Ataxia and Celiac question

[cmoore]

Are there any indications whether or not Gluten related Ataxia can occur outside of a diagnose of Celiac ?

[cyclinglady]

I think the answer to your question is still unknown.  The UK seems to be the leading research center in the world for gluten ataxia:

https://www.coeliac.org.uk/healthcare-professionals/diagnosis/spectrum-of-gluten-related-conditions/neurological-conditions/

I think there is a TTG6 antibodies test for gluten ataxia which is different than the TTG2 standard celiac screening test.  Not sure if you have to be on a full gluten diet for 8 to 12 weeks prior to the TTG6 test.  

https://www.verywellhealth.com/gluten-ataxia-symptoms-562398

You have been a forum member for many years.  Is the gluten free diet not helping?  Are you sure you are gluten free?  Consider the Fasano diet for a few months which is basically no processed foods and no eating out.  

https://res.mdpi.com/d_attachment/nutrients/nutrients-09-01129/article_deploy/nutrients-09-01129.pdf

I hope you figure it out.  

[catusmc]

On 9/4/2019 at 6:40 PM, cmoore said:

Are there any indications whether or not Gluten related Ataxia can occur outside of a diagnose of Celiac ?

I have symptoms of Ataxia, but I am fine with gluten and it seems to be either rice, casein, or soy causing my neurological symptoms. I was in the hospital last year and had 9 months of little to no symptoms until a week ago I had a very bad cross contamination and I've been ruined all week.

[cmoore]

On 1/19/2020 at 10:04 PM, catusmc said:

I have symptoms of Ataxia, but I am fine with gluten and it seems to be either rice, casein, or soy causing my neurological symptoms. I was in the hospital last year and had 9 months of little to no symptoms until a week ago I had a very bad cross contamination and I've been ruined all week.

Wow!!

[Scott Adams]

Ataxia can also be caused by diabetes, so consider a screening for that.