Still feeling symptoms

[BrianG]

Hello,

I have been gluten free since 3/31/21.  My levels have improved, aside from a slight iron deficiency.  I still feel foggy and tired most of the time though. Is it possible that this is still from lingering damage due to gluten in my body?  How long can it take for a person to feel normal.. I recognize that the way I feel could be from general stress but I'm not sure how to know.  Has anyone else experienced something like this? Has it taken a very very long time to feel fully better for anyone? 

Thanks

[Scott Adams]

So if you have celiac disease and only recently went gluten-free the lingering symptom can be caused by the prolonged nutrient deficiencies that you've likely experienced, and it can take months to years to fully recover (we ran an article years ago on a study that found that the average time to recovery was 2 years).

This article might be helpful:

 

[BrianG]

Thank you. So I may still feel tired from celiacs for a very long time then, even though my blood levels have improved? My anemia, b12, and folic acid all improved to normal levels. 

[GodsGal]

Yes. Healing is a long process. Good job with the blood vitamin levels!Hang in there, my friend!

[MADMOM]

On 5/21/2021 at 11:34 AM, BrianG said:

Hello,

I have been gluten free since 3/31/21.  My levels have improved, aside from a slight iron deficiency.  I still feel foggy and tired most of the time though. Is it possible that this is still from lingering damage due to gluten in my body?  How long can it take for a person to feel normal.. I recognize that the way I feel could be from general stress but I'm not sure how to know.  Has anyone else experienced something like this? Has it taken a very very long time to feel fully better for anyone? 

Thanks

ive been gluten free since my dx on 1/11/21 - new like you - my symptoms have just started to feel like they are disappearing although i still on occasion feel a little pinch here and there - you will feel symptoms for awhile - as long as you are eating clean taking your vitamins and probiotics you will see a difference soon - stay positive 

[BrianG]

23 minutes ago, MADMOM said:

ive been gluten free since my dx on 1/11/21 - new like you - my symptoms have just started to feel like they are disappearing although i still on occasion feel a little pinch here and there - you will feel symptoms for awhile - as long as you are eating clean taking your vitamins and probiotics you will see a difference soon - stay positive 

Thank you! May I ask what probiotics you are taking? 

[MADMOM]

garden of life - 50 billion cfu 

they are gluten casein dairy and soy free and have helped me so much - i don’t feel bloated or gassy and have no had any gi issues although mine were mild prior to my dx -i also take iron and vitamin d every day 

you can order on amazon 

Just now, MADMOM said:

garden of life - 50 billion cfu 

they are gluten casein dairy and soy free and have helped me so much - i don’t feel bloated or gassy and have no had any gi issues although mine were mild prior to my dx -i also take iron and vitamin d every day 

you can order on amazon 

 

[Jackie Garrett]

On 5/21/2021 at 4:34 PM, BrianG said:

Hello,

I have been gluten free since 3/31/21.  My levels have improved, aside from a slight iron deficiency.  I still feel foggy and tired most of the time though. Is it possible that this is still from lingering damage due to gluten in my body?  How long can it take for a person to feel normal.. I recognize that the way I feel could be from general stress but I'm not sure how to know.  Has anyone else experienced something like this? Has it taken a very very long time to feel fully better for anyone? 

Thanks

It could be that your milk intolerant, there are alternative drinks to replace it with, i personally believe milk intolerance is where it all starts, making us  vulnerable to other intolerances. 

[edgetunes]

I was diagnosed almost 10 years ago. After about 3 years I went back and had an another endoscopy. I was having more digestive problems and thought it might be an ulcer. The Dr. thought I was cheating on my gluten free diet until he saw my villi were recovered. After the original diagnosis I started eating a lot of corn products. It eventually occurred to me that maybe it was the corn and soon after I stopped eating corn , I started feeling better. There are other foods that my digestive tract won't tolerate as I get older. Experiment with the foods you eat the most by eliminating them from your diet and see if it makes a difference.

[Jackie Garrett]

On 5/21/2021 at 4:34 PM, BrianG said:

Hello,

I have been gluten free since 3/31/21.  My levels have improved, aside from a slight iron deficiency.  I still feel foggy and tired most of the time though. Is it possible that this is still from lingering damage due to gluten in my body?  How long can it take for a person to feel normal.. I recognize that the way I feel could be from general stress but I'm not sure how to know.  Has anyone else experienced something like this? Has it taken a very very long time to feel fully better for anyone? 

Thanks

Hello Brian

There is a book written by Barbara Williams it’s called the Alkaline Diet, it’s not a very big book you could probably read it in an evening or two, it’s how we should be eating to stay well and more energised, I got mine from Amazon i think it says it all, I feel so much better eating like this. I fully recommend it. 

[Posterboy]

On 5/21/2021 at 10:34 AM, BrianG said:

Hello,

I have been gluten free since 3/31/21.  My levels have improved, aside from a slight iron deficiency.  I still feel foggy and tired most of the time though. Is it possible that this is still from lingering damage due to gluten in my body?  How long can it take for a person to feel normal.. I recognize that the way I feel could be from general stress but I'm not sure how to know.  Has anyone else experienced something like this? Has it taken a very very long time to feel fully better for anyone? 

Thanks

BrianG,

This thread might help you!

Good luck on your continued journey!

Posterboy,

[Posterboy]

On 7/13/2021 at 2:48 PM, edgetunes said:

I was diagnosed almost 10 years ago. After about 3 years I went back and had an another endoscopy. I was having more digestive problems and thought it might be an ulcer. The Dr. thought I was cheating on my gluten free diet until he saw my villi were recovered. After the original diagnosis I started eating a lot of corn products. It eventually occurred to me that maybe it was the corn and soon after I stopped eating corn , I started feeling better. There are other foods that my digestive tract won't tolerate as I get older. Experiment with the foods you eat the most by eliminating them from your diet and see if it makes a difference.

Edgetunes,

Try reading this thread.....it can explain how Corn (and Sorghum based flours) can sometimes cause similar symptom's in some Celiac's....

In short, Corn and Sorghum have high leucine amounts interfering with the bodies natural production of Niacin.....which can lead to Pellagra like symptom's in some Celiac's....

This article explains in more detail how Pellagra can develop in some Celiac's...

I hope this is helpful but it is not medical advice.

Good luck on your continued journey!

Posterboy,

[Phosis]

Many people with Celiac disease are still in the healing process at the 5 year mark after a gluten free diet has been adopted. Up to a third of people in fact do not have full intestinal healing by this point.

Be careful what you read about other peoples stories. They can be misleading and discouraging. Or statements like "you should heal three weeks after adopting the diet" that are widely reported on numerous health websites. That information is patently false for the most part.

For myself, a year and a half in, and most of my neurological symptoms have subsided...but it quite literally took this long. And that was even with my numbers dropping almost to 0 when I had blood work done. Don't be deceived - every BODY is different. Patience is a virtue though it is very difficult to sustain with this disease. You seem to be on the right track, so I would not fret at this point.