Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally, An Answer....


Mahee34

Recommended Posts

Mahee34 Enthusiast

So after many many months of not feeling well, questioning everything i eat, even sometimes avoiding food all together. It occured to me that every doctor that I saw was placing the blame on celiac disease, which is quite a pet peeve of mine. so finally when i was at my gynocologist i put my food down. turns out i have endometriosis, which can be the cause of many stomach symptoms, the shooting and constant pain, and the occasional attack of captain D (ha as many people call it)...i was to the point where i didn't know what to do anymore, thank goodness i got an aswer!! i'm having surgery the 13th and then trying the strictly organic diet and keeping my fingers crossed that it helps and i can get back to feeling normal.....it pays to question things.........i just wish everytime i didn't feel well people wouldn't say "oh well what did you eat this time"........Nothing actually THANKS! ha


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Good for you for demanding answers. Isn't funny how we know our own bodies? I kept telling my doctor that my terrible back aches felt like my insides were inflamed. He said that it could not be related to my intestinal problems (pre Dx) and they were two unrelated issues.

After going gluten free, guess what......no more back aches!!

Hope you do well with the surgery and it relieves all you pain. :):)

Lisa B

jenvan Collaborator

Glad you got some more answers...let us know how the surgery goes! Hope you feel much much better soon!

skoki-mom Explorer

I think you bring up a good point that celiac disease is not the source of all our ailments! I think when you have something like this, you tend to think "oh, it must be something I ate", especially when celiac disease symptoms are so vague and affect so many body systems. Glad you have been able to figure out what is getting you down and best of luck with your treatment! Hope you feel better soon.

jerseyangel Proficient

I'm glad you stuck to your guns and got the correct diagnosis. Gyno. problems often affect our gastrointestinal systems. I have fibroids and during a hystrocopy, it was discovered I also had polyps (which were removed at that time). I always had noticeable PMS symptoms and during that time I would get D and even mild nausea. Best of luck with the surgery :)

Guest nini

I had surgery for endometriosis about 10 years ago or so, and I think it may be starting to come back...

you are right that gluten is not always the source of all of our problems. good luck with the surgery, you will do just fine and hopefully you will get feeling better soon.

num1habsfan Rising Star

Glad to see you got some answers, and a doctor that actually believed you when something was wrong. (we all know too often they dont, or give you the "I dont know"). Hope you feel better soon.

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mahee34 Enthusiast

thanks for the kind word everyone!!! today is a bad day.....i just don't understand how you can have 2 days where you feel 100% and then all of the sudden it hits you like a wave.....can't wait to see how i feel after all this nonsense

Nancym Enthusiast

Intesting! I wish you the best. I wonder if this might explain my odd sensations and pains in my abdominal area. Got a gyno appt today, I'll ask about it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,197
    • Most Online (within 30 mins)
      7,748

    Joanne01
    Newest Member
    Joanne01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.