Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Sick Teenager

michelle4boys

Recommended Posts

michelle4boys Newbie
michelle4boys
Posted

I really need some help :unsure: I have a 15 year old that has been very sick for 3 months now. I wont even go into the FULL story because it would be just WAY too much reading. Basically.... he has been diagnosed with TONS of different allergies. In the course of 3 months he has been prescribed 13 (i think) different medications. The latest med is Zantac. Zantac was prescribed for the vomitting and pains he has been having on and off. He can vomit several times a week. He complains of stomach pains - sharp and dull, stomach cramping - sometimes severe. (He has not lost any weight)

We found out he had a wheat allergy thru the allergist. He was also just tested for molds. One that he is allergic to is Candida. No one ever told us to do anything about the Candida. We started him on a wheat free diet (not gluten free) a few weeks ago. I have not noticed any significant change in the way he feels. He still complains and still vomits a couple times a week. I discussed at our last visit the possiblity of Celiac. The doctor dismissed this - saying "Most Celiac's have diareaha". Is this true? Instead of walking out of the office with any answer - we walked out with yet another prescription and a "well maybe he is developing ulcers". @@

I dont even know what to do at this point in time other than to change to a more aggressive doctor. I guess my question would be... does it sound AT ALL like Celiac? I'm just at a loss. I'm at the end of my rope with watching my child get sick and dont know what to do. ANY information or advice would be GREATLY appreciated!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

no---not all celiacs have diahreah (SP?) can you ask the doctor to just humor you and run the test? one of my twins was nauseated for 3 months and now that ashe is gluten free, her nauses has improved.

christine

michelle4boys Newbie
michelle4boys
Posted
  • Author

what tests would I ask for?

key Contributor
key
Posted

I am sorry your son is so sick. He definitely should be tested for celiac. They don't have to have diarhea. ARe you seeing a pediatric Gastroenterologist? If you are, then you need to find another one and if you aren't you need to find one.

I hope you find the answer soon.

Does he having any gas or bloating with this?

Hope you get some answers. Obviously though it is time to find a new doctor.

Monica

michelle4boys Newbie
michelle4boys
Posted
  • Author

No he is only seeing our family practice doctor. She only wants him to see an allergist. I think its time to move on....

jerseyangel Proficient
jerseyangel
Posted

I would also suggest you have him tested for Celiac. I am 49, but had nausea as my main symptom from the time I was in my 20's. Because nausea and dizziness were my main symptoms, I was misdiagnosed for many years. The D did not begin to be a problem until about 10 years ago--and did not get severe until 2 years ago. You need to ask for the complete Celiac blood panel. Moving on from the allergist is a good idea for this. A gastroenterologist with Celiac experience would be the best person to talk to.

michelle4boys Newbie
michelle4boys
Posted
  • Author

Well - I took your advice. I was under the impression I needed a referal to see any specialist. This is new insurance we have. I called my insurance company and NO referal needed!!! I will call in for a gastro.... specialist tomorrow! Thank you very much! I know it sounds like such a 'minor' thing but I already feel this is a huge step forward in finding out what is wrong. And here I was trying to get a referal that was refused by the family practitioner @@ So, believe it or not - you've all helped me so much already! Any step forward is a good step! Thank You!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Diarrhea is not necessary for a celiac diagnosis by any means--there are over 212 symptoms and diarrhea is not even the most common of them! Definitely get him tested.

jerseyangel Proficient
jerseyangel
Posted

Michelle--It's not minor at all! So happy you got the go-ahead from the ins. co. Good luck--and let us know how he does :)

Merika Contributor
Merika
Posted

Diahrea is not always there. It could swing all the way to constipation. Or bowel movements could be perfectly fine. Mine were always fine and it took me 12 YEARS and an accidental diagnosis to find out about celiac. I wish you and your son luck in feeling better.

Merika :)

marciab Enthusiast
marciab
Posted

My daughter just turned 18 and has severe environmental and food allergies. I worry about her too. Her body, esp her face, swells on a regular basis. She takes Zyrtec daily and uses a rescue inhaler as needed. We are going to her doctors for asthma meds today. They prescribed Zantac too, but her stomach issues come and go, so she refuses to take it every day. Did they tell you that Zantac has an antihistamine in it ?

I completely agree with the rest about having him tested for celiac. But meanwhile, your son should start paying more attention to which foods he is eating and what the results are. Be sure he keeps a journal. The elimination diet would be the fasted way to see if he has food allergies, but he has to be eating wheat, rye, barley and oats for the celiac tests to be accurate. My daughter has concluded that she is allergic to bananas, coconut and pineapple. Bananas make her mouth tingle. She loves Reeses and is in denial about peanuts.

I'm planning on having my daughter tested for celiac the next time they draw blood on her. I heard about that woman who's body swelled up from celiac. My daughter sees what I eat and really wants no part of it. This should be fun !!!!!!!!!!!!!

Good luck and Hang in there ... It's tough being a Mom... Marcia

Ashley Enthusiast
Ashley
Posted

I would absolutely recommend having him tested for Celiac. I had no Diarrhea whatsoever. The symptoms are different with each individual. With some cases, some lose significant amounts weight (which happened to myself...eighty pounds :wacko: ) and others have none. Hope your Son makes way to feeling much better!

Rachel--24 Collaborator
Rachel--24
Posted

Hi,

I never had diarreah either. Don't let the doctor tell you that w/out diarreah you cant have celiac...its not true. My doctor said the same thing...they are just misinformed.

pixiegirl Enthusiast
pixiegirl
Posted

I have tons of food allergies as well and similar symptoms, pain, gas, all sorts of GI symptoms. You might want to talk to the GI doctor about having your son take Gastrocrom... its a mast cell inhibitor... (which are allergy related) its got virtually no side effects, you mix a few drops with a glass of water before you eat and it mitigates the allergic response to food. As far as drugs go, its very low on the scale of being bad for you. It is the only thing that has worked for me with my food allergies, I'm feeling almost totally normal right now. The only bad thing about it is: it has to be take before every meal and bedtime and it takes about 2 weeks to really work.

However even if he takes it for the short term it would give his system some time to heal up. I really suggest you ask your doctor about it and do some Google research, its help me tons and I believe there are others on this list that have taken it and I am on a few other lists for GI disorders and it seems its helped tons of people. Again very low on side effects (I've had none at all, other then feeling great).

Just an idea!

Susan

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,158
    • Most Online (within 30 mins)
      7,748
    MollyK
    Newest Member
    MollyK
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.