Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint disease and gluten intolerance.


Юлия

Recommended Posts

Юлия Newbie

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

  • Scott Adams changed the title to Joint disease and gluten intolerance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

I have arthritis. In fact, I just had a shoulder replaced. Mine seems to have nothing to do with Celiac. Mine is a result of the joints just wearing out. I am 76, so that is to be expected.

ekh Newbie

I had joint pain from the age of 6 until I was diagnosed with probable Celiac at age 40 (1978). Interesting that the joint pain and stomach problems went away after going off Gluten.  My diagnoses prior to the "probable Celiac" was either Lupus or Rheumatoid Arthritis.   The Dr.'s did not want me to go  back on gluten so Celiac could be confirmed through biopsies, I was that sick!

I am now almost 83 and some pain has returned but more because of age than ingesting gluten.  We live in a retirement community and, fortunately, the chefs are aware of the problems for many of us if we ingest gluten!   

Scott Adams Grand Master

Welcome to the forum @ekh, and it's great to hear that there are retirement communities that offer gluten-free meals. We ran an article back in 2016 which made the prospect of finding gluten-free food for those in full care facilities to be rather difficult:

 

GFinDC Veteran

Sometimes people who are intolerance to nightshades can have joint pain.  Nightshades we eat are potatoes, peppers, eggplant and tomatoes.  Cutting those out of your diet may help with pain in joints.  For me it took over a month for the joint pain to go away.  But it did, so goodbye potatoes!

ekh Newbie

Since my mother was  allergic to potatoes, I try not to eat anything in the nightshade family very often.  Many people with joint pain can clear that up by staying away from the nightshade family, so very happy that it worked for you!  I am quite allergic to soy and fortunately the chefs here help me avoid that, especially since I experienced a (scary for them) allergic reaction soon after we moved in!   In the past, when giving workshops on allergies/celiac and gluten problems I have asked people what is your favorite food that you will not/cannot live with out?  Remove that from your diet for a month and  then reintroduce it into your diet and ascertain what happens.  Interesting to hear people's responses!

By the way the pain I now experience is due to pinched nerves, I am avoiding surgery if at all possible!

 

   

wellman crazy cat lady Newbie

I had symptoms of celiac from the age of 18 months, but was never correctly diagnosed, poisoning myself with gluten for over 50 years. I figured it out at age 53, when a niece and a nephew were diagnosed. I went gluten free, and very quickly my GI symptoms cleared up completely. However, in my opinion, the damage to my joints, bone on bone arthritis at age 50, was caused by the undiagnosed/ untreated celiac. This is osteoarthritis, not rheumatoid, and there is no family history of anyone having severe arthritis at this young of an age. I have other problems, that I also suspect of being caused by the untreated celiac- a severe reflux, severe "sleep" apnea (my throat collapses when I am relaxed, not even asleep), two hernias and crappy lungs - all examples of lack of integrity of tissues in the body. There is no way to prove it, of course. But that is my suspicion. Oh, and from the age of 53 to now, 63, with my celiac treated,  I grew wisdom teeth up top. I never had more than tiny particles of calcium up top, and nothing on the bottom. Now I have full grown wisdom teeth. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Not sure about the apnea, lungs and hernias being linked to long term exposure to gluten but the other problems you mention are statistically linked to undiagnosed celiac disease. You and I were diagnosed at about the same age and looking back over my life there were some symptoms I experienced even as a child. But when I was about 37 yr. old there was laboratory evidence of celiac disease because of idiopathic elevation of liver enzymes. It took 13 more years to find out what caused that and the culprit was celiac disease. It is a shame that there is not more awareness in the medical community about celiac disease and it takes so long for many to get it diagnosed. It's better than it used to be but not that much.

GodsGal Community Regular
On 5/13/2021 at 2:03 PM, Юлия said:

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

I have not been diagnosed with it myself, but I do have a friend that was diagnosed with rheumatoid arthritis related to gluten intolerance.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.