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If You Had To Recommend Any Website For Info On How Live Gluten Free What Would Your Favorite Be?

JessicaB

By JessicaB
in Coping with Celiac Disease

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JessicaB Explorer
JessicaB
Posted

Please list your fav websites that have valueable info for newly diagnosed celiacs. How to live gluten free, recipes etc. I would like to know how detailed i will need to change my life, ex. kitchen supplies, what i need to look out for etc. Thanks!

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Lisa Mentor
Lisa
Posted

Jessica,

The information that you're requesting is all here. Scroll down and type in a search for what you may be interested in. This site is SO packed with information that it would take you a week or two to digest all the information. For interest, type in recipies............all you would want to have.

Good luck and let us know what you came up with. If you don't see what you need, we are all her to answer questions. I'm not good at posting sites, but others will. (sorta like, old dog, new tricks :blink: )

Lisa

Canadian Karen Community Regular
Canadian Karen
Posted

Everything I need is right here, including the best support system I could ever ask for.

The only other site I would suggest would be the www.delphiforums.com for the delphi list.

Hugs!

Karen

jerseyangel Proficient
jerseyangel
Posted

I agree with the others. I found this site about 2 months after I was diagnosed. Everything I need pertaining to Celiac--info, support--is right here. This is the only board I am involved with, so I really don't know about any others that may be out there.

Rusla Enthusiast
Rusla
Posted

I have to agree. Everything I need is here and you can't get better than this.

ravenwoodglass Mentor
ravenwoodglass
Posted
Please list your fav websites that have valueable info for newly diagnosed celiacs. How to live gluten free, recipes etc. I would like to know how detailed i will need to change my life, ex. kitchen supplies, what i need to look out for etc. Thanks!

You already found the best. I have joined the yahoo group also but rarely go there as I found the board confusing, but then I confuse easily. I post on other mediacal sites and this is where I send everyone for info. Our members are the best.

VydorScope Proficient
VydorScope
Posted

I have been to many celiac disease related sites, but it the end THIS is the only one I visit regularly. 99% of the time if I need info, I can find it here. And 99% of the time its the most current information advailible.

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Canadian Karen Community Regular
Canadian Karen
Posted

Lord Vincent,

Tymber is getting cuter and cuter! Look at those cheeks!

Hugs.

Karen

VydorScope Proficient
VydorScope
Posted
Lord Vincent,

Tymber is getting cuter and cuter! Look at those cheeks!

Hugs.

Karen

THANKS! Dont forget you can see lots of pictures of our little star via my site Open Original Shared Link :D

jerseyangel Proficient
jerseyangel
Posted

Vincent--the new picture of little Tymber is adorable! He is such a cutie :)

VydorScope Proficient
VydorScope
Posted
Vincent--the new picture of little Tymber is adorable! He is such a cutie :)

Thanks!!

LOL the little guy cant read or write yet, but he can already hijack a thread! He gonna go places!

ianm Apprentice
ianm
Posted

It just doesn't get any better than Celiac.com.

Guest nini
Guest nini
Posted

yep I agree, this website Celiac.com and the gluten-free forum is the most complete, accurate, up to date website around. I've researched TONS of websites and THIS ONE is the best! WE LOVE SCOTT!!!!

jerseyangel Proficient
jerseyangel
Posted

Yep--Scott RULES! :D

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

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    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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