Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Jealousy...


princessfuzzball

Recommended Posts

princessfuzzball Rookie

I have been gluten free for almost a year... I'm doing a LOT better than before I was diagnosed, and I'm very happy about that.

However-

If people around me are eating, I do indeed still miss that food.

I have tried to tell myself time and time again that I'm better off without it, but that isn't helping.

I have tried to tell myself that I don't want what I'm craving, that dosen't work very well either.

What do you do when you are surronded by all this?

I can't run away, and I'm sick of lying to myself, I can't seem to get over gluten.

Apparently my wishing for easy convience foods annoy people around me, and my inner struggle is annoying me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

I remind my self of the pain and suffering I suffered with wheat and gluten and I don't miss it anymore. If it is pizza I am missing I make myself a gluten-free one the way I like, with pesto sauce.

ianm Apprentice

I was just too sick and don't ever want to be that way again. I have too many good things happening in my life to blow it by eating a donut.

tarnalberry Community Regular
What do you do when you are surronded by all this?

I can't run away, and I'm sick of lying to myself, I can't seem to get over gluten.

Apparently my wishing for easy convience foods annoy people around me, and my inner struggle is annoying me.

I just remind myself that I want it, but I can't have it. Doesn't mean I want it any less, just means I don't have it. That's really about it. To borrow an analogy (a bit racy though it may be), it's kinda like sex. You can have the drive/desire/urge to have sex with your significant other, but if they're not in the mood, you don't do it. You may find some other alternative (like you do with your gluten-free food), but you don't get what you want. It doesn't mean you don't want it, just that you can't have it.

hez Enthusiast

I have similar issues. I have started to demonize the gluten. Not just in my head but out loud. My friends think I am nuts (this is nothing new, they thought that before my dx). I also know how sick it will make me. I really do think this is the hardest part, the emotional.

Hez

Nancym Enthusiast

I really think it is very like a drug. You're out of the initial detox phase, but it still calls to you. All I can say is I think it will call less and less as time goes by. I had given up all carby refined foods about 3-4 years ago, but I started back on them again (occassionally) before I figured out the gluten intolerance thing. Most of these 3-4 years I've been free of it all (I don't even eat gluten free substitutes) and I really don't miss it. As long as I have food I find tasty and wonderful smelling I'm fine eating anything.

I am doing ok. Going dairy free hurt for a few weeks, but I quickly adjusted to that new reality too. My only complaint is I'd like to have something that could replace yogurt for me (I don't eat soy either).

I think in the end we're actually the lucky ones. We've been identified and we're not further damaging our health. 97% of the celiacs out there haven't been diagnosed. And who knows how many gluten sensitives are out there suffering with IBS or whatever and possibly doomed to shorter, sicker lives because they'll never be diagnosed, or they can't give up their poison.

I guess I like to focus on the positives. I know I'm eating the healthiest diet I've ever eaten in my entire life. It took a lot of years of suffering to get to this point, but here I am.

fisharefriendsnotfood Apprentice

I think I'm just so used to it that it doesn't bother me. I know, I haven't tried gluten since I was two, but let's take fries as an example. I know what fries taste like but I can't have the ones at my cafeteria. When my friends buy them it doesn't bother me. Don't know why. I'm lucky. Yay!

-Jackie :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gabby Enthusiast

Have a pity party. Seriously. When you are feeling left out and angry and depressed about this (which will happen from time to time) throw yourself a pity party. The key is to give it a time limit. I give myself 2 solid hours. I make sure I can have those two hours to myself and I'm allowed to be as dismal and miserable as I want. Play those old sad songs. Put on a pot of coffee. Look at pictures of yourself before the diagnosis. Punch a pillow. Write angry hurtful letters in a diary...but don't send them. Cry. Wallow. Yell out..why me?

And then, when the two hours is up, pack up your kleenex. Put away the old photos. Put on a really upbeat song (like Funkytown, or Ace of Base...I know they're corny but they're fun). Dance around in your livingroom and then outloud, list 10 things in your life that you are happy about and are grateful for and you wouldn't change for the world.

Note: the wallowing can go for 2 hours...but I find it never lasts longer than 20 minutes personally.

let us know how this works out for you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      14

      Severe severe mouth pain

    2. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

    3. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      14

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      14

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,909
    • Most Online (within 30 mins)
      7,748

    probinson3870
    Newest Member
    probinson3870
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.