Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

lrk2000


lrk2000

Recommended Posts

lrk2000 Newbie

Does anyone ever have tingling/heaviness in their arms due to this?  I have not been diagnosed, but for the past 5 or so years have had such frequent diarrhea that docs can't seem to explain, so I am looking at all options.  I will go pretty much as soon as I eat. Sometimes in the middle of a meal, or up to 30 minutes plus several times in between.  It's at least ten times a day.  I don't usually have pain associated with it.  Maybe if I have taken a lomotil or similar pain can occur. I am not losing any weight, which I guess is why the doctors don't seem to be too concerned.   Anyway, another symptom that is getting worse is a heavy feeling in my arms.  It's is a tingling that starts in one spot and migrates through my arms to where I just have to sit there for a minute and let it pass.  I cannot pick up my arms as they feel they weigh 1000 lbs during these episodes.  This will happen once a week or so just out of the blew.  I have not attributed that to eating anything.  I am on anxiety meds which I have been attributing the diarrhea to, but it is getting worse.  Also on small dose blood pressure meds.  No one seems to understand the heavy arm felling I experience so just searching for someone who can relate.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
(edited)

If you suspect celiac disease, ask for a simple blood test.  You may be able to do this on your own, depending on where you live.  You can not go by symptoms because there are over 200 for celiac disease and these often overlap with all kinds of other illnesses.    Learn more about the tests:

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

please get tested!  

 

Edited by cyclinglady
Scott Adams Grand Master

Definitely get a blood test if you can, and if you have gluten sensitivity or celiac disease it can manifest it’s symptoms in your gut, skin or brain/nervous system. Tingling is, among other possibilities, a symptom of gluten ataxia, which is caused when you are in the group where your nervous system is affected by gluten. More articles on this topic are here:

 https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/

Awol cast iron stomach Experienced

I had gi issues my whole life. I was not diagnosed properly for decades. I began to lose feeling in my big toes then I would lose feeling (numb) in my upper left arm. I could lift my arms though. 

It is frustrating some Dr s may only associate Celiac with weight loss. We don't all fit in that box. My cousin lost weight as a symptom. She had marsh grade damage. I swell , inflame, bloat, as a long misdiagnosed adult. I spent years taking probiotics before they became mainstream/retail ( through Dr only starting in my 20s) to try to manage whatever I had. I have more nerve and  skin issues in addition to my gi. My cousin and I were both missed far too long.

Is your Dr willing to give a celiac panel? Worth ruling in or out. 

 

Good luck

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,453
    • Most Online (within 30 mins)
      7,748

    NCalvo822
    Newest Member
    NCalvo822
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      Thank you ! Good to know I am not alone. I am currently on metformin and rybelsus for my diabetes. The last week or so my sugar has been so uncontrolled, more so than before. I am very frustrated and discouraged by all this. I have had days of 317 to a low of 64. I feel terrible. I am getting back on the gluten free wagon, just taking some time, and not seeing results and relief as fast as I had hoped. My stomach is just a mess, sometimes worse than others
    • Ginger38
      Thanks. I appreciate it 
    • maryannlove
      Thought was finished with this but a friend just sent email saying she takes Tirosin liquid levothyroxine which has no fillers (mentioned by Pgetha above).  Friend's doc sends script to one of Tirosin's direct-mail pharmacies.  Looking that up, government insurance (Medicare/Medicaid) doesn't cover (as Pgetha wrote above).  But if use one of their direct-mail places three month supply is $57/month.  Researching that, happened to learn Yaral also makes a generic gluten-free levothyroxine.  
    • knitty kitty
      Lysine is helpful for "cold sores" (oral herpes).
    • knitty kitty
      @Wheatwacked, Are you aware of the interaction of potassium iodide and losartan ?   https://www.drugs.com/drug-interactions/iodine-potassium-iodide-with-losartan-1368-0-1489-0.html#:~:text=Talk to your doctor before,to safely use both medications.
×
×
  • Create New...