Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Geographic Tongue


Moongirl

Recommended Posts

Moongirl Community Regular

I have had this for as long as i can remember, well i had it but had no idea what it was, my tongue would react to walnuts, pineapples, kiwis, and some other acidic things....

but just recently i did some research and realized it was GT.....i wonder if this is related to celiac disease?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I will get geographic tongue once in a while. I've noticed that I get geographic tongue when I have a lot of citrus.

AmandaD Community Regular

I get GT when I have citrus and 2 days before my period every month.

In my Celiac Sprue Association packet I was stunned to read it's a symptom of celiac. However, my mom has GT and does not have Celiac Disease. So, who knows.

I will get geographic tongue once in a while. I've noticed that I get geographic tongue when I have a lot of citrus.
Rachel--24 Collaborator

I had geographic tongue for awhile but I just looked in the mirror and its gone. :huh: Maybe cuz I've been good on the diet? My mom has geographic tongue too...she's never been tested.

popoki321 Rookie

I get this too.

I always get it when I eat pineapple but only sometimes with other citrus. When I was eating nuts I know that walnuts bothered me too! How interesting to learn it's a symptom of Celiac.

Moongirl Community Regular

Is there anything to do to make it feel better or go away faster, ive read a lot of info on it, and it seems that people do all kinds of different things, one thing i noticed is that most people had a B-12 deficency. I think right before i was Dx my level was a 485 (which falls in the normal range, more on the lower end though). So i am completely lost with this GT thing. :blink:

skinnyminny Enthusiast

I actually have the same thing and I notice it appears about a week before my period also, I eat lots of fruit so maybe the acid does it I am on a very strict gluten free diet so I dont think gluten is the cause I have been gluten free for 5 years, but if ya'll figure out what causes it I would LOVE to know!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tiredofdoctors Enthusiast

My son's pediatrician (a bazillion years ago) told me that GT was due to allergic rhinitis, and that the pH of the mouth changes because of the post-nasal drip. Don't know if it was true or not, the guy was a jerk . . .. :lol: . . . Lynne

Mango04 Enthusiast

I get this too. I was going to post a thread asking about it. So far I notice that tomatoes, citrus and foods with yeast trigger it for me. I ate some celery earlier today and that for some reason made it feel much better. Propolis losenges make it feel better as well.

Moongirl Community Regular
My son's pediatrician (a bazillion years ago) told me that GT was due to allergic rhinitis, and that the pH of the mouth changes because of the post-nasal drip. Don't know if it was true or not, the guy was a jerk . . .. :lol: . . . Lynne

As much as a jerk he was he might have been onto something, b/c my tongue really started acting up like a day before i got a full blown cold, post nasal drip was my first symptom. ;)

Mango04 Enthusiast
As much as a jerk he was he might have been onto something, b/c my tongue really started acting up like a day before i got a full blown cold, post nasal drip was my first symptom. ;)

That's when mine started too. It started last October when I had a really nasty cold, and now it seems to be triggered randomly by certain foods.

2Boys4Me Enthusiast

What is geographic tongue?

kabowman Explorer

I have had a geographic tongue my whole life - my mom asked the doc and he said that's what it is...nothing more, nothing less and I have never noticed any specific changes other than the appearance changes but nothing I can pinpoint to. However, since I have had it since birth, now almost 40, I don't really pay attention to it. I have horrible allergies and have had stomach problems since my teens.

My GT looks like fuzzy white-ish patches/large splotches covering a large portion of my tongue with other areas that look more normal. It doesn't do anything or taste anything or feel anything...more of a look. One of my two kids inherited - strangly, the one with the worst allergies.

Mango04 Enthusiast

If I can actually feel it when I get it do you think it's something else? It doesn't hurt - it just feels kinda icky - for lack of a better explanation. I always know when it's there even before I look in the mirror.

Moongirl Community Regular
If I can actually feel it when I get it do you think it's something else? It doesn't hurt - it just feels kinda icky - for lack of a better explanation. I always know when it's there even before I look in the mirror.

Could it be, maybe, but mine acts like yours, it kinda feels like when u burn ur tounge u get that weird texture or feeling, but it doesnt hurt. I know i have it too before i look in the mirror....strange thing this is...Triggered mostly to foods, i just thought about how much i love sour patch kids and when i was younger ate them all the time, and i used to get the biggest patches on my tongue..but it didnt bother me. they are just there.

  • 2 years later...
Ms. Skinny Chic Explorer

I have geographic tongue too and pernicious anemia

  • 6 months later...
kschauer Rookie

It seems I have it too.

WHAT NEXT :angry:

nasalady Contributor

I've had geographic tongue as long as I can remember....definitely since I was a small child.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.