Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused on diagnosis method


Ram

Recommended Posts

Ram Rookie

I've had a rash and stomach problems since I was a child and never properly diagnosed. I recently saw an allergist who confirmed that this is dermatitis herpetiformis and referred me to a gastroenterologist and a dermatologist. My blood work came out negative. The gastroenterologist is positive that is is Celiac disease and wants to do an endoscopy. The dermatologist agrees but wants to to a skin biopsy. Is it necessary to do both since I read that the skin biopsy should be enough? My gastro says the endoscopy is important because by blood work is negative and it has to be positive to confirm celiac along with a skin biopsy. I am honestly worried with covid19 and the invasive nature of the endoscopy. "Image of my heavily scratched rash attached." Thanks!

WhatsApp Image 2020-11-02 at 6.53.41 AM.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

I've had several endoscopies performed over the years and they are a quick and easy procedure. Doesn't require bowel prep, just no food after midnight the day before. Out patient procedure, conscious or light sedation and very minimal risk. Not painful or unpleasant at all. I understand your concern about COVID but personally, I think the peace of mind from the information it would provide would be worth the risk. And with the sanitation the procedure room staff take, you are probably more protected from COVID in the medical setting than on the outside. And the And if you go gluten-free before having an endoscopy you would have to start eating gluten again if you ever did decide to have it done.

Edited by trents
Scott Adams Grand Master

Perhaps get the skin biopsy first and see what the results are, then consider doing the endoscope if there are still questions? Both tests are not a big deal.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,704
    • Most Online (within 30 mins)
      7,748

    Pam Steinke
    Newest Member
    Pam Steinke
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jenny (AZ via TX)
      Can anyone recommend a gluten-free stool softener?  I’m having surgery soon and the surgeon recommended taking a stool softener with pain meds after surgery. I have had celiac for about 17 years but no need for stool softener until now and when looking for one am getting mixed results as to what is gluten free. From what I’ve found, it looks like Colace clear gel may be gluten-free but still unsure. I have found that MiraLAX is gluten-free but is a laxative, not a stool softener. Thanks so much!
    • Scott Adams
      If possible find quinoa with a gluten-free label--when grown in Peru or Ecuador it is far less likely to have wheat contamination. Canada increasingly is producing more quinoa, and when grown there it the likelihood of wheat contamination is higher.
    • knitty kitty
      Welcome to the forum, @Grahamsnaturalworld What exactly do you include in your diet?  Do you keep a food journal to track symptoms? Have you tried an elimination diet like the Autoimmune Protocol Diet?  It's very strict, but I found it excellent for reducing inflammation, calming the immune system, and promoting healing in the gastrointestinal tract.   The AIP diet was developed by a doctor who is a Celiac herself, Dr. Sarah Ballantyne, who wrote The Paleo Approach.   Have you been checked for nutritional deficiencies?  Sometimes vitamin deficiencies can manifest as gastrointestinal problems.  Which symptoms do you have currently that make you think your refractory?  How long have you been on a gluten free diet?  When were you diagnosed?  
    • Scott Adams
      I think @trents may be correct here, and you've caught celiac disease in its early stages. A gluten-free diet might be the safest approach.
    • trents
      Welcome to the forum, @Garlic! This kind of question is always a gray area and the answer must be nuanced. Ideally, every celiac should stay away from any potential source of gluten, however small. But we don't live in an ideal world and sometimes it is appropriate to take risks as long as the risks aren't too large and the consequences not too drastic. Realize these companies work hard at covering their butts against possible litigation so they often err on the side of abundant caution to guard against this. And Costco is a very conscientious organization as well. In reality, cross contamination from shared equipment is usually not a significant threat except to those celiacs on the ultra sensitive end of the spectrum. Do you fit that category? Note, we are talking about cross contamination from using shared equipment, not other sources of CC such as happens in cultivation, transportation and storage. I mention that because some types of products are typically heavily cross contaminated in these other ways. A prime example is dried legumes.
×
×
  • Create New...