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Will Someone Please Post The Full Panel Of Celiac Blood Tests Again?

e&j0304

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e&j0304 Enthusiast
e&j0304
Posted

Would someone please post this info for me? I am taking Jack in to his dr. tomorrow to discuss other options for him. We had him tested through enterolab and it was neg. We had taken him off of gluten and soy milk trying to clear up his diarrhea to no avail. Actually, the frequency of the stools had decreased and the consistency was a little better, however it was still not formed. We decided to re-introduce gluten back into his diet after 2 weeks and he is now having 7-8 watery diarrhea stools per day that are very light tan and bubbly. They are also very rancid. I don't know what the deal with that is since he wasn't having stools that bad before going gluten-free. We have again taken him off of gluten to try to help his little bottom heal up as it is bright red with blisters that have been bleeding. He is on prescription diaper rash cream. His dr. did test him for parasites in his stool and those were neg. He looks thin to me and I'm worried that he may have lost some weight.

I am going to try to pursue blood tests on him because if he has celiac then I want the rest of our family to be tested including my husbands parents who have health problems. Our family tends to be in denial about all of this and I want to convince them to be tested.

Regardless of the outcome of the test Jack will be gluten-free because he is obviously having a reaction and our house is already pretty much gluten-free anyway because of my daughter.

Thank you to everyone who has been such a support to me throughout all of this starting in Aug. with Ella. I don't know where I would be without all of this information. I appreciate it more than I can express.

Shannon

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Rachel--24 Collaborator
Rachel--24
Posted

Hi Shannon,

Here is the panel

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Good luck with your appointment. :)

e&j0304 Enthusiast
e&j0304
Posted
  • Author

thank you Rachel!

e&j0304 Enthusiast
e&j0304
Posted
  • Author

Just a little update on how things went. This morning Jack had another huge diarrhea, but this time it looked as though there was blood in it. I took it in with us and she said she has never smelled a diaper so foul in her life. She then tested the stool for blood and it came back positive. She wants him to be off of diary because it could be lactose intolerance. She also is going to repeat some of the stool cultures. If those come back neg, she wants him seen by a gastro for celiac testing. The problem is that she wants to send us to the same dr. that we saw with dd who we hated, so we will have to figure out another option.

Jack just a few minutes ago had another diarrhea and it looked really pink like there was more blood in it than last time. It soaked into the diaper before I could get it into the container for tests.

Wish us well with this. I am really nervous about the blood in his stool. I am so tired of worrying this much about my kids...

Shannon

Kasey'sMom Enthusiast
Kasey'sMom
Posted

Shannon,

I know you must be scared!! I hope you're able to figure out what's bothering Jack really soon.

My dd used to get blisters as well before we found out she had celiac disease. A few months after going gluten-free we took her off all dairy as well. For some of us dairy is just really hard to digest.

My dd also has had bloody stools. We found out that she had fissures. It has taken a while for the fissures to heal. Now, as long as we monitor her fiber intake, her stools are normal.

I know it's hard not to worry but I'll say a prayer and be sure to keep us updated.

e&j0304 Enthusiast
e&j0304
Posted
  • Author

Thank you for your support. I had to call the dr. back because Jack had 2 more diarrhea diapers with more blood in them, so I was concerned. They actually got him in to see a ped. gasto dr. tomorrow morning at 10:15! I can't believe it because in the past we've had to wait so long for appointments. They are also concerned about the blood in his stool.

I'll keep you all updated as to what happens. I appreciate the prayers...this is scary for me and dh.

Thanks,

Shannon

jerseyangel Proficient
jerseyangel
Posted

Shannon--Glad you were able to get him right in. Best of luck tomorrow, hope they get to the bottom of this quickly :)

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Rachel--24 Collaborator
Rachel--24
Posted

Shannon,

Happy to hear that the doctors are taking this serious and you don't have to wait for an appt.

I'm sorry you've had to go through so much recently, I hope all goes well tommorrow. Good luck. :)

Becky6 Enthusiast
Becky6
Posted

I hope it goes well today!! I am so sorry!

janicelm Newbie
janicelm
Posted
Thank you for your support. I had to call the dr. back because Jack had 2 more diarrhea diapers with more blood in them, so I was concerned. They actually got him in to see a ped. gasto dr. tomorrow morning at 10:15! I can't believe it because in the past we've had to wait so long for appointments. They are also concerned about the blood in his stool.

I'll keep you all updated as to what happens. I appreciate the prayers...this is scary for me and dh.

Thanks,

Shannon

Well I am a little late in the game here...so I hope your meeting w/the GI dr went well. I am a pediatrician and I am definitely concerned that your little Jack has celiac or some other malabsorption issue. With all of the diarrhea and ?weight loss and now blood..there is much to investigate. Just so you know it is very common to be lactase deficient (meaning you cant digest lactose...dairy) when your intestines are inflammed from celiac or otherwise. My daughter (celiac disease diagnosed 6 mos ago)...had that and now w/a good gluten-free diet she is tolerating all dairy well. Make sure your dr looks into other causes of malabsorption beside celiac...cystic fibrosis, milk-protein allergy, allergic gastroenteritis (usually due to food allergies). If you arent getting answers then get to a dr who gives you some. I feel it is impt to feel a connection w/your dr and if you already didnt like the GI dr..then try to get another recommendation. GOOD luck and I hope little Jack is doing better.

e&j0304 Enthusiast
e&j0304
Posted
  • Author

Hi! Thanks for all your kind thoughts. I posted another thread earlier about how the appointment went, but I don't see it now, so I'll update here.

We saw a ped Gi this morning and he thinks that there is a chance that Jack has celiac disease. He ordered the celiac panel as well as a thyriod test. He also scheduled an endoscopy and colonoscopy for next Wed. He is checking Jack for reflux as well as a biopsy for celiac.

My concern right now is that we had Jack gluten-free for about 2 weeks and he has only been back on gluten for about 4-5 days. I am worried that it will mess up his test results. Is this a valid concern or should we just go ahead with testing. I put in a call to the gi and I haven't heard back yet.

We had such a bad experience with drs. and testing with my dd and I am just nervous about the whole thing. Jack isn't doing that well and has basically not eaten much in the last 2 days. He has fallen from the 75% in weight down to the 20%. I am really worried about him.

Thank you all for thinking of us and I'll keep you updated.

Shannon

janicelm Newbie
janicelm
Posted
Hi! Thanks for all your kind thoughts. I posted another thread earlier about how the appointment went, but I don't see it now, so I'll update here.

We saw a ped Gi this morning and he thinks that there is a chance that Jack has celiac disease. He ordered the celiac panel as well as a thyriod test. He also scheduled an endoscopy and colonoscopy for next Wed. He is checking Jack for reflux as well as a biopsy for celiac.

My concern right now is that we had Jack gluten-free for about 2 weeks and he has only been back on gluten for about 4-5 days. I am worried that it will mess up his test results. Is this a valid concern or should we just go ahead with testing. I put in a call to the gi and I haven't heard back yet.

We had such a bad experience with drs. and testing with my dd and I am just nervous about the whole thing. Jack isn't doing that well and has basically not eaten much in the last 2 days. He has fallen from the 75% in weight down to the 20%. I am really worried about him.

Thank you all for thinking of us and I'll keep you updated.

Shannon

Well I am glad the ball is rolling...good for you!

Well I doubt 2 weeks gluten-free is going to really change his diagnosis. Afterall my dd has been gluten-free for 7mos and is still positive (although so much less and she is growing so much I cant keep up..yea).. ANyway..ask your GI, but it sounds like little jack is sick enough to warrant the tests and the scopes bec of his degree of illness. If the diagnosis is inconclusive then there are other tests..but go for it unless your gi says otherwise. I have to ask if you are the mom who a few mos ago asked her ped to test her son bec dd was pos for celiac disease and the dr said no. Is that you?

e&j0304 Enthusiast
e&j0304
Posted
  • Author

I had one more question. Yesterday and today Jack has not been eating much at all and has been much more spitty than usual. This morning he projectile vomited all over the tray on his highchair at breakfast and then just a little while ago he did it again all over the floor. It looked as though he pretty much emptied the contents of him stomach. I am wondering if this is all related or if he just has a stomach bug? I guess how would you know for sure...

I just called the dr and they do not yet have the lab results from his stool sample I took in this morning. They are checking for more parasites, gerardia (sp?) and fat absorption and a few other things. I am hoping that Jack doesn't get dehydrated.

janicelm: No, I think who you are thinking about is Tamara who has little Emmie. My dd has never had a positive celiac diagnosis because she never had a biopsy. Her blood tests were neg. This new dr. seemed shocked that Ella didn't have further testing, but I guess that ship has sailed for her.

How old was your dd when diagnosed? Jack seems to be really young compared to a lot of kids who are diagnosed with celiac.

thanks again,

Shannon

janicelm Newbie
janicelm
Posted
I had one more question. Yesterday and today Jack has not been eating much at all and has been much more spitty than usual. This morning he projectile vomited all over the tray on his highchair at breakfast and then just a little while ago he did it again all over the floor. It looked as though he pretty much emptied the contents of him stomach. I am wondering if this is all related or if he just has a stomach bug? I guess how would you know for sure...

I just called the dr and they do not yet have the lab results from his stool sample I took in this morning. They are checking for more parasites, gerardia (sp?) and fat absorption and a few other things. I am hoping that Jack doesn't get dehydrated.

janicelm: No, I think who you are thinking about is Tamara who has little Emmie. My dd has never had a positive celiac diagnosis because she never had a biopsy. Her blood tests were neg. This new dr. seemed shocked that Ella didn't have further testing, but I guess that ship has sailed for her.

How old was your dd when diagnosed? Jack seems to be really young compared to a lot of kids who are diagnosed with celiac.

thanks again,

Shannon

My dd was 5...after a yr or 2 questioning other pediatricians about the size of her belly and her short stature and no one thought there was anything wrong w/her. I knew better and with some investigation of short stature on my part we figured it out....she was quite anemic as well. I am so glad we found it when we did.

As for Jack...it will take a few days to figure out the stool tests. Also, have they mentioned collecting his stool for 72hrs to examine the amt of fat in it (fecal fat test)? Has he had blood work. Sounds like his gut is really sick and unable to tolerate and digest most foods right now. Monitor his behaviour and urine output and if you are worried about dehydration call your GI and maybe have him seen again ....weighed, etc. I always tell parents that if you are worried...CALL! Good luck.

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