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Chris the Celiac

Intolerances Part 2

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I need help in trying to identify intolerances. Everything is very contradictive with my body right now. So far, I can't eat broccoli, it makes me dizzy, gives me vertigo, I can't walk right when I eat it. I thought salicylate intolerance but I can arugula just fine. Tomatoes give me vertigo, Pepsi gives me vertigo but Dr. Pepper is just fine. I can't eat any sort of fruit, they make me bloated and feel like I'm breathing in a fume or give me very bad reflux. I can't eat green beans, same thing as tomatoes just not as bad. I thought an amine intolerance but I can eat eggs and spinach just fine! I'm so very lost😂 I'm newly diagnosed/undiagnosed due to my last endoscopy. I still had a lot of damage and blunting. I'm very strict with GFD. From utensils to shampoo, is all gluten free. Any advice is helpful! 

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This may not make you feel any better, but as someone who is newly diagnosed you may have temporary intolerances that could go away after a few months, or sometimes longer (mine took ~1-2 years to go away). At my diagnosis I could not eat chicken eggs, tomatoes, cow's milk/casein or corn. After about a year I was able to add some back, and I think it took me longer with chicken eggs.

You may also have additional intolerances that won't go away, and it is important to identify them. There is not easy way to proceed, other than keeping a food diary and noting things that cause issues and eliminating them. Enzymes may also help you. You may be able to add items back once you've healed.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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Yeah, thats what I've heard. Its just rough trying to find out why I can't eat those foods. They don't fit any intolerance that I have researched like amines, sulphites, salicylate, or anything else bc I can eat spinach, arugula, and eggs just fine. Its just hard rn😂

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Hi Chris,

broccoli- is a brasssica family plant.  So you might try other brassicas and see if they cause problems.

Tomatoes- are a nightshade, so other nightshades could be an issue.  Potatoes, peppers, eggplant are nightshades too.   Black pepper is not a nightshade. 

Pepsi- not sure if it has phosphoric acid or not.  Phosphoric acid is in some sodas tho and is very rough on the stomach.

Dr. Pepper is just fine-  Same thing on the phosphoric acid?  Just something to be aware of and avoid for a year or so.  If Dr. Pepper is ok then comparing the 2 ingredient lists (Pepsi and Dr. Pepper) should give a clue.

fruit- fructose malabsorption is a possibility.  Too much sugar for the bad gut bacteria.

green beans- who wants to eat green beans anyway?

Scott had a good answer. 

Some Betaine HCL might help with digestion.  There are also digestive enzymes that may help some.

Remember "Any advice is helpful!" :)

 


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Thank you! I decided to stay away from all soda and think its just inflammation overflowing. Right on I'm staying away from the brassica family and nightshade. Its just very hard right now because I don't get sick when I gluten, but still have to avoid it. I have silent celiacs. The hard part is finding out if I've eaten gluten. Also, do any of you have/had problems with walmarts gluten-free items? I'm trying to base my foods off of other Celiac and how they felt eating certain gluten-free brands so I can wage on what should be safe!  

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If it has "gluten-free" on the label, no matter if it is at Walmart of Whole Foods, it is gluten-free and must test below 20 ppm or a very expensive food recall could be issued. Also, Barilla GF pasta is at Target and probably Walmart, which is excellent. Kraft just announced a new GF Mac n Cheese (ok, I know, not the most health choice!), as well as Nabisco's new GF Oreos (junk food of course, way too much sugar). But the point is, gluten-free is now fully mainstream, and you can find gluten-free foods everywhere now, including Walmart. One great and very healthy brand of breads, bagels, etc. is Little Northern Bakehouse, which I believe is at Walmart and/or Sam's Club. Costco and Trader Joe's both have tons of GF items, and Costco sells some outstanding multi-grain GF bread from Oregon in two loaf vacuum sealed packages that is very affordable, and 2 packs of frozen pizzas.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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This isn't fully true. I believe that the FDA does a minimal amount of random testing for compliance, and they also follow up on complaints filed by those who might report a gluten reaction to a food market "gluten-free." Canada seems to do a better job than the FDA though, and here is an article we did recently on that:

 


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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10 hours ago, GFinDC said:

Some Betaine HCL might help with digestion.  There are also digestive enzymes that may help some.

Remember "Any advice is helpful!" :)

GFinDC and Chris the Celiac,

To follow up on what GFinDC had to say about BetaineHCL and some information about how being Low in Stomach Acid can trigger food allergies.

Two links on how to take BetaineHCL w/Pepsin (for proteins)....

https://healthygut.com/articles/how-to-supplement-with-betaine-hcl-for-low-stomach-acid/

https://healthygut.com/articles/4-common-betaine-hcl-mistakes/

I find starting BetaineHCL w/Pepsin at around 4 capsules with a and a large glass of water works best for most people.

If it takes more than 6 capsules then....something is not working right for you....

Quoting from the healthy gut article...

“Dr. Wright reports that the common Betaine HCL dosage range in his clinical practice is 3,250-4,550mg per meal.” 

Note at 700 Mg capsules the amount he (Dr. Wright) notices an improvement in his patients is around 4 to 6 capsules of BetaineHCL w/Pespsin.

Low Stomach Acid either from PPI use or STRESS 6 months before you develop IBS/Hearturn etc....can trigger Low stomach acid...and finally a new food allergy...

Eva Untersmayr has done the most work on the subject.

Here is two reference works on the topic...

One entitled "The role of protein digestibility and antacids on food allergy outcomes"

https://pubmed.ncbi.nlm.nih.gov/18539189/

And the other entitled "The influence of gastric digestion on the development of food allergy"

https://pubmed.ncbi.nlm.nih.gov/28616101/

Note: This research is 10+ years old and this good quality research has not reached the medical/clinical level....

She correctly notes Stomach Acid works as a "Gate Keeper" to keep undigested proteins out of the Small Intestine...

She this nice figure she included in her research....

https://pubmed.ncbi.nlm.nih.gov/18539189/#&gid=article-figures&pid=fig-3-uid-2

From a pH of 2.0 to pH 5.0 she shows how a pH of 5.0 leaves the Protein UNdigested and thus harmful to the body/Small Intestine....

But a pH of 2.0 digest the protein into harmless peptides! (Pieces of protein segments)....

Because ALL viruses are protein coated RNA etc.... we confuse gluten proteins (and other food allergens) for VIRUSES in the Small Intestine leading to an Auto-Immune reaction to Food proteins.....entering the Small Intestine....where they are not wanted, needed or TOLERATED!

We must digest all proteins into harmless peptides/amino acids before they reach the Small Intestine or our body will confuse them for Viruses....attacking the person who is eating the offending food proteins going through undigested in those with Stomach Acid enough to allow this to happen!

I hope this is helpful but it is not medical advise.

Posterboy,

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On 12/1/2020 at 1:43 PM, DJFL77I said:

Nobody checks if there is gluten in food other than the manufacturer.. 

The Gluten Free Watchdog does gluten testing of foods and other products.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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you can order a blood test kit online to see what foods your sensitive  to

This at-home test measures your body’s immune response to 96 foods to help guide you on what types of food may be the best to choose for an elimination diet.

IgG Reactivity to 96 Foods

Finger prick sample collection

 

Each food will be rated on a Class scale of 0-3: Class 0 (normal reactivity) to Class 3 (high reactivity). A higher IgG reactivity level can mean that there’s a possibility that food can be giving you symptoms – making that food an ideal candidate to include in your list to initially remove in a temporary elimination diet and add-back challenge. This test is not a food allergy test, nor can it determine lactose intolerance or celiac disease.

everlywell.com

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I'll have to look into it! I also have realized I had not bought a new sponge, a new toothbrush, or clean too deeply in my house. The broccoli problem, I read the back of the bag to see if if It DID have gluten, and it said may contain wheat. Today I'm trying it, not the same bag but whole stalks I've bought from produce, and see how it goes! 

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