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Lisa

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Lisa Mentor

Did anyone see the article today? Chicago AP

"People on popular preseciption heartburn drugs -- Prilosec, Prevacid and Nexum -- seem more prone to getting a potentialy dangerous diarrhea caused by the bug Clostridium Difficile, new research show. C-diff, as it's known, can cause severe dirrhea and crampy intertinal inflammation called colitis.

Something to think about???

Lisa B.


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nettiebeads Apprentice
Did anyone see the article today? Chicago AP

"People on popular preseciption heartburn drugs -- Prilosec, Prevacid and Nexum -- seem more prone to getting a potentialy dangerous diarrhea caused by the bug Clostridium Difficile, new research show. C-diff, as it's known, can cause severe dirrhea and crampy intertinal inflammation called colitis.

Something to think about???

Lisa B.

Thank goodness I didn't get those side effects when I had my ulcer and was on Prilosec. See, everything good for you is bad in the long run, I guess.

jenvan Collaborator

Lisa-

Can you post where you found that information? My dad is and has been on Nexum for a long time. Just curious to read more. Gracias!

Lisa Mentor
Lisa-

Can you post where you found that information? My dad is and has been on Nexum for a long time. Just curious to read more. Gracias!

I don't know a site, but in was in the Virginia Pilot, yesterday, written by Lindsey Tanner, AP - Chicago

Hope you can find it.

bluelotus Contributor

I was hospitalized last month with C.difficle. I was not on any meds at the time of the infection (besides Synthroid and Yasmin). The docs don't know how/why I got it (its not a food poisioning bacteria), but I suspect its just one of those bacterial overgrowths that those with celiac may be prone to. I had never been so ill in my life - the D was water - no substance (sorry, that's kind of gross) and constant vomitting. My lips turned blue and my blood pressure was so low, I couldn't stand without falling over. Very scary. It is supposedly a common overgrowth in those that have been taking antibiotics for a long time (like hospital patients)..... If you have more info on this infection, could you please post?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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