Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nephrotic Syndrome/minimal Change Disease


Jnkmnky

Recommended Posts

VioletBlue Contributor
Sorry, I wanted to add a couple more things.

I think it's kind of funny you would say that you feel "lighter". That's what I kept saying. I couldn't explain it to anyone - I just felt lighter within a couple days of being gluten-free. Strange you would say that ... or is it?

Anyway, I'm glad you're feeling better.

I don't understand it either. I doubt I've dropped more than five pounds since this started, but everything just seems easier to do now. I don't feel as heavy or have as hard a time getting out of a chair or off the floor, things like that. Anything physical is easier to do now. Everything is easier now.

I'm glad we're both feeling better :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UR Groovy Explorer
Wait wait wait, medication? What medication? You got drugs? Oh thats's so unfair. <_<

Geez, you'd think they could have at least thrown a little Valium your way or something. There might be a reason you didn't have Versed - it's a little risky for some, and if you had reaction to the local, it probably would have been worse with Versed (I assume what I had was Versed - I took some basic anesthesia classes a while back for my old job). Mine was a local anesthesia too, & I was awake - just with a moderate sedative, but I could still feel it - just without anxiety. Sorry you didn't get any good meds ! And, I can't believe they told you what you could or couldn't feel - what a bunch of monkeys.

VioletBlue Contributor
Geez, you'd think they could have at least thrown a little Valium your way or something. There might be a reason you didn't have Versed - it's a little risky for some, and if you had reaction to the local, it probably would have been worse with Versed (I assume what I had was Versed - I took some basic anesthesia classes a while back for my old job). Mine was a local anesthesia too, & I was awake - just with a moderate sedative, but I could still feel it - just without anxiety. Sorry you didn't get any good meds ! And, I can't believe they told you what you could or couldn't feel - what a bunch of monkeys.

It's okay, my body got even with them. B) After they positioned the needle and took the first biopsy they looked at it under the microscope and decided they didn't have enough of a sample. When they told me they were going to take another sample my body just went. I went into a cold sweat and thought I was going to throw up and I started shaking so bad I was bouncing off the table. They assumed I was going into shock. It was really too small of a room for that many people to be running into each other in a panic, LOL. Fortunately it was just the accumulated nerves and not shock. In retrospect, I bet they wished they'd given me Valium too.

Violet

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,002
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.