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Struggling with symptoms and need some advice

will4318
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Fenrir Community Regular
Fenrir
Posted

So they retested you and it came back positive?

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will4318 Apprentice
will4318
Posted
  • Author
18 minutes ago, Fenrir said:

So they retested you and it came back positive?

Yes, I eventually had a pill cam test looking for crohn's disease, but instead they thought they saw some villous atrophy so I had another biopsy which was positive this time. 

Fenrir Community Regular
Fenrir
Posted

Nice! You're lucky. Many people's Dr. give up after the first one and refused to go any further. At least you have your answer. 

It takes time to heal. It took about a month for most of my symptoms to go down quite a bit and about 6 months for a full recovery.

cyclinglady Grand Master
cyclinglady
Posted

Thank you for reporting back.  I am sorry that you had to wait two years before getting a correct diagnosed (missed small intestinal damage during the first endoscopy).  Glad the pill camera caught damage allowing for the second endoscopy.

I am going to bookmark your post to show persistence in obtaining a diagnosis and the supporting fact that small intestinal damage can be spotty.  

I hope you recover fast!  

will4318 Apprentice
will4318
Posted
  • Author
2 hours ago, Fenrir said:

So they retested you and it came back positive?

Yes, I eventually had a pill cam test looking for crohn's disease, but instead they thought they saw some villous atrophy so I had another biopsy which was positive this time

 

41 minutes ago, cyclinglady said:

Thank you for reporting back.  I am sorry that you had to wait two years before getting a correct diagnosed (missed small intestinal damage during the first endoscopy).  Glad the pill camera caught damage allowing for the second endoscopy.

I am going to bookmark your post to show persistence in obtaining a diagnosis and the supporting fact that small intestinal damage can be spotty.  

I hope you recover fast!  

Thanks both, I was seeing a private consultant thanks to insurance and he was very persistent thankfully 

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      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
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      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
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