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Dx - Oh What A Feeling...

penguin

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penguin Community Regular
penguin
Posted

(I apologize for the Lionel Richie reference)

:lol:

I never thought I would be happy about being diagnosed with a genetic autoimmune disorder :D ...

I just came back from the Dr. and based on the blood tests, and the fact that I already feel better after only a few weeks, she's given me the official Celiac diagnosis!

I'm not just a hippie hypochondriac!!! :lol:

When I told her about the Great Kettle Potato Chip Fiasco of last week, I think she thought "yep", that and I told her I vaguely remember my phantom GI doc saying my stomach lining was inflamed when he did the endo a couple years ago. I was drugged, so who knows. And the fact that the nexium didn't do a damn thing.

And that everytime a Dr told me to add more fiber to my diet to relieve the D and so I would regulate, whole wheat everything made it worse.

Wahoo! I have a follow up for blood tests in 6 mos to see if my platelets go down and my red blood cells get a little bigger (I'm on and off anemic, and my RBC's are smaller than normal)

You know what that means? I DON'T HAVE TO GO TO THE DR FOR 6 MOS UNLESS I'M SICK!!! My blood can stay in my body!!!

I <3 my Dr and her common sense approach.

I'm know going to come down from this high eventually and crumble into a pile of depression when I realize what this means...Oh well, screw it! :P

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i canary Rookie
i canary
Posted
I never thought I would be happy about being diagnosed with a genetic autoimmune disorder :D ...

I just came back from the Dr. and based on the blood tests, and the fact that I already feel better after only a few weeks, she's given me the official Celiac diagnosis!

I'm not just a hippie hypochondriac!!! :lol:

Congratulations just doesn't seem to be appropriate. :)

Welcome to my world seems a tab sarcastic. :P

How about – glad you have been validated by having a professional confirm what you already knew. That doesn’t quite get it either does it. Oh well, my heart is in the right even if my words are quite right. :wub:

Canary

p.s. I thought of another way to express myself. Congrats on getting off the hypochondriac list. :rolleyes:

penguin Community Regular
penguin
Posted
  • Author
Congratulations just doesn't seem to be appropriate. :)

Welcome to my world seems a tab sarcastic. :P

How about – glad you have been validated by having a professional confirm what you already knew. That doesn’t quite get it either does it. Oh well, my heart is in the right even if my words are quite right. :wub:

Canary

p.s. I thought of another way to express myself. Congrats on getting off the hypochondriac list. :rolleyes:

Sounds kind of like a Shoebox greeting card, doesn't it?

I'm going to start a line of greeting cards for things you don't really know how to respond to, like that

Other examples would be:

"Congratulations on your divorce being finalized, feel free to frequent strip clubs without guilt!"

"Eat sh*t and die, cause I never liked you anyway"

Sorry, it's just the kind of mood I'm in :lol::P

jerseyangel Proficient
jerseyangel
Posted

HaHa--Its always a bit akward to say congrats. in this situation! But it is such a good feeling to finally know what the heck is wrong, I know. Welcome to the wacky world of Celiac--you have a fantastic attitude and you're gonna do fine :) Now, go back to your happy dance :lol:

Guest Robbin
Guest Robbin
Posted

ChelsE--YES! I agree with icanary--hard to express the right emotion, but congratulations on peace of mind, congratulations on having some validation, congratulations on having a dx that you can deal with and move on from the constant state of self-doubt, illness, and frustration. Yes, and welcome to our world it isn't so bad--could be much, much worse! B)

Rusla Enthusiast
Rusla
Posted

Congratulations, now you can continue the road to relatively better health.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

It does sound like a shoebox greeting! So . . . .Congratulations on your new autoimmune diagnosis! I'm sure you'll have many happy(?) years with it! :P . . .Lynne

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jerseyangel Proficient
jerseyangel
Posted

"Hope you have many happy years with it...." how funny, Lynne! Kind of says it all, dosen't it :D

Guest nini
Guest nini
Posted

Welcome to the world of the "silly yaks!"

hez Enthusiast
hez
Posted

I am starting to think we share more than the celica gene :P It is somewhat of a comfort to know what is wrong.

Hez

tiredofdoctors Enthusiast
tiredofdoctors
Posted

ChelsE -- I think the greeting card thing is a good idea! I had a friend, when her divorce was final, they threw her a big party -- they got a wedding cake, then the bride and groom topper, cut the head off the groom, and laid it at the bride's feet!!!!! :lol: I think there's a place in the world for things like that -- and cards to go with them!!!!! :lol::lol: Lynne

Guest Robbin
Guest Robbin
Posted
ChelsE -- I think the greeting card thing is a good idea! I had a friend, when her divorce was final, they threw her a big party -- they got a wedding cake, then the bride and groom topper, cut the head off the groom, and laid it at the bride's feet!!!!! :lol: I think there's a place in the world for things like that -- and cards to go with them!!!!! :lol::lol: Lynne

OMG!!!That is so hilarious I am cracking up. Every year I have a little celebration on my "divorce from ex" date. I think there are some funny goofy occasion cards at one of the mall-type stores. Mark this on your calendar ChelsE and have an anniversary occasion as the day you were off the dr. merry-go-round. :)

tiredofdoctors Enthusiast
tiredofdoctors
Posted

That's IT!!!!! Cheers to ChelsE!! I'm raising my glass to you as we speak!!!!! :P . . . Lynne

slpinsd Contributor
slpinsd
Posted

Congrats, Chelsea! I'm waiting for the same thing. I was practically doing flips when I found that I do have double copies of the gene. I had increased platelets too- what does this mean?

Rusla Enthusiast
Rusla
Posted

When my friend got divorced we had a party, made a cake shaped like a boot. I decorated with "She gave him the Boot." Written on in, it was a "Boot Party."

penguin Community Regular
penguin
Posted
  • Author
Congrats, Chelsea! I'm waiting for the same thing. I was practically doing flips when I found that I do have double copies of the gene. I had increased platelets too- what does this mean?

My dr wasn't too concerned about it, since it wasn't extremely elevated. She said that we could spend all kinds of time and money looking for an obscure genetic thing or whatever it might be, or we could leave it be since it's not bothering me. Here's a website that references a high platelet count to autoimmune disorders:

Open Original Shared Link

She said she'll be interested to see if being gluten-free doesn't get them back down, and make my RBC's a bit bigger, too. I had a dr once tell me that the small RBC's were because of a genetic condition that afflicts people of mediterranian and middle eastern descent. Considering I'm about two skin shades from albino and that I'm mostly Irish and Swedish, I seriously doubt it. Then again, this was the same doctor that tried to diagnose me as bulemic because I was in college and throwing up a lot. Oh no, it couldn't be because I'm sick :rolleyes:

The article I listed there explains small RBC's as a lack of iron or bleeding.

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