Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reaction

Lisa

Recommended Posts

Lisa Mentor
Lisa
Posted

It is wonderful to see some many new menbers here, welcome.

I would like to find out what everyones reation time is to being glutened. I am still, by far, not healed, but feeling much better. Although I have had a few ACCIDENTS ( and I really mean accidents) :unsure:

I seem to have a 24 hour distance, between glutened and reaction time. I know that everyone is different in sensitivity, but and curious as to others.

Lisa B.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest schmenge
Guest schmenge
Posted

I am really not sure yet as the main thing that led me towards figuring out what was going on was anemia. I've not had the more typical symptoms, save for diarrhea at times, but not even 100% sure that was from the Celiac.

That said, the other day I had bloating, "rumbling" and gas about 30-45 minutes after lunch. Turns out that although I thought the salad dressing I used was safe it was not. So I am guessing that now that I have been gluten-free for a while I am going to see some reaction (which, I don't think is all bad) and that the reaction for me will be pretty quick. At least that time.

Ursa Major Collaborator
Ursa Major
Posted

Well, it seems that my reaction time is getting longer the longer I am off gluten. When I was so ill last summer everything I ate went right through me after about half an hour. Two weeks after going off gluten it was about half an hour before I got pains everywhere, and about an hour before the diarrhea. A little over a month ago, it was almost two hours. And now it is about 24 hours as well. And the diarrhea lasts only a few hours, instead of a few days (other symptoms last longer, though).

tiffjake Enthusiast
tiffjake
Posted
It is wonderful to see some many new menbers here, welcome.

I would like to find out what everyones reation time is to being glutened. I am still, by far, not healed, but feeling much better. Although I have had a few ACCIDENTS ( and I really mean accidents) :unsure:

I seem to have a 24 hour distance, between glutened and reaction time. I know that everyone is different in sensitivity, but and curious as to others.

Lisa B.

I usually have about 36-48 hours, depending on the food. Pasta is almost instant though. But pizza (I cheated a couple of weeks ago) was about 2 days. It is really weird. My symptoms are totally off now that I am gluten free. It takes longer to get sick, and the sick is so much less than it was when I was eating every day. Not that it is ok to eat now, just odd that it is getting "better".

pamelaD Apprentice
pamelaD
Posted

I am running for the bathroom about 30-60 min after being accedentally glutened.

I am always amazed at the different answers this question always gets!

Pam

jerseyangel Proficient
jerseyangel
Posted

I usually begin to feel the cramping begin about 2 hours after the "accident". Shortly after that, the D sets in. It is interesting to read the different answers to this question.

rmmadden Contributor
rmmadden
Posted

I see reactions about 24-36 hours after. It makes it hard to pin-down the offending food sometimes. I started a food journal which helps in looking back but, it's still frsutarting.

Cleveland Bob B)

It's also "Frustrating" when you can't spell and/or type!!!!

Cleveland Bob B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Actually, looking back at my answer, it isn't entirely accurate. I got a heavy feeling in my stomach shortly after eating that pizza (doubting the celiac, wanting to know for sure a few days ago). A stomach ache not long after. And the next morning I was wheezing and feeling really tired and apathetic (which lasted all day), before finally, 24 hours after eating the pizza, I got diarrhea. I also used to have constantly tearing eyes (especially out of the outer corners), which had almost disappeared, and it was very bad again. It's finally getting better today (three days later).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.