Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Has This Board Been Here?

nikki-uk

By nikki-uk
in Coping with Celiac Disease

Recommended Posts

nikki-uk Enthusiast
nikki-uk
Posted

I just wondered how many years this board has been up and running-I see now that there are over 7000 members(!).

Are there any members who have been around from the start-how popular was it in the beginning,and most importantly how on earth did you manage before? :unsure:

The internet's a great thing,stops you feeling isolated and in turn helps us all 'cope' with the inconvenience of a gluten free diet,and of course is a great source of information for us to share with one another.

one things for sure,-I hadn't even heard of coeliac disease before hubbies dx 18 months ago.Now-well I know alot ,and am still learning!! :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Rachel--24 Collaborator
Rachel--24
Posted

I think I remeber seeing that Tarnalberry is member #1 or maybe it was member #2. I dont remember exactly but she must have been here since day one.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

jerseyangel Proficient
jerseyangel
Posted

Nikki--Great questions! I've been wondering the same things. I have never been a member of a forum before--I only accidently stumbled onto this one while doing a Google search. It was a couple months after my diagnosis, and I was pretty lost in terms of what to expect, what to eat and just about everything, really. It was a lucky day for me, though. For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

Rachel--24 Collaborator
Rachel--24
Posted
The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

angel-jd1 Community Regular
angel-jd1
Posted

Open Original Shared Link

That is the link to the old board. I was on the old board for quite a while also before Scott moved us over to this new updated one. Lots of good info.

-Jessica :rolleyes:

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks, Jessica!

angel-jd1 Community Regular
angel-jd1
Posted

You're welcome :)

-Jessica :rolleyes:

Thanks, Jessica!
ianm Apprentice
ianm
Posted
For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

That is pretty typical. I belong to some other forums and you get a few hardcore users and the rest stay on the sidelines.

I never would have made it without this forum.

jerseyangel Proficient
jerseyangel
Posted
I never would have made it without this forum.

Nope--me either, I'm convinced of it.

Rachel--24 Collaborator
Rachel--24
Posted

Yeah...its the same with all the forums I've been on. Actually I see more participation on here than any of the other forums I've joined but yeah most people are just "lurking" and never post.

jerseyangel Proficient
jerseyangel
Posted

I guess I never would have expected the comradery we all seem to have here--such a good feeling to know my cyber friends are out there :D

VydorScope Proficient
VydorScope
Posted

Its likely that most of that 7000 never come here anymore. Its fairly typical for ppl to sign up, hang out for a short bit then fade away. Some boards actively trim thier user lists to keep the numbers realistic, but Scott does not appear to, nor does he appear to do anything about the artificaly inflated online user count (most of that number is spiders/bots/etc). Dont blame him, its alot of extra work, and realy does nothing meaningful. :)

paw Apprentice
paw
Posted

I am still learning so I don't have all kinds of gread advice to offer -- at least not yet. I do post questions sometimes. I would not want to say some food or product is ok and have someone get sick because I am just learning.

:)

jerseyangel Proficient
jerseyangel
Posted

Thanks Vincent--I'm learning something new every day :)

tarnalberry Community Regular
tarnalberry
Posted
Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

Yep. I had been signed up on the old format board for ... a year, maybe just half a year? Something like that. Then signed up promptly when Scott moved to the new format, which I think was first thing in 2004.

  • 1 month later...
flagbabyds Collaborator
flagbabyds
Posted

I was on the old board since the beginning, I would really only post in the teen section, because the old board was really hard to navigate about, but when the new board came up, it took me a couple tries to get it right,but it is soooo much better.

plantime Contributor
plantime
Posted

I don't know how long it has been here. I found it before I was diagnosed, and I don't think I would have been able to manage without it.

flagbabyds Collaborator
flagbabyds
Posted

It's an awesome resource for newly diagnosed, I just like reading people's posts, and responding, and then making radom posts here and there when I have quick questions. The size has really jumped since Scott made the new format, it is much easier to navigate around:0

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748
    Megannnnn
    Newest Member
    Megannnnn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.