Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need help with results, please


tropicalsoul

Recommended Posts

tropicalsoul Newbie

Hi everyone.  I just had a celiac panel done about a week ago.  I was eating 2-4 slices of bread or the equivalent every day for about 2 1/2 months.  I already know I'm gluten intolerant but my new endocrinologist wanted to test for celiac.  I have googled until my eyes fell out of my head looking for something that will help me interpret my results, and everything is either not what I'm looking for or so far over my head that I can't understand it.

Anyway, here are my results (from Quest Labs if that helps).  I'm worried sick about my high IgA (and there's precious little info about it that isn't technical), so I'm curious about that.  I'm also curious about the tTG IgG as it is barely in the range.

Can anyone shed some light on this?  It's Friday afternoon and my appointment isn't until next week.  I'm anxious and hoping someone can help.

Thanks!!

402435744_Celiacresults.webp.5f8097266f4903996e46a51791f58d98.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

cyclinglady Grand Master

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

tropicalsoul1018 Newbie
On 10/30/2020 at 10:11 PM, RMJ said:

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

Thank you! I feel a little more at ease about the IgA now.  

tropicalsoul1018 Newbie
21 hours ago, cyclinglady said:

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

I have Hashimoto’s disease (autoimmune thyroiditis) and other autoimmune issues. I have vitamin deficiencies if I don’t take supplements, and I’ve had IBS for years. 

At first, I only got stomach pain and diarrhea after eating gluten. Now I also get joint pain, palpitations, and sometimes other odd symptoms such as a foggy head. 
 

I am getting new health insurance soon so I will be able to afford to see a gastroenterologist as well as an allergist to see what’s going on. 
 

So many of my health conditions and symptoms point to celiac but I just don’t know any more. 
 

One thing I do know is that I need to be gluten free to feel well. 
 

Thank you for responding!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,662
    • Most Online (within 30 mins)
      7,748

    Carol smith
    Newest Member
    Carol smith
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.