Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Has This Board Been Here?

nikki-uk

By nikki-uk
in Coping with Celiac Disease

Recommended Posts

nikki-uk Enthusiast
nikki-uk
Posted

I just wondered how many years this board has been up and running-I see now that there are over 7000 members(!).

Are there any members who have been around from the start-how popular was it in the beginning,and most importantly how on earth did you manage before? :unsure:

The internet's a great thing,stops you feeling isolated and in turn helps us all 'cope' with the inconvenience of a gluten free diet,and of course is a great source of information for us to share with one another.

one things for sure,-I hadn't even heard of coeliac disease before hubbies dx 18 months ago.Now-well I know alot ,and am still learning!! :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Rachel--24 Collaborator
Rachel--24
Posted

I think I remeber seeing that Tarnalberry is member #1 or maybe it was member #2. I dont remember exactly but she must have been here since day one.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

jerseyangel Proficient
jerseyangel
Posted

Nikki--Great questions! I've been wondering the same things. I have never been a member of a forum before--I only accidently stumbled onto this one while doing a Google search. It was a couple months after my diagnosis, and I was pretty lost in terms of what to expect, what to eat and just about everything, really. It was a lucky day for me, though. For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

Rachel--24 Collaborator
Rachel--24
Posted
The board was here a long time but very different when I first joined. When it was changed to how it is today everyone had to re-sign up.

Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

angel-jd1 Community Regular
angel-jd1
Posted

Open Original Shared Link

That is the link to the old board. I was on the old board for quite a while also before Scott moved us over to this new updated one. Lots of good info.

-Jessica :rolleyes:

I joined three months after the creation of this board.

Before that there was an old board with an outdated layout, and it is still around--I can find the link if you want it--but it's no longer used, obviously.

I know Mariann (gf4life) was on the previous board, though I'm not sure how long. There are undoubtedly others.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks, Jessica!

angel-jd1 Community Regular
angel-jd1
Posted

You're welcome :)

-Jessica :rolleyes:

Thanks, Jessica!
ianm Apprentice
ianm
Posted
For all the computer 'veterans', is it typical for a group to have 7000+ members, and a much smaller number who regularly post? There must be a lot of people out there just reading.

That is pretty typical. I belong to some other forums and you get a few hardcore users and the rest stay on the sidelines.

I never would have made it without this forum.

jerseyangel Proficient
jerseyangel
Posted
I never would have made it without this forum.

Nope--me either, I'm convinced of it.

Rachel--24 Collaborator
Rachel--24
Posted

Yeah...its the same with all the forums I've been on. Actually I see more participation on here than any of the other forums I've joined but yeah most people are just "lurking" and never post.

jerseyangel Proficient
jerseyangel
Posted

I guess I never would have expected the comradery we all seem to have here--such a good feeling to know my cyber friends are out there :D

VydorScope Proficient
VydorScope
Posted

Its likely that most of that 7000 never come here anymore. Its fairly typical for ppl to sign up, hang out for a short bit then fade away. Some boards actively trim thier user lists to keep the numbers realistic, but Scott does not appear to, nor does he appear to do anything about the artificaly inflated online user count (most of that number is spiders/bots/etc). Dont blame him, its alot of extra work, and realy does nothing meaningful. :)

paw Apprentice
paw
Posted

I am still learning so I don't have all kinds of gread advice to offer -- at least not yet. I do post questions sometimes. I would not want to say some food or product is ok and have someone get sick because I am just learning.

:)

jerseyangel Proficient
jerseyangel
Posted

Thanks Vincent--I'm learning something new every day :)

tarnalberry Community Regular
tarnalberry
Posted
Ahh...so Tarnalberry may have just been the first to "re-sign" up....but not actually one of the first members?

Yep. I had been signed up on the old format board for ... a year, maybe just half a year? Something like that. Then signed up promptly when Scott moved to the new format, which I think was first thing in 2004.

  • 1 month later...
flagbabyds Collaborator
flagbabyds
Posted

I was on the old board since the beginning, I would really only post in the teen section, because the old board was really hard to navigate about, but when the new board came up, it took me a couple tries to get it right,but it is soooo much better.

plantime Contributor
plantime
Posted

I don't know how long it has been here. I found it before I was diagnosed, and I don't think I would have been able to manage without it.

flagbabyds Collaborator
flagbabyds
Posted

It's an awesome resource for newly diagnosed, I just like reading people's posts, and responding, and then making radom posts here and there when I have quick questions. The size has really jumped since Scott made the new format, it is much easier to navigate around:0

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.