Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nausea


laurelfla

Recommended Posts

laurelfla Enthusiast

hi, guys! ok, now that i've heard from you on the running into stuff ;) the next thing i'm a tad concerned about is nausea. i'm completely gluten-free, in fact, i'd practically stake my life on the fact that no gluten is getting in. i've checked all cosmetics and i've only been eating stuff i know is ok. i don't smoke, and the nausea happens both when i'm on my period and off it (sorry for the graphicness!). that's all the factors i can think of... oh, and i avoid lactose and i have no gastro stuff going on.

one of my chief symptoms that led me to go to the dr. back in May was extreme nausea. it's no longer extreme, and i'm not too worried -- but if i thought about it, most of the time, i could be nauseated. i try to distract myself from thinking about it, though. it was actually pretty bad for about 3 days before Christmas, so i took Phenergan once or however you spell it, but it knocks me out so it's really not an option unless i just can't handle it. and now the feeling is just kind of hanging around... for example, i gag if i brush my tongue when i'm brushing my teeth, even without really putting the brush back there. sometimes i get nauseated in the middle of eating and i lose my appetite, or sometimes i suddenly get ravenously hungry and it happens then. i can't figure out a pattern! anyone else have this problem? thanks a million!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jen H Contributor

Ahh...welcome to my world. I was diagnosed with celiac disease back in August and have been on the gluten-free diet ever since. I assumed my nausea would dissappear as I continued the diet. I tend to get more nauseated around the time of my period. I asked my GYN about it and she said that it could be hormonal.

Around that time I was having food allergy testing done and soy came up as a food intolerance for me. I have since taken it out of my diet and I haven't been as nauseous! When I think back about my symptoms and when I had soy, the two went hand in hand.

I'm pretty new to celiac disease, so I'm not really sure which direction to point you in. For me it seemed to be food related. Keeping a food/symptom journal really helped me. I was able to review what I had eaten and when I was nauseous. Maybe that could help you.

Jen H.

laurelfla Enthusiast

thanks, Jen! i had stopped keeping my food journal back in Oct when most of my problems stopped... but i actually pulled it out this morning. :) hopefully i'll get this figured out soon. glad you were able to get to the bottom of it.

jerseyangel Proficient

I have only been gluten-free since June, but I've been sick for about 20 years. Nausea and lightheadedness (anemia) were my main problems for most of that time. The D and other symptoms of Celiac kicked in around 2 years ago. There really was no pattern to the nausea, and back then, I was eating everything--no dietery restrictions. One thing that I have learned will cause severe nausea for me are eggs. About 4 hours after I eat them, I get horrible nausea that lasts for hours. I have it much less now but when glutened, I will still get it. I think nausea is the worst feeling of all--I hope you figure it out soon :)

aikiducky Apprentice

I had mild nausea for I think eight months or so after going gluten free, then it started to get less, and now after 15 months it's completely gone, unless i get glutened.

Pauliina

CeliacMother Newbie
hi, guys! ok, now that i've heard from you on the running into stuff ;) the next thing i'm a tad concerned about is nausea. i'm completely gluten-free, in fact, i'd practically stake my life on the fact that no gluten is getting in. i've checked all cosmetics and i've only been eating stuff i know is ok. i don't smoke, and the nausea happens both when i'm on my period and off it (sorry for the graphicness!). that's all the factors i can think of... oh, and i avoid lactose and i have no gastro stuff going on.

one of my chief symptoms that led me to go to the dr. back in May was extreme nausea. it's no longer extreme, and i'm not too worried -- but if i thought about it, most of the time, i could be nauseated. i try to distract myself from thinking about it, though. it was actually pretty bad for about 3 days before Christmas, so i took Phenergan once or however you spell it, but it knocks me out so it's really not an option unless i just can't handle it. and now the feeling is just kind of hanging around... for example, i gag if i brush my tongue when i'm brushing my teeth, even without really putting the brush back there. sometimes i get nauseated in the middle of eating and i lose my appetite, or sometimes i suddenly get ravenously hungry and it happens then. i can't figure out a pattern! anyone else have this problem? thanks a million!

Yes!!! I have a 15-year old son who was diagnosed last year with Celiac disease. He's very careful about what he eats, but he can't seem to shake the nausea. It has gotten better since he started his gluten-free diet, but it always seems to be there. He'll be starving, but before he's even 1/2 way through his meal will start to feel so nauseaus that he has to stop. It even makes it almost impossible for him to swallow pills. We've tried to figure out a pattern, but there doesn't seem to be any. He says he's just gotten used to feeling that way most of the time, but who wants to live life that way???!! I keep hoping that the longer he stays gluten-free, the better it will get. I don't know. I'll keep in touch and let you know if we make any progress or discover a reason for the nausea. Strange though it sounds, it actually helps to know that someone else is experiencing the same symptoms. Good luck to you!!

laurelfla Enthusiast
Strange though it sounds, it actually helps to know that someone else is experiencing the same symptoms. Good luck to you!!

i thought the same thing! i hate to know that anyone else is nauseated, but it makes me feel less alone! :) i'm still struggling... sometimes it's worse than others but it is really complicating my eating schedule now that classes have started back... i can't eat much at the time, because i get nauseated and don't want to finish and then not long afterwards i start to feel like i'm starving and that is also nauseating! i can't figure it out. i'm doing the food journal and i can't pinpoint a trigger. the only thing i haven't tried is cutting out caffeine.. but at one coke or cup of coffee a day, it's hard to believe that would be the problem. :( please do keep in touch and let me know if you find anything that works!

Pauliina, i'm glad yours is gone!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



key Contributor

Just a thought, But I am convinced that drinking or eating any aspartame makes me nauseated!. It may not happen for other people, but when I have any, I have nausea on and off. SO you may want to look into that. Aspartame is in a ton of foods, even gum. I am sure most people know it is in alot of stuff.

MOnica

laurelfla Enthusiast

hmm, thanks for the tip! i definitely chew a lot of gum.. and i'm sure i get it in other places too. i'll check into that...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,599
    • Most Online (within 30 mins)
      7,748

    Jose Mojena
    Newest Member
    Jose Mojena
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...