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Gluten Intolorence/celiac

francelajoie

By francelajoie
in Coping with Celiac Disease

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francelajoie Explorer
francelajoie
Posted

Is there a difference?

My doctor said I was gluten intolorent, and also mentionned I had Celiac Sprue?

I'm confused :(

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psawyer Proficient
psawyer
Posted

Celiac is a form of gluten intolerance. All celiacs are gluten intolerant. However, there are other situations which cause gluten intolerance. My understanding is that Autism presents both gluten intolerance and casein intolerance.

Rachel--24 Collaborator
Rachel--24
Posted

Its basically the same thing except for with Celiac you get damage to your villi whereas Gluten Intolerance without Celiac causes symptoms and/or damage in other ways. The treatment is the same either way. You have to avoid gluten 100% to remain healthy.

  • 3 weeks later...
jenvan Collaborator
jenvan
Posted

Unfortunately, I don't think doctors and researchers are totally sure of the difference, as their seems to be a developing continuum of Celiac. Dangerous Grains may be a good read for you... I agree with Rachel and regardless of which, you must remain 100% gluten-free...or you are risking damage, whether villi or damage in other organs. PS--What tests did your doc run?

francelajoie Explorer
francelajoie
Posted
  • Author
Unfortunately, I don't think doctors and researchers are totally sure of the difference, as their seems to be a developing continuum of Celiac. Dangerous Grains may be a good read for you... I agree with Rachel and regardless of which, you must remain 100% gluten-free...or you are risking damage, whether villi or damage in other organs. PS--What tests did your doc run?

Blood test only

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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