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Thank You And Migraines

Faithperson

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Faithperson Newbie
Faithperson
Posted

First of all, thank you thank you thank you to all who are involved with contributing to this message board. I'm recently diagnosed with celiac disease (blood work and upper endoscomy biopsy confirmed) and very much looking forward to healing up and getting better. I was, among other things, a cyclist, karate practitioner, and a generally overall highly active person, and over the past seven years have became weaker and weaker, sicker and sicker, my iron stores depleted and tensions headaches after working out morphed into migraines nearly half the days out of every month. Finally, thanks to the nurse practitioner intent on figuring out what was wrong with me, I have clear answer. Now comes the interesting part, living gluten free. I am hopeful the migraines will get better; the neurologist thinks it's possible. Any testimonials out there?

I am so glad to finally figure out what the problem is.

ae

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Rachel--24 Collaborator
Rachel--24
Posted

Hi,

Welcome to the board. :)

My migraines went away shortly after starting the diet. I was taking perscription pain meds daily for a year. Since the day I started the diet I havent taken any meds at all. :)

EmilyLMT Rookie
EmilyLMT
Posted

Hello Faithperson, first of all welcome to the site! This is a wonderful resource of information!

Second, I firmly believe that the gluten free diet will assist with your migraines and your iron depletion. Good luck and keep us posted on your status!

Thanks,

Emily

judy05 Apprentice
judy05
Posted
First of all, thank you thank you thank you to all who are involved with contributing to this message board. I'm recently diagnosed with celiac disease (blood work and upper endoscomy biopsy confirmed) and very much looking forward to healing up and getting better. I was, among other things, a cyclist, karate practitioner, and a generally overall highly active person, and over the past seven years have became weaker and weaker, sicker and sicker, my iron stores depleted and tensions headaches after working out morphed into migraines nearly half the days out of every month. Finally, thanks to the nurse practitioner intent on figuring out what was wrong with me, I have clear answer. Now comes the interesting part, living gluten free. I am hopeful the migraines will get better; the neurologist thinks it's possible. Any testimonials out there?

I am so glad to finally figure out what the problem is.

ae

Hi Faithperson,

Welcome to the board. I also suffered from migraines for many years, haven't had one in over a year. Sometimes I think one is going to start and then it doesn't. I've been gluten-free for 2 years and CF for a year and a half. My Dr. thought they stopped because I went through menopause, but I think it was the gluten. My Dr told me that I could eat gluten because I don't have the gene. All I have to remember is how I suffered with migraines and the urge to eat gluten goes away real fast.I hope you will have the same luck, let us know, we love success stories, it reaffirms what we know to be true.

julie5914 Contributor
julie5914
Posted

Hi and Welcome - glad you found out what was wrong!

My migraines are less and less, and you have half the battle won by knowing that it is both tension and celiac. (or tension caused by celiac - my muscles are so messed up!)

I'm 7 months out, and I have to do yoga and get massages sometimes to keep my shoulders and neck from tensing up so much that I get a migraine. That, along with a gluten free diet has gotten them down to once a month or less. I also take magnesium and calcium at night and my one-a-day for women (extra iron) in the morning. Since being on the diet, I am still short in energy, but my iron stores have increased dramatically.

Firegirl43 Contributor
Firegirl43
Posted

I still get them but slowly they tell me it will get better

floridanative Community Regular
floridanative
Posted

I was intrigued by this title. My husband's ex-boss had to go on disibility due to severe migraines after missing so much work for two years. The last time we saw him (Dec. 2004) he kept his leather jacket on inside the house but I knew he was as thin as a rail even with his thick jacket on. To find out what was bringing on the migraines the doctor made him eat nothing but oatmeal and he felt better. The latest evidence suggest that some oatmeals do not have cross contamination issues as you know. There may have been some severe depression going on as well. Does anyone know if someone could have only migraines and depression and possibly have Celiac? We're pretty sure this guy was never tested for it but if there's any chance I could help him I'd like to mention it to him. My husband thinks it can't hurt.

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psawyer Proficient
psawyer
Posted

I used to get migraines occasionally. Certainly not daily, maybe more like once a month. I have not had one since going on the diet over five years ago. With all the other changes, I did not realize for some time that they had stopped.

fritzicurls Rookie
fritzicurls
Posted

Migraines can be caused by magnesium deficiency. Take 200 mg of a good magnesium every hour until the migraine goes away. Should be no surprise since celiac can't absorb. Lots of celiac symptoms overlap with magnesium deficiency symtpoms.

fritzicurls

jknnej Collaborator
jknnej
Posted

I get migraines and unfortunately going gluten-free hasn't helped. I take Relpax, though, and it works.

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    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Headaches / Migraines and Hypoglycaemia

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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      Body dysmorphia experience

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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