Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic?

gointribal

Recommended Posts

gointribal Enthusiast
gointribal
Posted

The doctor is running tests to see if I am allergic to wheat and milk, did anyone else have this test done and did it help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

I had a skin scratch test for both environmental and food allergens...I did not show any reaction to wheat, oats or rye, but did show a slight reaction to barley. I am NOT allergic to them, but I AM DEFINITELY intolerant to them.

ETA: I didn't show any reaction to milk either, but likewise, I am definitely intolerant. I have the antibodies in my system against both gluten and casein.

tarnalberry Community Regular
tarnalberry
Posted

a wheat allergy and a wheat intolerance are two different things. an allergy test will detect the former, but not the later. the later can cause celiac disease, but you can be intolerant without having any of the diagnostics for celiac disease.

chrissy Collaborator
chrissy
Posted

one of my celiac kids has had allergy testing done and she is not "allergic" to wheat.

christine

Rachel--24 Collaborator
Rachel--24
Posted

I had the tests and I'm not allergic to wheat or dairy.

chrissy Collaborator
chrissy
Posted

our allergist was going to wait to do a celiac screen on me IF my allergy test was positive for wheat or barley etc. LOL!!!!LOL!!!!LOL!!! why doesn't an allergist know the difference between celiac and an allergy?

christine

nogluten- Newbie
nogluten-
Posted

My allergy tests didn't show a wheat or dairy allergy, but my intestines are definately intolerant to both and I have celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted
The doctor is running tests to see if I am allergic to wheat and milk, did anyone else have this test done and did it help?
I have had two tests for wheat allergy, a blood test and a skin prick test. The skin prick test was a 3/4 rating, meaning that I am quite allergic to wheat. And, I had a blood test for wheat allergy and my GI doc said that is was postive.
tiredofdoctors Enthusiast
tiredofdoctors
Posted

Can't remember if wheat was on my scratch and/or injection tests. I know I had a BUNCH of food allergies -- including soy, so I avoid it. The MD said that I traded my environmental allergies as a child for food allergies as an adult. Will check and get back to you. Don't know if that had any influence on me developing antibodies to gluten.

Rusla Enthusiast
Rusla
Posted

Many years ago when I had the the allergy test for eggs, dairy, wheat, environmental things etc. I was found to be allergic to those. I had decided at that point as long as the wheat was not causing me distress I would continue to eat it. Well, now it is no longer the problem of the allergy but that I have Celiac. So being Celiac made me quit where being allergic didn't.

gointribal Enthusiast
gointribal
Posted
  • Author

You all have been so helpful, thanks a million! I just got my test back yesterday and they were negative to wheat and milk. I was highly discouraged! I go in for a EDG next month and I hope they find something, because something is definatly wrong with me! Does anyone know if they combine the celiac blood tests to get a percentage? Because they did something like that with mine. I was in the normal range but when they combined it I wasn't normal? I'm trusting these doctors to read these test correctly and I'm beginning to wonder if they even know how to read the tests????

Rad3737 Rookie
Rad3737
Posted

Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Carriefaith Enthusiast
Carriefaith
Posted
I just got my test back yesterday and they were negative to wheat and milk. I was highly discouraged!
You could still have an intolerance to dairy or wheat.
francelajoie Explorer
francelajoie
Posted

My tests were pretty normal too. My doctor said that the wheat test was just a slight bit high. With my symptoms (I thought I had IBS), she said to go gluten-free and dairy-free for 6 weeks or until my symptoms were completely gone. Then, slowly introduce dairy back into my diet. If I still felt better, than I had a gluten intolorence but not to dairy.

I feel awesome now. I think I got caught on time cause the only symptoms I ever got were diahrea, constipation, and bloating. For the longest time, I was taking a powder supplement called Revitalex. It actually helped me alot. I still have it in my cupboard for when i get glutened! Take that stuff and you get better within 24 hours.

gointribal Enthusiast
gointribal
Posted
  • Author

I've never heard of the supplement called Revitalex?! What is it and what does it do? Does anyone have any good vitamins they would recomend?

  • 3 weeks later...
slpinsd Contributor
slpinsd
Posted

I had a negative scratch test for allergies to ANYTHING. Wheat, oats, barley, rye, were negative on an IgG food allergy test (delayed food allergies). I was positive anti-gliadin indicating gluten intolerance. Dr. said that IgG food allergies can come and go, gluten intolerance is something you're stuck with :)

CMCM Rising Star
CMCM
Posted
Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Frankly, I wouldn't have a lot of faith in what that naturopath says about ANYTHING if he would tell you such an ignorant, totally silly thing (i.e. that caffeine caused celiac disease). It's one thing to not know about something and admit to that fact, but to conjure up such an erroneous statement is irresponsible and dangerous to YOUR health.

Rachel--24 Collaborator
Rachel--24
Posted
Frankly, I wouldn't have a lot of faith in what that naturopath says about ANYTHING if he would tell you such an ignorant, totally silly thing (i.e. that caffeine caused celiac disease). It's one thing to not know about something and admit to that fact, but to conjure up such an erroneous statement is irresponsible and dangerous to YOUR health.

I agree. If I was to start a thread titled "Stupid Things Doctors Say"....that would definately in the top 5. :blink:

skurtz Explorer
skurtz
Posted

so does anmyone that has celiac get a rash or bumps that are not itchy?

Claire Collaborator
Claire
Posted
Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that. Claire

Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that.

On the subject of this thread - you can have a wheat allergy. You can have gluten intolerance (this is genetic and will not show up in any 'allergy' testing - i.e. skin pricks and patches. Then you can have celiac disease which like 'gluten intolerance' is genetic and won't show up as an allergy. You do not have to have a wheat allergy to have either of the other two conditions but you can have a wheat allergy and one or the other of the genetic disorders. You can also have genetic markers for both Celiac and gluten intolerance. Now are you confused? You should be.

I have been skin pricked and patched for everything one can imagine. Allergic to nothing! But I can't eat a piece a bread! Claire

jenvan Collaborator
jenvan
Posted

As Tiffany said, a food intolerance (IgG) is different from an allergy (IgE) and it will not show up on a conventional allergy test. Case in point--I am "allergic" IgE to nothing, but I am intolerant to many many foods. If you want ot ck either of these you must be sure to get the correct tests.

aaascr Apprentice
aaascr
Posted

I was tested a long time ago -

allergic to rye barley corn soy

dairy eggs beans - to name just a few

of my 20+ food allergies.

But did not show allergy to wheat -

go figure.

Glad there is flaxseed, hemp seed, rice

bran and quinoa!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.