non celiac gluten sensitivity

[mjroda]

My son has 4y. at 2y even the blood analises come negative for transglutaminases he had short stature, his teeth were small, got joint pain, had anemia, low vitamin A and low vitamin d,  his speech was difficult to understand. The doctors said "well he has to eat more fat and give him spinach and red meat..." I've made that but he started to feel bad with fat...

Fortunatly foud a naturopath that made fezes analises that found disbiose and other values of bowel inflamation, his liver was a bit fat and we started an anti inflammatory diet- no gluten, no laticinios- started "dr roland candida yeast ", started probiotics, l-glutamine to seal his bowel, vitamins... in a few months he started do speak more clear, was less shy, gain weight, grew more, his joiny pain desapear, his hair grew more...

but in my mind i had to have a positive blood test, so after all this... i gave him gluten for 5 months... the blood test were still negative... in does months he lost weight, his speech was less clear, it started to grow white hair (only 2 but...) :o!  his joint pain came again... well...now we've started all over again... and this time i wont go back again 😕 

i´ve read that biopsy for gluten sensitivity its not an option because it doesnt damage your bowel...so by all this simptoms i suppose my son has celiac disease... do i really need to have an ok from a gastro doctor...? need to make a biopsy in a year or so... ? just asking... does he need this...

Greetings from Portugal

[Scott Adams]

Welcome to the forum! 

So the difficult thing about gluten sensitivity is that there are two main types: 1) celiac disease, which ~1% of the population has, and you can test for it, usually with a TTG blood test; and 2) non-celiac gluten sensitivity, which is the tricky one, because there is no current test for it, and possibly ~12% of the population has. 

To me it sounds like he has non-celiac gluten sensitivity, and you've already done the basic test for it, which is going gluten-free and seeing his symptoms improve, then going back to gluten, and seeing them come back. I would keep him gluten-free.

[mjroda]

thank you. yes i think is the best. hoping for good results again. thank you.