Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Has This Board Been Here?

nikki-uk

By nikki-uk
in Coping with Celiac Disease

Recommended Posts

nikki-uk Enthusiast
nikki-uk
Posted

I just wondered how many years this board has been up and running-I see now that there are over 7000 members(!).

Are there any members who have been around from the start-how popular was it in the beginning,and most importantly how on earth did you manage before? :unsure:

The internet's a great thing,stops you feeling isolated and in turn helps us all 'cope' with the inconvenience of a gluten free diet,and of course is a great source of information for us to share with one another.

one things for sure,-I hadn't even heard of coeliac disease before hubbies dx 18 months ago.Now-well I know alot ,and am still learning!! :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Rachel--24 Collaborator
Rachel--24
Posted

I think I remeber seeing that Tarnalberry is member #1 or maybe it was member #2. I dont remember exactly but she must have been here since day one.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

jerseyangel Proficient
jerseyangel
Posted

Nikki--Great questions! I've been wondering the same things. I have never been a member of a forum before--I only accidently stumbled onto this one while doing a Google search. It was a couple months after my diagnosis, and I was pretty lost in terms of what to expect, what to eat and just about everything, really. It was a lucky day for me, though. For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

Rachel--24 Collaborator
Rachel--24
Posted
The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

angel-jd1 Community Regular
angel-jd1
Posted

Open Original Shared Link

That is the link to the old board. I was on the old board for quite a while also before Scott moved us over to this new updated one. Lots of good info.

-Jessica :rolleyes:

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks, Jessica!

angel-jd1 Community Regular
angel-jd1
Posted

You're welcome :)

-Jessica :rolleyes:

Thanks, Jessica!
ianm Apprentice
ianm
Posted
For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

That is pretty typical. I belong to some other forums and you get a few hardcore users and the rest stay on the sidelines.

I never would have made it without this forum.

jerseyangel Proficient
jerseyangel
Posted
I never would have made it without this forum.

Nope--me either, I'm convinced of it.

Rachel--24 Collaborator
Rachel--24
Posted

Yeah...its the same with all the forums I've been on. Actually I see more participation on here than any of the other forums I've joined but yeah most people are just "lurking" and never post.

jerseyangel Proficient
jerseyangel
Posted

I guess I never would have expected the comradery we all seem to have here--such a good feeling to know my cyber friends are out there :D

VydorScope Proficient
VydorScope
Posted

Its likely that most of that 7000 never come here anymore. Its fairly typical for ppl to sign up, hang out for a short bit then fade away. Some boards actively trim thier user lists to keep the numbers realistic, but Scott does not appear to, nor does he appear to do anything about the artificaly inflated online user count (most of that number is spiders/bots/etc). Dont blame him, its alot of extra work, and realy does nothing meaningful. :)

paw Apprentice
paw
Posted

I am still learning so I don't have all kinds of gread advice to offer -- at least not yet. I do post questions sometimes. I would not want to say some food or product is ok and have someone get sick because I am just learning.

:)

jerseyangel Proficient
jerseyangel
Posted

Thanks Vincent--I'm learning something new every day :)

tarnalberry Community Regular
tarnalberry
Posted
Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

Yep. I had been signed up on the old format board for ... a year, maybe just half a year? Something like that. Then signed up promptly when Scott moved to the new format, which I think was first thing in 2004.

  • 1 month later...
flagbabyds Collaborator
flagbabyds
Posted

I was on the old board since the beginning, I would really only post in the teen section, because the old board was really hard to navigate about, but when the new board came up, it took me a couple tries to get it right,but it is soooo much better.

plantime Contributor
plantime
Posted

I don't know how long it has been here. I found it before I was diagnosed, and I don't think I would have been able to manage without it.

flagbabyds Collaborator
flagbabyds
Posted

It's an awesome resource for newly diagnosed, I just like reading people's posts, and responding, and then making radom posts here and there when I have quick questions. The size has really jumped since Scott made the new format, it is much easier to navigate around:0

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which...
    2. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I had both the genetic genes for celiac. My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report. I also had polyps in 3 places throughout my large...
    3. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
    4. pweidema
      - pweidema commented on Scott Adams's article in Autumn 2025 Issue
      1

      The Unexpected Gluten Traps in International Snacks: What Not to Bring Back From Vacation

      Very informative. Thank you!
    5. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,332
    • Most Online (within 30 mins)
      7,748
    Roxy79
    Newest Member
    Roxy79
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...