Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need help with results, please


tropicalsoul

Recommended Posts

tropicalsoul Newbie

Hi everyone.  I just had a celiac panel done about a week ago.  I was eating 2-4 slices of bread or the equivalent every day for about 2 1/2 months.  I already know I'm gluten intolerant but my new endocrinologist wanted to test for celiac.  I have googled until my eyes fell out of my head looking for something that will help me interpret my results, and everything is either not what I'm looking for or so far over my head that I can't understand it.

Anyway, here are my results (from Quest Labs if that helps).  I'm worried sick about my high IgA (and there's precious little info about it that isn't technical), so I'm curious about that.  I'm also curious about the tTG IgG as it is barely in the range.

Can anyone shed some light on this?  It's Friday afternoon and my appointment isn't until next week.  I'm anxious and hoping someone can help.

Thanks!!

402435744_Celiacresults.webp.5f8097266f4903996e46a51791f58d98.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

cyclinglady Grand Master

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

tropicalsoul1018 Newbie
On 10/30/2020 at 10:11 PM, RMJ said:

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

Thank you! I feel a little more at ease about the IgA now.  

tropicalsoul1018 Newbie
21 hours ago, cyclinglady said:

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

I have Hashimoto’s disease (autoimmune thyroiditis) and other autoimmune issues. I have vitamin deficiencies if I don’t take supplements, and I’ve had IBS for years. 

At first, I only got stomach pain and diarrhea after eating gluten. Now I also get joint pain, palpitations, and sometimes other odd symptoms such as a foggy head. 
 

I am getting new health insurance soon so I will be able to afford to see a gastroenterologist as well as an allergist to see what’s going on. 
 

So many of my health conditions and symptoms point to celiac but I just don’t know any more. 
 

One thing I do know is that I need to be gluten free to feel well. 
 

Thank you for responding!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.