Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need help with results, please


tropicalsoul

Recommended Posts

tropicalsoul Newbie

Hi everyone.  I just had a celiac panel done about a week ago.  I was eating 2-4 slices of bread or the equivalent every day for about 2 1/2 months.  I already know I'm gluten intolerant but my new endocrinologist wanted to test for celiac.  I have googled until my eyes fell out of my head looking for something that will help me interpret my results, and everything is either not what I'm looking for or so far over my head that I can't understand it.

Anyway, here are my results (from Quest Labs if that helps).  I'm worried sick about my high IgA (and there's precious little info about it that isn't technical), so I'm curious about that.  I'm also curious about the tTG IgG as it is barely in the range.

Can anyone shed some light on this?  It's Friday afternoon and my appointment isn't until next week.  I'm anxious and hoping someone can help.

Thanks!!

402435744_Celiacresults.webp.5f8097266f4903996e46a51791f58d98.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

cyclinglady Grand Master

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

tropicalsoul1018 Newbie
On 10/30/2020 at 10:11 PM, RMJ said:

Your celiac results are all negative.  The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.

Thank you! I feel a little more at ease about the IgA now.  

tropicalsoul1018 Newbie
21 hours ago, cyclinglady said:

Your results are negative, but know that some celiacs are seronegative.  If you have some of the risk factors for celiac disease (like a family member, another autoimmune disease (autoimmune thyroiditis or Type 1 diabetes) iron deficiency anemia,  etc.)  or you have Gi issues (it could be a FODMAP issue), consult a GI.  There must be a reason why you went gluten free.  You should find the root cause.  

 Your IgA  result would be normal if you used my lab.  In the case of celiac disease testing, it is just a control test.  If you did not make IgA, the celiac IgA type tests would not work.  

I have Hashimoto’s disease (autoimmune thyroiditis) and other autoimmune issues. I have vitamin deficiencies if I don’t take supplements, and I’ve had IBS for years. 

At first, I only got stomach pain and diarrhea after eating gluten. Now I also get joint pain, palpitations, and sometimes other odd symptoms such as a foggy head. 
 

I am getting new health insurance soon so I will be able to afford to see a gastroenterologist as well as an allergist to see what’s going on. 
 

So many of my health conditions and symptoms point to celiac but I just don’t know any more. 
 

One thing I do know is that I need to be gluten free to feel well. 
 

Thank you for responding!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,427
    • Most Online (within 30 mins)
      7,748

    Elizabetht
    Newest Member
    Elizabetht
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • catnapt
      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
    • catnapt
      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
    • Wheatwacked
      Click on the image to make it larger.  Maybe doesn't work on phone browser,  That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause.   Not trying to.  But much of your rant includes refeferences that may indicate multiple nutritional deficiencies.     Some countries also have tax incentives and financial aid for Celiacs.   Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it.  As far as your recovery, eat gluten free.  Get healthier now and worry about diagnosis later.  Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat  gluten.  That is what is important.  With gluten out of the way, maybe the doctors can make sense of your remaining symptoms.  If you need the ADA, then a medical diagnosis is the way to go.  Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care.  By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life.  Pick you battles carefully.  Assume the worst, celiac disease, and deal with it.  Denial is not just a river in Egypt. Pleased to meet you, too.  
    • catnapt
      I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..?   and some coffee?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.