Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

just found out i have gluten allergy

DJFL77I
 Share

Recommended Posts

DJFL77I Experienced
DJFL77I
Posted

I was recently diagnosed with Gastritis... and in the Biopsy they found Gluten allergy...  not sure if its celiac disease yet or just an allergy?  there's a difference right? going to Doc in a few days..

anyway, I woke up one morning on FEB 9'th... and started having upset stomach issues.. went to Gastro Dr.. sent me for a CT scan of my entire abdomen..... then this month finally had an Endoscopy.. Dr found mild Gastritis and the biopsy shows Gluten allergy.. I also have been feeling tension in front of my head and a bit dizzy / off balance feeling.. I believe that's also a symptom of Gluten Allergy?   

 I'm cutting gluten completely now...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

A biopsy is how celiac disease is diagnosed, rather than an allergy. It’s also possible they diagnosed you with gluten sensitivity, but you should find out for sure and let us know.

You may want to discuss your results with your doctor before going gluten-free to be sure that all the tests they want done are completed, as you could get false negative results if you go gluten-free too soon.

DJFL77I Experienced
DJFL77I
Posted
  • Author

ok

DJFL77I Experienced
DJFL77I
Posted
  • Author

she said "Gluten Allergy"...   

DJFL77I Experienced
DJFL77I
Posted
  • Author

Definition of Gluten Allergy - Gluten Intolerance

Gluten allergy is a widely used term referring to Gluten sensitivity (the inability to fully digest gluten). A few Gluten sensitive people test positive for the Celiac Disease biopsy, and so are called Celiacs (~0.5% of the population).

But most Gluten sensitive people return negative or inconclusive results from a Celiac biopsy test. A more appropriate term for these people is Non-Celiac Gluten Sensitive (NCGS)

Scott Adams Grand Master
Scott Adams
Posted

So a gluten allergy would not be diagnosed with a biopsy, but celiac disease can be. I would ask your doctor to send you your test results. 

DJFL77I Experienced
DJFL77I
Posted
  • Author

ok I'll wait and see... but i find it odd that they wouldn't have just said celiac disease rather than gluten allergy...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DJFL77I Experienced
DJFL77I
Posted
  • Author

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

cyclinglady Grand Master
cyclinglady
Posted
16 minutes ago, DJFL77I said:

I also read that Celiac disease is hereditary, meaning that it runs in families....  But I've never had anyone in my family that has had it.

Celiac disease tends to cluster in families. Parents, siblings, or children (first-degree relatives) of people with celiac disease have between a 4 and 15 percent chance of developing the disorder. 

I am the first person who has been diagnosed with celiac disease.  Hereditary means that there are specific genes associated with celiac disease.  Many people have the genes, but only a few actually develop celiac disease.  Because researchers know about these genes, they have determined that only 20% of celiacs are actually diagnosed.  Like I know that I have family members who have it, but the thought of giving up bread is just to horrible for them to contemplate. 
 

Mayo Clinic recently came up with a much higher number than 4 to 14%.  They say it is 44%!  Know that some celiacs display no symptoms at all.  So you just never know.  
 

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/

 

DJFL77I Experienced
DJFL77I
Posted
  • Author

so got back from Dr...  confirmed celiac ..  because damage to the little things in Biopsy...   dr said they heal up in a few weeks when off gluten 100%... but I'd probably think a few months...

going to a referred Dietitian next week..

also said to start taking a men's multi vitamin...

taking bloodwork to see about vB12 and Iron...

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the club! 😉

For some people villi recovery can take up to two years, but as you know the important thing is that your diet is 100% gluten-free from now on, otherwise you will have setbacks and it could take longer.

 

DJFL77I Experienced
DJFL77I
Posted
  • Author

thanks you have a pretty crappy club

Scott Adams Grand Master
Scott Adams
Posted

Given some of the horror stories I've seen over the years, it's far better that you know about this and treat it than continue eating gluten and not know about it. Here are some things that will be helpful:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. StuartJ
      - StuartJ replied to The Logician's topic in Related Issues & Disorders
      28

      Gluten Sensitivity

      Well, three months later and a startling revelation! After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right? Big flare up withing hours and I was really wiped out with it. She rechecks the label on the sauce bottle and right at the bottom...
    2. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    3. Celiacpartner
      - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough!
    4. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    5. Rogol72
      - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      8

      Could this be a new intolerance

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,355
    • Most Online (within 30 mins)
      7,748
    Hungryforgluten
    Newest Member
    Hungryforgluten
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • StuartJ
      Gluten Sensitivity

      By StuartJ · Posted

      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      Could this be a new intolerance

      By Rogol72 · Posted

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
×
×
  • Create New...