before exercising the hives don't come on.

 

I was wondering if anyone else has experienced this problem? I am gluten-free as of today so hoping this will make a difference, (and to the other unpleasant symptoms also), but worried it might be happening as the result of something else. Thank you!

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RMJ Mentor
RMJ
Posted

Hives that respond to an antihistamine are from IgE antibodies, whereas celiac is IgG or IgA.  One can respond to wheat with all types of antibodies - you might have an allergy plus celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had a lot of hive incidences before I was diagnosed. I would get them from pressure. Even just running my fingernails lightly on my skin could cause them.  I also was allergic to 98 of 99 things that they did skin prick testing for before diagnosis. After I was found to be celiac and had been gluten free for a short time the hives resolved completely. My allergist said that because of the undiagnosed celiac my immune system was in hyperdrive and once I got the diet under control much of my suffering would resolve. He was right. In reality out of all those positive reactions I only have real allergies to a couple plants, my cats and my dog. Even those aren't severe enough now to even feel I need an antihistamine. I can't promise your experience will be the same as mine but I hope the hives resolve for you soon.

Fbmb Rising Star
Fbmb
Posted
10 hours ago, mh94 said:

Hi all,

So I have recently been diagnosed with celiac disease. I had my blood test (positive) a few weeks ago and had an endoscopy and biopsy to confirm on Saturday. I have been experiencing many of the common symptoms as suspected but wanted to see if anyone else has had hives that they believe is associated with their celiac disease. To make it clear, it is definitely not Dermatitis herpetiformis. The hives come on very quickly I after I begin exercising, I am a pretty active person, tennis/football/running. But performing these activities is now not enjoyable. Sometimes if I take an antihistamine an hour or so before exercising the hives don't come on.

 

I was wondering if anyone else has experienced this problem? I am gluten-free as of today so hoping this will make a difference, (and to the other unpleasant symptoms also), but worried it might be happening as the result of something else. Thank you!

Developing hives during exercise is a relatively common occurrence. "Exercise-induced urticaria is directly caused by your body having an allergic response to exercise. Cholinergic urticaria is caused by sweating that results from a rise in your body temperature. Exercising in hot weather makes you more susceptible to cholinergic urticaria. You may also notice these hives while taking a hot bath or when you have a fever." I don't get hives when I exercise but I do itch when I'm hot. I also have dermatographism (a mild form) and my GI specialist said that it has nothing to do with my Celiac. I thought it would go away after I quit eating gluten but it hasn't. My dermatologist said that it's also common and caused by histamines. Hopefully for you the hives do calm down with being gluten free.     

knitty kitty Grand Master
knitty kitty
Posted

Open Original Shared Link

Chronic urticaria is linked to Celiac Disease and low vitamin D

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Hope this helps.

cyclinglady Grand Master
cyclinglady
Posted

Celiac Disease is under the unmbrella of Hypersensitivity.  There are four types.  This is from Wikipedia, but it explains it well:

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You can have more than one type of hypersensitivity.  Since is is an immune response, if you trigger one , it can lead to triggering another.  At least that occurs with me.  My last gluten hit, result in not only increasing my “celiac” antibodies, but also my thyroid and other IgE responses.  I suffered with chronic autoimmune hives daily for about six months.  Eventually, when my body calmed down, the daily hives resolved.  

 

 

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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