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Pre diagnosis

Meggannn
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Meggannn Rookie
Meggannn
Posted

I’ve been having symptoms of boating, abdominal pain, acid reflux, anxiety and nausea for about two years. I’ve recently had a gastroscopy about a week and a half ago. How long does it take to get the results and will I receive them in the post? I’m hoping to get a diagnosis soon as feeling nauseous everyday is literally ruining my life :/

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trents Grand Master
trents
Posted
(edited)

"Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.

Edited by trents
Meggannn Rookie
Meggannn
Posted
  • Author
6 hours ago, trents said:

"Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.

Yes when I had a barium meal I received the results in the mail/post. Yes had upper gi (endoscopy) over a week ago, with biopsies taken.

thanks

trents Grand Master
trents
Posted

Mail/post? Do you mean the postal service via snail mail? What country are you in? They don't do that here in the USA. For me and many others in the USA, we can check test results via our medical provider's online tool. Each patient has an account that can be accessed online where we receive messages and test results and can even schedule appointments.

Meggannn Rookie
Meggannn
Posted
  • Author

Oh right I live in the UK so it’s abit different. We can get the results wrote to us in a letter. However wasn’t sure how long it would take as last time I waited nearly a month.

Scott Adams Grand Master
Scott Adams
Posted

If it has been that long I would contact them, as they should have the results by now. Did you get blood tests done for celiac disease? If so, please share your results. It would be unusual for a doctor to do only the biopsy for celiac disease, but not the blood tests. Also, in the UK it is my understanding that many cases of celiac disease are currently being diagnosed with only blood tests:

 

Meggannn Rookie
Meggannn
Posted
  • Author

Yes I had one blood test I think it was ttg and it was negative, but they said because my symptoms were strongly suggesting celiac they wanted to double check and also check for anything else aswell.

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Meggannn Rookie
Meggannn
Posted
  • Author
33 minutes ago, Scott Adams said:

If it has been that long I would contact them, as they should have the results by now. Did you get blood tests done for celiac disease? If so, please share your results. It would be unusual for a doctor to do only the biopsy for celiac disease, but not the blood tests. Also, in the UK it is my understanding that many cases of celiac disease are currently being diagnosed with only blood tests:

 

 

10 minutes ago, Meggannn said:

Yes I had one blood test I think it was ttg and it was negative, but they said because my symptoms were strongly suggesting celiac they wanted to double check and also check for anything else aswell.

also I have other autoimmune diseases and my gp has said this increases the chances. I will contact them Tomorrow and ask about the results.

thanks

Scott Adams Grand Master
Scott Adams
Posted

If possible, please get the actual blood test results and share them here. This is because your results might be just under the cut off for celiac disease, but that certainly would not rule out gluten sensitivity, for which they currently cannot screen. Many with gluten sensitivity have elevated antibody tests, yet doctors tell them "good news, you're not a celiac and can keep eating gluten." But often it turns out they should not be eating gluten.

Meggannn Rookie
Meggannn
Posted
  • Author
10 minutes ago, Scott Adams said:

If possible, please get the actual blood test results and share them here. This is because your results might be just under the cut off for celiac disease, but that certainly would not rule out gluten sensitivity, for which they currently cannot screen. Many with gluten sensitivity have elevated antibody tests, yet doctors tell them "good news, you're not a celiac and can keep eating gluten." But often it turns out they should not be eating gluten.

Oh right thanks I didn’t know that. On letter they only put negative so no actual results visible. I will ask them and find out results of biopsy tomorrow

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      @lizzie42, So, I'm confused with what you are uncertain about. Do you really have any doubt that your 5 year-old son has celiac disease? Is it because he isn't exhibiting anemia and the rash as did your daughter? The genes are certainly there and the antibody testing certainly indicates celiac. And given the fact that he was on a reduced gluten diet and on a steroidal medication (which would likely suppress immune responses) do you really have any doubt? If you can't afford the GI consult with endoscopy/biopsy, why would you consider a gluten challenge after removing the remainder of the gluten from his diet? Have you considered that his asthma and "sickness" may be tied to celiac disease?
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