Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic?


gointribal

Recommended Posts

gointribal Enthusiast

The doctor is running tests to see if I am allergic to wheat and milk, did anyone else have this test done and did it help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

I had a skin scratch test for both environmental and food allergens...I did not show any reaction to wheat, oats or rye, but did show a slight reaction to barley. I am NOT allergic to them, but I AM DEFINITELY intolerant to them.

ETA: I didn't show any reaction to milk either, but likewise, I am definitely intolerant. I have the antibodies in my system against both gluten and casein.

tarnalberry Community Regular

a wheat allergy and a wheat intolerance are two different things. an allergy test will detect the former, but not the later. the later can cause celiac disease, but you can be intolerant without having any of the diagnostics for celiac disease.

chrissy Collaborator

one of my celiac kids has had allergy testing done and she is not "allergic" to wheat.

christine

Rachel--24 Collaborator

I had the tests and I'm not allergic to wheat or dairy.

chrissy Collaborator

our allergist was going to wait to do a celiac screen on me IF my allergy test was positive for wheat or barley etc. LOL!!!!LOL!!!!LOL!!! why doesn't an allergist know the difference between celiac and an allergy?

christine

nogluten- Newbie

My allergy tests didn't show a wheat or dairy allergy, but my intestines are definately intolerant to both and I have celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
The doctor is running tests to see if I am allergic to wheat and milk, did anyone else have this test done and did it help?
I have had two tests for wheat allergy, a blood test and a skin prick test. The skin prick test was a 3/4 rating, meaning that I am quite allergic to wheat. And, I had a blood test for wheat allergy and my GI doc said that is was postive.
tiredofdoctors Enthusiast

Can't remember if wheat was on my scratch and/or injection tests. I know I had a BUNCH of food allergies -- including soy, so I avoid it. The MD said that I traded my environmental allergies as a child for food allergies as an adult. Will check and get back to you. Don't know if that had any influence on me developing antibodies to gluten.

Rusla Enthusiast

Many years ago when I had the the allergy test for eggs, dairy, wheat, environmental things etc. I was found to be allergic to those. I had decided at that point as long as the wheat was not causing me distress I would continue to eat it. Well, now it is no longer the problem of the allergy but that I have Celiac. So being Celiac made me quit where being allergic didn't.

gointribal Enthusiast

You all have been so helpful, thanks a million! I just got my test back yesterday and they were negative to wheat and milk. I was highly discouraged! I go in for a EDG next month and I hope they find something, because something is definatly wrong with me! Does anyone know if they combine the celiac blood tests to get a percentage? Because they did something like that with mine. I was in the normal range but when they combined it I wasn't normal? I'm trusting these doctors to read these test correctly and I'm beginning to wonder if they even know how to read the tests????

Rad3737 Rookie

Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Carriefaith Enthusiast
I just got my test back yesterday and they were negative to wheat and milk. I was highly discouraged!
You could still have an intolerance to dairy or wheat.
francelajoie Explorer

My tests were pretty normal too. My doctor said that the wheat test was just a slight bit high. With my symptoms (I thought I had IBS), she said to go gluten-free and dairy-free for 6 weeks or until my symptoms were completely gone. Then, slowly introduce dairy back into my diet. If I still felt better, than I had a gluten intolorence but not to dairy.

I feel awesome now. I think I got caught on time cause the only symptoms I ever got were diahrea, constipation, and bloating. For the longest time, I was taking a powder supplement called Revitalex. It actually helped me alot. I still have it in my cupboard for when i get glutened! Take that stuff and you get better within 24 hours.

gointribal Enthusiast

I've never heard of the supplement called Revitalex?! What is it and what does it do? Does anyone have any good vitamins they would recomend?

  • 3 weeks later...
slpinsd Contributor

I had a negative scratch test for allergies to ANYTHING. Wheat, oats, barley, rye, were negative on an IgG food allergy test (delayed food allergies). I was positive anti-gliadin indicating gluten intolerance. Dr. said that IgG food allergies can come and go, gluten intolerance is something you're stuck with :)

CMCM Rising Star
Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Frankly, I wouldn't have a lot of faith in what that naturopath says about ANYTHING if he would tell you such an ignorant, totally silly thing (i.e. that caffeine caused celiac disease). It's one thing to not know about something and admit to that fact, but to conjure up such an erroneous statement is irresponsible and dangerous to YOUR health.

Rachel--24 Collaborator
Frankly, I wouldn't have a lot of faith in what that naturopath says about ANYTHING if he would tell you such an ignorant, totally silly thing (i.e. that caffeine caused celiac disease). It's one thing to not know about something and admit to that fact, but to conjure up such an erroneous statement is irresponsible and dangerous to YOUR health.

I agree. If I was to start a thread titled "Stupid Things Doctors Say"....that would definately in the top 5. :blink:

skurtz Explorer

so does anmyone that has celiac get a rash or bumps that are not itchy?

Claire Collaborator
Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that. Claire

Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that.

On the subject of this thread - you can have a wheat allergy. You can have gluten intolerance (this is genetic and will not show up in any 'allergy' testing - i.e. skin pricks and patches. Then you can have celiac disease which like 'gluten intolerance' is genetic and won't show up as an allergy. You do not have to have a wheat allergy to have either of the other two conditions but you can have a wheat allergy and one or the other of the genetic disorders. You can also have genetic markers for both Celiac and gluten intolerance. Now are you confused? You should be.

I have been skin pricked and patched for everything one can imagine. Allergic to nothing! But I can't eat a piece a bread! Claire

jenvan Collaborator

As Tiffany said, a food intolerance (IgG) is different from an allergy (IgE) and it will not show up on a conventional allergy test. Case in point--I am "allergic" IgE to nothing, but I am intolerant to many many foods. If you want ot ck either of these you must be sure to get the correct tests.

aaascr Apprentice

I was tested a long time ago -

allergic to rye barley corn soy

dairy eggs beans - to name just a few

of my 20+ food allergies.

But did not show allergy to wheat -

go figure.

Glad there is flaxseed, hemp seed, rice

bran and quinoa!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748

    Jamie B
    Newest Member
    Jamie B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.