Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need help with results, please


tropicalsoul

Recommended Posts

tropicalsoul Newbie

Hi everyone.  I just had a celiac panel done about a week ago.  I was eating 2-4 slices of bread or the equivalent every day for about 2 1/2 months.  I already know I'm gluten intolerant but my new endocrinologist wanted to test for celiac.  I have googled until my eyes fell out of my head looking for something that will help me interpret my results, and everything is either not what I'm looking for or so far over my head that I can't understand it.

Anyway, here are my results (from Quest Labs if that helps).  I'm worried sick about my high IgA (and there's precious little info about it that isn't technical), so I'm curious about that.  I'm also curious about the tTG IgG as it is barely in the range.

Can anyone shed some light on this?  It's Friday afternoon and my appointment isn't until next week.  I'm anxious and hoping someone can help.

Thanks!!

402435744_Celiacresults.webp.5f8097266f4903996e46a51791f58d98.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

cyclinglady Grand Master

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

tropicalsoul1018 Newbie
On 10/30/2020 at 10:11 PM, RMJ said:

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

Thank you! I feel a little more at ease about the IgA now.  

tropicalsoul1018 Newbie
21 hours ago, cyclinglady said:

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

I have Hashimoto’s disease (autoimmune thyroiditis) and other autoimmune issues. I have vitamin deficiencies if I don’t take supplements, and I’ve had IBS for years. 

At first, I only got stomach pain and diarrhea after eating gluten. Now I also get joint pain, palpitations, and sometimes other odd symptoms such as a foggy head. 
 

I am getting new health insurance soon so I will be able to afford to see a gastroenterologist as well as an allergist to see what’s going on. 
 

So many of my health conditions and symptoms point to celiac but I just don’t know any more. 
 

One thing I do know is that I need to be gluten free to feel well. 
 

Thank you for responding!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      10

      Diagnosed Marsh stage 3C in January 2026

    2. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      10

      Diagnosed Marsh stage 3C in January 2026

    3. - Known1 replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
      21

      Lubriderm-gluten-free?

    4. - knitty kitty replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
      21

      Lubriderm-gluten-free?

    5. - Scott Adams replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications
      18

      What apps or tech tools help you manage celiac disease?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,423
    • Most Online (within 30 mins)
      7,748

    Jennie s
    Newest Member
    Jennie s
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      It looks like she has a couple of books that share "The Paleo Approach" in the title.  I ordered this one, as the other is a cookbook. The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body Thanks again for the info.
    • knitty kitty
      @Known1,  I understand you have had your B12, Folate B 9, and Vitamin D level checked.  However there are other B vitamins that are not routinely checked because blood tests for other B vitamins are terribly unreliable, expensive, or cumbersome to use frequently.  Results can take a long time to get back, delaying proper treatment and risking permanent damage.  It's easiest to supplement and look for health improvement. Blood tests can reflect how much of a certain vitamin was consumed in the past twenty-four to forty-eight hours.  Vitamins released by digestion is absorbed by villi, anemone like projections that increase the surface area of the small intestine, and then pass into the blood stream for distribution around the body.  A Marsh score of 3C indicates severe damage to the villi lining the small intestine.  Absorption of nutrients is definitely affected.   Blood tests don't reflect the amount of a vitamin  that is stored inside cells before being used.  You can have "normal" blood levels but have deficiency within cells of organs and tissues.  Tissues and organs will relinquish their stored vitamins into the blood stream in order to keep the brain and heart working while tissues and organs are depleted.   It's possible to have a localized deficiency of Thiamine B1 in different organs which cause the organ to malfunction.  Gastrointestinal Beriberi is caused by Thiamine deficiency in the gastrointestinal tract.  Gallbladder dysfunction, thyroid dysfunction, heart attack, and cognitive dysfunction can be caused by Thiamine deficiency.   Most of the B vitamins cannot be stored for very long, maybe six weeks. B12 can be stored for as long as a year in the liver.  So having "normal" B 12 levels does not mean all your other vitamins are "normal" as well.   Thiamine can be stored for eighteen days, however  Thiamine can be depleted within three days.  We have a greater metabolic demand for Thiamine when we're physically ill, emotionally stressed or are physically active (work out regularly) or work outdoors (or ride bikes).  Because most B vitamins can become low within a month or two under the best of circumstances, many newly diagnosed feel great on the gluten free diet at first.  After that, they seem to start going downhill.   The nutritional deficits start making themselves known.   Keep in mind that processed gluten free foods are not enriched nor fortified with vitamins and minerals to replace nutrients lost in processing like their gluten containing counterparts are.  You have to replace them yourself by taking supplements at least until the villi regrow and absorption improves. The eight B vitamins are water soluble.  They are easily lost if one has diarrhea or constipation or in those with a high Marsh score.  Because they are water soluble, the body can easily excrete excess through the kidneys.  Recommended Daily Amounts are based on experiments done on humans to find the minimum dose required to prevent disease.  Levels for optimal health are much higher.   Doctors are trained in medical learning institutions which are funded by pharmaceutical companies.  Requirements for nutritional education have been reduced to twenty class hours over the course of the seven years of medical school.   Three-day weekend seminars earn ten hours.  Vitamins cannot be patented as they are natural substances, so there is more profit for doctors to prescribe pharmaceuticals.  They are taught to cover symptoms with pharmaceutical bandaids.  They may not look for what caused symptoms to appear in the first place.   Doctors are taught nutritional deficiencies don't occur except in impoverished or drought stricken countries.  This is not accurate.  Nutritional deficiencies can occur if you eat a High Carbohydrate Diet, eat the Standard American Diet, and if you have malabsorption problems as occur with Celiac Disease.   You can check out my blog for the challenges I faced due to vitamin deficiencies that went unrecognized by doctors.   Talk to your doctor and new dietician about supplementing with vitamins, minerals and essential nutrients while your villi are healing.  My favorite Celiac book is The Paleo Approach by Dr. Sarah Ballantyne.  She explains the AutoImmune Protocol Diet.  It has been shown to reduce inflammation and promote healing in the gastrointestinal tract. Best wishes!
    • Known1
      Thanks, I had already sent you a direct message regarding bananas.  Maybe just reply to that?
    • knitty kitty
      @Known1, I'm sure you can find a shelter or community service group that would appreciate your lotion donation.   I've replied to the topic of your bloodwork as it relates to vitamins in your "Introduce Yourself" post so as not to high jack this thread.   Thanks
    • Scott Adams
      The comments requested are very limited in scope, and I don't think this shotgun approach would be helpful, but that is just my 2 cents, for what it's worth.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.