celiac disease and Cold Agglutinin Disease and also Gallbladder

[GFdonut]

Hello, does anyone here with celiac happen to have Cold Agglutinin Disease? I have been trying to research links between the two but not finding much.

Asking for my husband, who also had to have emergency gallbladder removal surgery. He doesn't have any celiac disease diagnosis but has a couple symptoms (not abdominal related, just more lethargy). However his uncle has celiac disease with no symptoms.

Edited January 17, 2020 by GFdonut

[cyclinglady]

Has your husband had a celiac blood panel done?  A complete one and not just the screening TTG (most given)?  

Know that you can have more than one type of anemia.  My celiac disease diagnosis was masked by my Thalassemia which is a genetic anemia.  My iron-deficiency anemia was often blamed on that and being a women.  

Lethargy can be due to anemia which can be due to untreated celiac disease.  

BTW, I had my gallbladder removed before my diagnosis.  It was non-functioning (no stones) and was finally became infected.  I really think had my celiac disease diagnosis been made years ago, I would have kept my gallbladder.  

[Fenrir]

It's quite possible that he could have both, since autoimmune disease tend to run together. 

Both require the appropriate testing to be performed. 

I too had my gallbladder removed prior to celiace DX because my symptoms were similar to gallbladder disease. My gallbladder function test was very low, basically non-functional. Personally, with as many people that have Celiac Disease and a non-functioning gallbladder I think celiac disease damages it. 

[GFdonut]

Thank you both for taking the time to answer. To answer the questions/comments:
"Has your husband had a celiac blood panel done?  A complete one and not just the screening TTG". No he hasn't, however he has a doctors appointment next week and will ask for the blood test and gene test.

"Lethargy can be due to anemia which can be due to untreated celiac disease. " My husband's iron levels in his bloodwork have always been fine, at his last test they sent him off for liver scans but there turned out to be nothing wrong with his liver. We had a bit of a scare last year with him needing to get tests to rule out non-Hodgkins lymphoma as anomalies were picked up. With the lethargy he also has a diagnosis of depression, so he has always believed one causes/contributes to the other.

"Personally, with as many people that have Celiac Disease and a non-functioning gallbladder I think celiac disease damages it." With my husband, he was experiencing pain and went to the ER, the first time they looked at his file and said oh it's just your anxiety, gave him a valium and sent him on his way. Grrrr. Two days later he felt so bad he took himself back to the ER (and he looked awful), a more responsible doctor scanned him and they scheduled him for immediate gallbladder removal surgery within the hour.

 

We have two teenagers, neither has ever had IBS, nausea, etc associated with celiac symptoms however recently my 13yo has said she often has a bit of a stomach ache that she has always attributed to having eaten too much (and she doesn't eat much). She is skinny but the paediatrician wasn't concerned as the whole family (except me!) are very tall and slim, and my daughter was in the 25th percentile for height-weight. However since she was 11 my daughter has had facial and back acne, and my 15yo has some acne but not as bad as my youngest. Both kids want to get tested for celiac and are also willing to go gluten-free, so the three of us have decided we will be doing a family gluten-free experiment for 6-8 weeks once the blood tests are done, though I know some doctors are happy to give you the gene test if there's a family history and not go with the blood test.

Edited January 19, 2020 by GFdonut