Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nephrotic Syndrome/minimal Change Disease


Jnkmnky

Recommended Posts

VioletBlue Contributor
Sorry, I wanted to add a couple more things.

I think it's kind of funny you would say that you feel "lighter". That's what I kept saying. I couldn't explain it to anyone - I just felt lighter within a couple days of being gluten-free. Strange you would say that ... or is it?

Anyway, I'm glad you're feeling better.

I don't understand it either. I doubt I've dropped more than five pounds since this started, but everything just seems easier to do now. I don't feel as heavy or have as hard a time getting out of a chair or off the floor, things like that. Anything physical is easier to do now. Everything is easier now.

I'm glad we're both feeling better :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UR Groovy Explorer
Wait wait wait, medication? What medication? You got drugs? Oh thats's so unfair. <_<

Geez, you'd think they could have at least thrown a little Valium your way or something. There might be a reason you didn't have Versed - it's a little risky for some, and if you had reaction to the local, it probably would have been worse with Versed (I assume what I had was Versed - I took some basic anesthesia classes a while back for my old job). Mine was a local anesthesia too, & I was awake - just with a moderate sedative, but I could still feel it - just without anxiety. Sorry you didn't get any good meds ! And, I can't believe they told you what you could or couldn't feel - what a bunch of monkeys.

VioletBlue Contributor
Geez, you'd think they could have at least thrown a little Valium your way or something. There might be a reason you didn't have Versed - it's a little risky for some, and if you had reaction to the local, it probably would have been worse with Versed (I assume what I had was Versed - I took some basic anesthesia classes a while back for my old job). Mine was a local anesthesia too, & I was awake - just with a moderate sedative, but I could still feel it - just without anxiety. Sorry you didn't get any good meds ! And, I can't believe they told you what you could or couldn't feel - what a bunch of monkeys.

It's okay, my body got even with them. B) After they positioned the needle and took the first biopsy they looked at it under the microscope and decided they didn't have enough of a sample. When they told me they were going to take another sample my body just went. I went into a cold sweat and thought I was going to throw up and I started shaking so bad I was bouncing off the table. They assumed I was going into shock. It was really too small of a room for that many people to be running into each other in a panic, LOL. Fortunately it was just the accumulated nerves and not shock. In retrospect, I bet they wished they'd given me Valium too.

Violet

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    2. - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    3. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    4. - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

    5. - Scott Adams replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,355
    • Most Online (within 30 mins)
      7,748

    Hungryforgluten
    Newest Member
    Hungryforgluten
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
×
×
  • Create New...