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Funky Vision


NOBREAD4ME

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NOBREAD4ME Rookie

my quest to find a cure for my unknown illness, now dx as celiac disease, started with my weird vision problems.

Blurred vision, pressure, crusty feeling, focus difficulties. All sorts of other symptoms too but this is really a pain in the you know what.

Can anyone relate??


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chrissy Collaborator

my son is having these problems, but i haven't been able to get him to spend the money to get tested yet.

christine

Ursa Major Collaborator

Yes, I had those same kind of problems before going gluten (and many other things) free. It's much better now than it was. Somehow my vision has changed, though, and I'll have to get my eyes tested. I feel like my glasses aren't quite right any more (and I only got a new prescription 15 months ago).

casnco Enthusiast
my quest to find a cure for my unknown illness, now dx as celiac disease, started with my weird vision problems.

Blurred vision, pressure, crusty feeling, focus difficulties. All sorts of other symptoms too but this is really a pain in the you know what.

Can anyone relate??

nobread4me, I exeperience what the doctor called a visual migrane. That was the first sign I went to the doctor for before being diag. w/celiac. Now I know when I have been glutened because my visiion gets weird. My perscription changed also. My doctor is having a hard time understanding the changes. He is not familiar with Celiac and how it relates to vision. Oh, well. The good part is my sight is getting better. Good luck. Stay gluten free and hopefully your vision and other symptoms will go away.

Rachel--24 Collaborator

I had all those eye symptoms too. Sometimes it felt like I couldnt move my eyes...like they were stiff and dry. They hurt and for awhile I couldnt drive at night because of sensitivity to lights. I wore sunglasses all the time too. I had blurred vision periodically. They did tons of tests on my eyes but nothing came up and my vision was good. They did a catscan and an MRI and all they could tell me was I had dry eyes and to use drops. The drops intensified the pain. When I went off gluten my eye problems went away. I think my eyes were affected by both gluten and Graves Disease...so while both were occurring at the same time I had unbelievable eye pain like I wanted to die. When the Graves Disease was treated the eye problems were less severe but still there until I went on the diet.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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