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tmcs

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tmcs Rookie

Hello! 

I have my first post-diagnosis GI appointment on Friday.  I was diagnosed with celiac disease via blood test, and DH.  

What tests do I request? What do I ask?  

I don't know enough to know what to ask.  

Thank you!


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Scott Adams Grand Master

At this point it would be a good idea to request a check of your blood vitamin/mineral levels, especially: "Specifically, for vitamin A, 7.5% of patients showed deficient levels, for vitamin B6 14.5%, folic acid 20%, and vitamin B12 19%. Likewise, 67% of celiac patients showed zinc deficiency, 46% showed decreased iron storage, and 32% had anaemia."

 

tmcs Rookie

Thank you so much!  I've started a list, and was so frustrated with my regular physician because he wouldn't order any of the tests.  I'm so thankful I found this website--so much gratitude for you!!🥰

DJFL77I Experienced

check thyroid function

Scott Adams Grand Master

Yes, it may also make sense to check your liver enzymes, as well as thyroid function, as celiac disease can cause issues with both.

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    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
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      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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