Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Email From My Celiac Support Group--a Must See For All


darlindeb25

Recommended Posts

darlindeb25 Collaborator

This is an email from my celiac support group here on Long Island. I thought you might all like to see this too:

Hi Everyone,

Please read the following - it concerns and affects all of us. This was originally posted on Delphiforums:

"I bought a book the other day, "Talk to the Hand" by Lynne Truss, She's the lady who also wrote "Eats, Shoots & Leaves". I bought it because it looked as though it might be quite funny.

>Anyway I got as far as page 5, where she is writing about pet hates - people who chat in the cinema; young people who walk four abreast on the pavement etc. - and she goes on to write -

>

" I now can't abide many, many things, and am actually always on the

>lookout for more things to find completely unacceptable. Whenever I hear of

>someone being 'gluten intolerant' or 'lactose intolerant', for example, I feel

>I've been missing out. I want to be gluten intolerant too. I mean, how much

>longer do we have to put up with that gluten crap?"

>

I was really irritated by that remark and just put the book away. I now have no desire whatsoever to carry on reading it.

>**************

>If anyone from here wants to complain about what Lynnne Truss wrote in her book please contact the people below to do so.

>

>Jean Anne Rose

>Publicity Manager, Gotham Books

>212-366-2528

>Email:

>JeanAnne.Rose@us.penguingroup.com

>

>*********************

>Or Anthony Goff ( agent)

>Email:

>anthonygoff@davidhigham.co.uk

>******************

I sent an email to both of the above addy's---Deb


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Thanks for sending this Deb.

Obviously that ditz thinks this a fad diet and we are all trying to be part of the "in" crowd. She is only demonstrating how ignorant she really is and how self-centered. As she is such a princess she doesn't want to put up with "this gluten crap."

She should try it from our end of the fence.

Well I have written to the publisher and the agent.

tiffjake Enthusiast

I sent one too....man, that really pisses me off.......

angel-jd1 Community Regular

There is already a thread on this topic. You can find it here: Open Original Shared Link

This is an email from my celiac support group here on Long Island. I thought you might all like to see this too:

Hi Everyone,

Please read the following - it concerns and affects all of us. This was originally posted on Delphiforums:

"I bought a book the other day, "Talk to the Hand" by Lynne Truss, She's the lady who also wrote "Eats, Shoots & Leaves". I bought it because it looked as though it might be quite funny.

>Anyway I got as far as page 5, where she is writing about pet hates - people who chat in the cinema; young people who walk four abreast on the pavement etc. - and she goes on to write -

>

" I now can't abide many, many things, and am actually always on the

>lookout for more things to find completely unacceptable. Whenever I hear of

>someone being 'gluten intolerant' or 'lactose intolerant', for example, I feel

>I've been missing out. I want to be gluten intolerant too. I mean, how much

>longer do we have to put up with that gluten crap?"

>

I was really irritated by that remark and just put the book away. I now have no desire whatsoever to carry on reading it.

>**************

>If anyone from here wants to complain about what Lynnne Truss wrote in her book please contact the people below to do so.

>

>Jean Anne Rose

>Publicity Manager, Gotham Books

>212-366-2528

>Email:

>JeanAnne.Rose@us.penguingroup.com

>

>*********************

>Or Anthony Goff ( agent)

>Email:

>anthonygoff@davidhigham.co.uk

>******************

I sent an email to both of the above addy's---Deb

ms-sillyak-screwed Enthusiast

TALK TO THE HAND is something I feel I have to do living with celiac disease. Ha!

I did send an email and invited them to read my blogg how I had to pull Auntie's feeding tube. In cyberspace do people read emails or wearout their delete buttons?

Open Original Shared Link Don't think people want to buy books that get bad reviews. [lol]

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.