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Did Anyone Need To Decrease Meds After Going gluten-free?

Guest BERNESES

By Guest BERNESES
in Related Issues & Disorders

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Guest BERNESES
Guest BERNESES
Posted

Totally- it was always the sensitive kid, sensitive stomach but when I think back to all the things that made me sick it was like fried chicken, pancakes, donuts. Duh!

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jerseyangel Proficient
jerseyangel
Posted

I know--my family is Italian, and every Sunday (and Thurs.) we would have pasta. Shortly after dinner, I would always have to go to the bathroom. I thought it was normal since that's what always happened. Funny how, especially when we're young, we adapt to things like that. It's only looking back that I can see that it wasn't. Normal.

jenvan Collaborator
jenvan
Posted

Patti-

Uh, I would love to able to stop by clarinex ! Hopefully....

jerseyangel Proficient
jerseyangel
Posted

Jen--I haven't used it in quite a while now. Lately, though, my eyes have been very itchy. Am toying with having allergy testing done. The problem is--I don't know if it's from food intolerance or some other allergy. I may just try Claritin again and say to heck with it!

munchkinette Collaborator
munchkinette
Posted

I've only been eating gluten-free for less than two weeks, but my energy has skyrocketed. I don't know that much about the whole gluten issue yet, but I know a great deal about depression meds. I've always needed a low dose to get out of bed and do the natural things that improve my mood, like exercise. I've had a lot of trouble with being tired from anemia, so that has made me depressed at times.

My recent mood has been great since I've had more energy because I can exercise more, and I drink less coffee and get better sleep. So in that sense I think the diet will affect what meds I take. (I take a lot)

michelle4breyer Newbie
michelle4breyer
Posted
Hi Everyone- I'm wondering how many people if any, needed to cut down on depression meds (or any meds) after going gluten-free because their bodies actually started absorbing them? I'm on Celexa 60 mg and I was on 3 mg of klonopin for anxiety. Within a few months of going gluten-free I cut my klonopin down to 2 mg (very gradually). I've noticed that for the last six months or so I have been VERY VERY tired and I'm wondering if cutting down the klonopin a tad more is the answer. I've gained back all the weight I lost (20 pounds) so clearly I'm absorbing something. My doctor told me that if you're on too much it can have the effect of making you tired, depressed and irritable (which is why we initially dropped the dose slowly). Thanks much, B

I was actually able to go off all my anti-depressants. I was on 80 mg Prozac, 60 mg Cymbalta and 170 mg Doxepin and was told I'd be on for life. I now know I wasn't absorbing any nnutrients due to malabsorption and needed the B vitamins, Folic acid, Selenium and 5-HTP. I've had no problems or recurrences of clinical depression. Definitely consult your MD before changing doses or weaning, though.

I was able to go off my meds completely (except insulin). I was on 80 mg Prozac, 60 mg Cymbalta and 170 mg Doxepin. The reason being malabsorpton prevented me from absorbing the nutrients needed to produce Serotonin in the first place. I take the B vitamins, Folic acid, selenium and 5-HTP-which makes serotonin. Always consult with your MD before med adjustments, esp. anti-depressants-but know it has been done successfully. :D

Guest BERNESES
Guest BERNESES
Posted

Michelle- That's awesome! I talked to my doctor and I am slowly cutting down. Before going gluten-free I was on 3 mg klonopin for anxiety, now I'm down to 1.5. That will be the first one we work on eliminating and then we'll see. It's crazy because I have been on some SERIOUS medications too (risperdal, neurontin). Now I'm down to celexa and klonopin and so far, knock on wood, things are going smoothly.

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      By trents · Posted

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    • SilkieFairy
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      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
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