Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Symptoms Do You Get


BamBam

Recommended Posts

BamBam Community Regular

I am hoping this is my last topic, for awhile anyway - but those of you that are casien intolerant - what problems do you have should you eat it by mistake. Our family nurse practitioner has suggested that Bernadette get a skin test, what do you think about that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Read the thread of B's diet --I just replied to the skin test idea etc.

Carriefaith Enthusiast

I believe that the skin prick test will test for allergies to dairy. If you want to know about casein intolerance maybe ask your doctor about possible tests?

When I get into dairy, I usually start getting GI problems within an hour or so.

aikiducky Apprentice

Casein gives me constipation, mostly. And gas... :P

Pauliina

BamBam Community Regular

We are going to stop all dairy for awhile and see if this helps. What do you suggest we use for a dairy alternative in cooking - but I think she has to have it soy free also. We like to make clam chowder and she adds milk to her meatballs and meat loaf. If you could give me a brand and/or company I will take it to my health food store and see what we can do with it. i THANK YOU ALL for this past week of comments and suggestions. Isn't there something called Vance's Dairyfree or something like that? Has anyone tried that? I can't remember if we have tried it yet or not. Again, thank you all for reading and commenting and helping out. It is very much appreciated. We really don't have money for any of the tests, so I guess we are just gonna do it the way we can.

jerseyangel Proficient

I use Pacific Foods Rice Milk. It's good in mashed potatoes and things like that. She could use it in her meatballs and meatloaf. Some rice milks, Rice Dream is one, have gluten in them so beware of that. Pacific Foods also has a Vanilla Rice Milk, but I've never tried it.

Nancym Enthusiast

I'm off all milk and grains and soy at least for awhile. I'm using lots of coconut milk. Just got through making a batch of coconut milk yogurt! Actually, it turns out more like kefir than yogurt, but it is good! I mix a bit of sweetener with it and some lemon juice and it makes an awesome drink!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Bernadette may have to stay away from certain foods like clam chowder for a while...but if she wants to try it--there are several gluten-free rice milks I have used. (no soy or gluten in them). gluten-free ones i know of: pacific (has least favorite taste to me), wild oats rice milk, whole foods rice milk, lundberg rice drink, full circle rice milk

ps--rice dream has barley and almond milk (nut thins brand) has soy in it.

Remember to ck labels--casein/milk can be sneaky. Here are some others words to look for besides milk on labels:

Milk-based Ingredients:

Artificial Butter Flavor

Butter, Butter Fat, Butter Oil

Buttermilk

Casein

Caseinates (ammonium, calcium, magnesium, potassium, sodium)

Cheese

Cream

Cottage Cheese

Curds

Custard

Ghee

Half & Half

Hydrolysates (casein, milk protein, protein, whey, whey protein)

Lactalbumin

Lactalbumin Phosphate

Lactoglobulin

Lactose

Lactulose

Milk (derivative, powder, protein, solids, malted, condensed, evaporated, dry, whole, low-fat, milkfat, non-fat, skimmed, and goat's milk)

Nougat

Pudding

Rennet Casein

Sour Cream, Sour Cream Solids

Sour Milk Solids

Whey (in all forms including sweet, delactosed, protein concentrate)

Yogurt

BamBam Community Regular

What about margarine?

We use either Smart Balance with no whey or gluten - we also use a Saffola Brand that we can get at our grocery store. I suppose I will have to call them?

Mr BamBam

  • 4 weeks later...
nederlandse Newbie

I've had very good luck with goat and sheep products. When I first went gluten-free, I eliminated dairy too. Yes, goat and sheep products are more expensive, but the cost is worht it to me. With goat milk / cheese I have no problems with digestion and can enjoy mac & cheese, creamed coffee, cakes, cookies (gluten-free, for me), pizzas (home made). Its made cooking much more enjoyable and I cant even tell you how much more I like eating. Recently, I've been able to start taking in some dairy again. I'm not sure if i have a problem with casin... still working on that one. . . but, in terms of digestion and enjoyment, I HIGHLY reccomend the sheep / goat. Other benefits? Usualy, these products are made organically and entirly without hormones / antibiotics associated with standard dairy.

good luck with the recovery - the hard part is figuring out what works, but there is a light at the end of the tunnel.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.