Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Diet Results


FairySprinkle

Recommended Posts

FairySprinkle Rookie

About how long does it take before I see if a gluten-free diet is helping? Is there a range?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

I took about 3 weeks for my 3 year old son and 3 days for my 5 mo. old daughter. From what I understand it varies considerably with the individual.

Rusla Enthusiast

Some of mine improved within the first couple of weeks. The rest will take more time, I suspect.

FairySprinkle Rookie

I have been trying to be gluten-free for about 4 days to the best of my knowledge. If I wanted a blood test done, how long will I need to be eating gluten until the appointment? 2 weeks?

Do you find that the first few days it goes from better to worse to better as if it seems hopeless or does it get better only since gluten-free?

wolfie Enthusiast

I saw a huge change within 24 hours. I still have some of my old symptoms, but not to the degree that I had them before. I have been gluten-free for 4 weeks tomorrow. I think that it takes a good amount of time. I have read that it can take up to a year or 2 to completely heal.

jenvan Collaborator

Unfortunately it really depends person to person. Some here felt great within a few weeks, others such as myself are a year or more gluten-free and still holding out for more improvement (although I have noticed some for sure). I think most people notice improvement in some area physically within the first few months though. You'll get there !

jerseyangel Proficient

For me, the D stopped in a few days. The other symptoms took longer--I began to feel better around the 4th. month. After 8 months, I still have problems with fatigue, joint pain, anxiety and reflux. I am a work in progress :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jgeeningie

Still new to all this...I keep hearing people talk about strict separation of foods at home, even to the point of separate pots & pans. Is this all really completely necessary. Will a crumb of wheat really affect me after I've gone completely gluten-free.

Like I said, I'm still learning about all of this. I'm still eating gluten b/c I haven't had a biopsy yet, but I'm trying to prepare myself for when I have to make the change. This is all so intimidating. :blink:

DingoGirl Enthusiast
Still new to all this...I keep hearing people talk about strict separation of foods at home, even to the point of separate pots & pans. Is this all really completely necessary. Will a crumb of wheat really affect me after I've gone completely gluten-free.

Like I said, I'm still learning about all of this. I'm still eating gluten b/c I haven't had a biopsy yet, but I'm trying to prepare myself for when I have to make the change. This is all so intimidating. :blink:

Hey there - I"ve been gluten-free for two-and-a-half weeks - I noticed improvement in my bowels and mental health in just five days. I am using the same pots and pans, the same toaster that I used before, without any special treatment. Everything was great until today - 3 major bouts of D. I think I ate something with gluten yesterday, either the Basking Robbins ice cream or the Trader Joe's Lemongrass Chicken entree, or maybe some seasoning that was on the meat at my family dinner? I am researching this....but, just to let you know, I didn't change any appliances or cookware, and things dramatically improved for me.

Susan

Rachel--24 Collaborator

As far as changing appliances and such I would mainly be concerned about the toaster. If you have Celiac a crumb will definately do you harm. The toaster would be a major source of contamination and is very cheap and easy to replace. Also wooden spoons....cheap and easy to replace. As far as pots and pans...I'd just clean them really good....unless they're really old with lots of cuts and scratches in them. Its kind of overwhelming to do everything at once so I'd just make the toaster a main priority.

jenvan Collaborator

jgeeningie--

A crumb--yes, it could hurt you, especially if you continue to have crumbs frequently over a long period of time. Strive for no gluten, no contamination. I saw you are cancer free 10 years--that's awesome! (Can I ask what kind of cancer?) I'm sure you've heard of increased cancer rates in Celiacs...

As for pots/pans... As Rachel mentioned, keeping your applicances clean and separate is important I think. I do have separate pans etc in my house. But occasionally there may be some cross-over in cooking. (Not in the eating though). I feel okay with this since we have a dishwasher and I am able to get things clean--that's the biggest thing for me. However, I've found it easier and less stressful to just keep things separate. My husband has his own pot, skillet, mixing bowl, spatula, toaster and griddle. Everything else in the kitchen is mine :)

Guest nini

I don't have a separate toaster, I got a toaster oven, it's much easier to keep clean than a regular toaster, and I can just plop a sheet of aluminum foil down on the rack if I don't have time to thoroughly clean it.

I swictched most of my pots and pans over to stainless steel about a year into the gluten-free diet. My husband still uses some of the old non stick ones for his food, and if he uses the stainless steel ones, they are easier to keep clean.

Yes one crumb will hurt, in fact, it only takes one molecule of gluten to do damage to your intestines. You may not have noticeable symptoms, but it will still do damage. This is why it is so important to be as gluten-free as you possibly can be.

jerseyangel Proficient

I'd like to add this to what everyone above has said--at the beginning, after cutting out the gluten, we tend to feel much better. What then happens, (in a lot of cases) is that we start to become more sensitive to smaller amounts. Another thing that was big for me was going through all of my personal care products and seeing if there was gluten in any of them. Back then, I found it in a hair gel and my shampoo and conditioner. It's hard to make large, sweeping changes all at once. Starting with the toaster is a good idea, and then you can take stock of where you might get contaminated and go from there. Any time you have a question, we're here :)

Guest jgeeningie

jgeeningie--

A crumb--yes, it could hurt you, especially if you continue to have crumbs frequently over a long period of time. Strive for no gluten, no contamination. I saw you are cancer free 10 years--that's awesome! (Can I ask what kind of cancer?) I'm sure you've heard of increased cancer rates in Celiacs...

I had Hodgkins Lymphoma at the age of 23, Stage 2 B. It was treated with Chemo & Radiation.

Yes, I am aware of increased cancer rates, and that does scare me. I'm still under the care of an oncologist, and he is aware of my situation, I have an appointment with him soon to find out his take on the whole thing. I'm very anxious to get this under control soon. My Dad was diagnosed with Celiac last year (unfortunately he passed away in November); so I know it's genetic.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.