Celiacs and gastritis connection?

[Lyns5201]

I’m still trying to get to the bottom of what’s causing my gastritis... my medical team doesn’t even Know, it could be stress or gluten or both.. I’ve been gluten free three weeks now and just now getting some relief from my gastritis pain.. I’ve had all sorts of tests done, all negative of other things that cause gastritis..and another thing is only the antrum(lower stomach near small intestine is affected by it). They only saw it here as they took biopsies from my whole stomach. Anyone else had the same experience ? Does this ever get better? 

[knitty kitty]

@Lyns5201,

Yes, I've had gastritis.  Endoscopy revealed small irritated spots in my stomach.  My spots healed.  

I found that taking 1000 mg of Tryptophan helps me.  Tryptophan heals the stomach lining and intestines.  Our bodies can turn Tryptophan into other chemicals, serotonin and melatonin that also heal the digestive tract.

Tryptophan is available over the counter and on line.  This is the kind I order.  I take with meals and at bedtime. 

https://m.amazingnutrition.com/item/31353631323630373533303038

 

 

"Melatonin as an organoprotector in the stomach and the pancreas"

https://pubmed.ncbi.nlm.nih.gov/15683461/

 

[Lyns5201]

15 minutes ago, knitty kitty said:

@Lyns5201,

Yes, I've had gastritis.  Endoscopy revealed small irritated spots in my stomach.  My spots healed.  

I found that taking 1000 mg of Tryptophan helps me.  Tryptophan heals the stomach lining and intestines.  Our bodies can turn Tryptophan into other chemicals, serotonin and melatonin that also heal the digestive tract.

Tryptophan is available over the counter and on line.  This is the kind I order.  I take with meals and at bedtime. 

https://m.amazingnutrition.com/item/31353631323630373533303038

 

 

"Melatonin as an organoprotector in the stomach and the pancreas"

https://pubmed.ncbi.nlm.nih.gov/15683461/

 

Did the doctor verify you had gastritis ?do they know what caused it and have you also been diagnosed with celiacs ?do you think untreated celiacs and gastritis have a link ? I’m just trying to figure this out tired of being in pain... also how long did it take yours to heal up and did you take anything else for it? 

[knitty kitty]

Yes, I was given a PPI (proton pump inhibitor) but that only made my symptoms worse.  PPI's can cause continuing inflammation and damage.  Have your doctors prescribed you any medications?

Yes, I think Celiac (no "s" on the end) and gastritis are linked.  Yes, I have two genes for Celiac.

In addition to the tryptophan, I  take Allithiamine, a form of Vitamin B1.  This is the brand I take...

https://www.pureformulas.com/allithiamine-vitamin-b1-50-mg-60-capsules-by-ecological-formulas.html

 

Allithiamine helps the digestive tract heal and function better.

This article explains it very well...

"SIBO, IBS, and Constipation: Unrecognized Thiamine Deficiency?"

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

What are you eating and drinking?

[Lyns5201]

5 hours ago, knitty kitty said:

Yes, I was given a PPI (proton pump inhibitor) but that only made my symptoms worse.  PPI's can cause continuing inflammation and damage.  Have your doctors prescribed you any medications?

Yes, I think Celiac (no "s" on the end) and gastritis are linked.  Yes, I have two genes for Celiac.

In addition to the tryptophan, I  take Allithiamine, a form of Vitamin B1.  This is the brand I take...

https://www.pureformulas.com/allithiamine-vitamin-b1-50-mg-60-capsules-by-ecological-formulas.html

 

Allithiamine helps the digestive tract heal and function better.

This article explains it very well...

"SIBO, IBS, and Constipation: Unrecognized Thiamine Deficiency?"

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

What are you eating and drinking?

I’m eating and drinking very plain,no dairy or gluten or soy. Things like potatoes,broth,chicken.cooked carrots, water,gluten-free bread and honey peanut butter so there’s not a lot of added sugar in it,almond milk, almond yogurt , sweet potatoes, ground Turkey, rice

[Lyns5201]

5 hours ago, knitty kitty said:

Yes, I was given a PPI (proton pump inhibitor) but that only made my symptoms worse.  PPI's can cause continuing inflammation and damage.  Have your doctors prescribed you any medications?

Yes, I think Celiac (no "s" on the end) and gastritis are linked.  Yes, I have two genes for Celiac.

In addition to the tryptophan, I  take Allithiamine, a form of Vitamin B1.  This is the brand I take...

https://www.pureformulas.com/allithiamine-vitamin-b1-50-mg-60-capsules-by-ecological-formulas.html

 

Allithiamine helps the digestive tract heal and function better.

This article explains it very well...

"SIBO, IBS, and Constipation: Unrecognized Thiamine Deficiency?"

https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/

What are you eating and drinking?

And yes, they have me on protonix, but I quit taking it a few days ago in fear it’s making my symptoms even worse I’m scared acid rebound will come any minute now...also on a meds for nerves,they think my nerves in my stomach are too sensitive...and I’m on carafate before every meal and before bed as it’s supposed to heal the stomach.. 

[knitty kitty]

@Lyns5201 

Lysine is used to treat stomach ulcers.  It promotes healing of the stomach lining.

Have you been tested for a B12 deficiency?  

The intrinsic factor needed for B12 absorption is made in the stomach.  B12 helps reduce that stomach lining inflammation.  You may want to try a sublingual B12 supplement that dissolves in the mouth and is absorbed into the bloodstream without needing that intrinsic factor.  

Edited October 25, 2021 by knitty kitty
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[De De]

10 hours ago, Lyns5201 said:

I’m still trying to get to the bottom of what’s causing my gastritis... my medical team doesn’t even Know, it could be stress or gluten or both.. I’ve been gluten free three weeks now and just now getting some relief from my gastritis pain.. I’ve had all sorts of tests done, all negative of other things that cause gastritis..and another thing is only the antrum(lower stomach near small intestine is affected by it). They only saw it here as they took biopsies from my whole stomach. Anyone else had the same experience ? Does this ever get better? 

Yes it does I drink Camile tea and that help with the pain and lemon balm . It's because you have eaten gluten for so long that it's going take some time but it gradually get better.

[knitty kitty]

@Lyns5201 

You may try removing potatoes from your diet for a while.  Potatoes contain chemicals called solanines that cause leaky gut syndrome.  

Have you been checked for Small Intestinal Bacterial Overgrowth?  

 

[Lyns5201]

1 hour ago, knitty kitty said:

@Lyns5201 

Lysine is used to treat stomach ulcers.  It promotes healing of the stomach lining.

Have you been tested for a B12 deficiency?  

The intrinsic factor needed for B12 absorption is made in the stomach.  B12 helps reduce that stomach lining inflammation.  You may want to try a sublingual B12 supplement that dissolves in the mouth and is absorbed into the bloodstream without needing that intrinsic factor.  

Yes I have, they said it was normal.and my b12 is ok too. Also I have been on a ppi quite some time though,I know these can effect the amount of vitamin absorption...

1 hour ago, De De said:

Yes it does I drink Camile tea and that help with the pain and lemon balm . It's because you have eaten gluten for so long that it's going take some time but it gradually get better.

Do you have celiacs and have also been confirmed to have gastritis through scope ?and what kind if so ?? How did you heal yours ?

[knitty kitty]

5 hours ago, Lyns5201 said:

Yes I have, they said it was normal.and my b12 is ok too. Also I have been on a ppi quite some time

Have you Googled the side effects of Carafate?

constipation, diarrhea, nausea, vomiting, 

upset stomach,

stomach pain,

indigestion,

gas, dry mouth,

sleep problems (insomnia),

dizziness,

drowsiness,

spinning sensation,

headache, back pain 

Aren't these symptoms similar to what you have been experiencing?

You may need to discuss these symptoms with your doctor.  Perhaps discuss tryptophan, lysine and thiamine supplementation instead.

Best of luck.

[Jen1975]

On 10/24/2021 at 12:39 PM, Lyns5201 said:

I’m still trying to get to the bottom of what’s causing my gastritis... my medical team doesn’t even Know, it could be stress or gluten or both.. I’ve been gluten free three weeks now and just now getting some relief from my gastritis pain.. I’ve had all sorts of tests done, all negative of other things that cause gastritis..and another thing is only the antrum(lower stomach near small intestine is affected by it). They only saw it here as they took biopsies from my whole stomach. Anyone else had the same experience ? Does this ever get better? 

I just got the results from my endoscopy and it said I had inactive chronic gastritis. I have become sensitive to almost every food I usually eat. I have been gluten free for several months now.  I firmly believe that my confirmed celiac and gluten intake caused the gastritis.  I am taking liquid Gaviscon (OTC) and Bentyl (prescription) for the pain.  I have lost 9 pounds this month because all I can eat is Chicken and peas.  Stress is also very prevalent in my life.  I am praying this new treatment will work.  You are not alone, just wanted to let you know that.

[trents]

31 minutes ago, Jen1975 said:

I just got the results from my endoscopy and it said I had inactive chronic gastritis. I have become sensitive to almost every food I usually eat. I have been gluten free for several months now.  I firmly believe that my confirmed celiac and gluten intake caused the gastritis.  I am taking liquid Gaviscon (OTC) and Bentyl (prescription) for the pain.  I have lost 9 pounds this month because all I can eat is Chicken and peas.  Stress is also very prevalent in my life.  I am praying this new treatment will work.  You are not alone, just wanted to let you know that.

Make sure the Gaviscon, Bentyl and any ofther meds/supplements you are taking are gluten free.

[Bill K]

Hang in there.  I am now 5 months gluten-free.  I am completely off all my gastro-intestinal medications and my diabetes is reversing.  From 3 medications for diabetes, I am now down to one (metformin) and I have to reduce my dose because of blood sugar lows.  I had my first normal glucose reading in a blood test even though I had eaten.  The first time in 11 years.  I was 69 when I was diagnosed as celiac and eliminating gluten is making all my misdiagnosed symptoms go away.  Find an integrative physician.  They will treat you as a whole person and believe you.  It made a huge positive change in my life.

[Jen1975]

5 hours ago, Bill K said:

Hang in there.  I am now 5 months gluten-free.  I am completely off all my gastro-intestinal medications and my diabetes is reversing.  From 3 medications for diabetes, I am now down to one (metformin) and I have to reduce my dose because of blood sugar lows.  I had my first normal glucose reading in a blood test even though I had eaten.  The first time in 11 years.  I was 69 when I was diagnosed as celiac and eliminating gluten is making all my misdiagnosed symptoms go away.  Find an integrative physician.  They will treat you as a whole person and believe you.  It made a huge positive change in my life.

Thank you for the good advice. Gaviscon and all forms of Bentley are gluten free, that was a good idea to check those. 

[Lyns5201]

On 10/28/2021 at 6:20 AM, Jen1975 said:

I just got the results from my endoscopy and it said I had inactive chronic gastritis. I have become sensitive to almost every food I usually eat. I have been gluten free for several months now.  I firmly believe that my confirmed celiac and gluten intake caused the gastritis.  I am taking liquid Gaviscon (OTC) and Bentyl (prescription) for the pain.  I have lost 9 pounds this month because all I can eat is Chicken and peas.  Stress is also very prevalent in my life.  I am praying this new treatment will work.  You are not alone, just wanted to let you know that.

I wanted to check back up on you, didn’t see your comment till now , how are you doing??

On 10/24/2021 at 7:53 PM, De De said:

Yes it does I drink Camile tea and that help with the pain and lemon balm . It's because you have eaten gluten for so long that it's going take some time but it gradually get better.

Did you personally experience gastritis and feel it was related to celiac and got better on a gluten free diet? 

[Lyns5201]

On 10/28/2021 at 10:11 PM, Bill K said:

Hang in there.  I am now 5 months gluten-free.  I am completely off all my gastro-intestinal medications and my diabetes is reversing.  From 3 medications for diabetes, I am now down to one (metformin) and I have to reduce my dose because of blood sugar lows.  I had my first normal glucose reading in a blood test even though I had eaten.  The first time in 11 years.  I was 69 when I was diagnosed as celiac and eliminating gluten is making all my misdiagnosed symptoms go away.  Find an integrative physician.  They will treat you as a whole person and believe you.  It made a huge positive change in my life.

Have you experienced gastritis with your celiac ? 

[Jen1975]

On 10/28/2021 at 9:20 AM, Jen1975 said:

I just got the results from my endoscopy and it said I had inactive chronic gastritis. I have become sensitive to almost every food I usually eat. I have been gluten free for several months now.  I firmly believe that my confirmed celiac and gluten intake caused the gastritis.  I am taking liquid Gaviscon (OTC) and Bentyl (prescription) for the pain.  I have lost 9 pounds this month because all I can eat is Chicken and peas.  Stress is also very prevalent in my life.  I am praying this new treatment will work.  You are not alone, just wanted to let you know that.

I am not really doing any better.  The gastroenterologist told me to take antacids if I need to for my stomach but did not give me anything specific, I have tried Tums and Gaviscon but then found out Gaviscon interacts with one of my medicines so I had to stop taking it.  I have lost another 3 pounds in the last couple weeks, fortunately I have plenty of extra!  My main diet is still chicken & peas and I will not give up my m&ms since I cannot eat much of anything else.  I am trying to drink more water too.  I am at a point where I just take it day by day.  Thanks for checking in with me, it is nice to know that people care!

[trents]

https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/candy/

Regular M&Ms have no gluten containing ingredients but that doesn't rule out cross contamination in processing and handling as they may be produced on machinery that processes other products with gluten. Also, there may be other ingredients in M&Ms that aggravate your tummy such as emulsifiers. 

[Bill K]

15 hours ago, Lyns5201 said:

Have you experienced gastritis with your celiac ? 

I had esophagitis, gastritis, colitis, diverticulitis, Barrett's esophagus, and a hiatal hernia with gall bladder polyps and gallstones.  I spent over 10 years going to a gastroenterologist and taking tons of medicine and undergoing regular endo-colonoscopies.  I switched to an integrative physician who spent a year and a half helping me and who finally noted my malabsorption problems, which lead to the positive celiac test.   Since going gluten-free all my symptoms have ceased and I've been able to stop taking all my gastro-intestinal medicines.  No more reflux and gall bladder pain!  I am hopeful that my next endo-colonoscopy will document the improvement.  I believe the gluten intolerance and my continued eating of gluten all my life caused my celiac disease and diabetes (which is also improving and hopefully will continue to go away).  So yes is the answer,  I think all kids need to be screened for gluten intolerance early in life.  I wish I had.  It would have eliminated all the arguments I had with my parents as a kid over foods that I refused to eat because they made me sick (literally).  They just thought I was a brat.

[Lyns5201]

9 hours ago, Bill K said:

I had esophagitis, gastritis, colitis, diverticulitis, Barrett's esophagus, and a hiatal hernia with gall bladder polyps and gallstones.  I spent over 10 years going to a gastroenterologist and taking tons of medicine and undergoing regular endo-colonoscopies.  I switched to an integrative physician who spent a year and a half helping me and who finally noted my malabsorption problems, which lead to the positive celiac test.   Since going gluten-free all my symptoms have ceased and I've been able to stop taking all my gastro-intestinal medicines.  No more reflux and gall bladder pain!  I am hopeful that my next endo-colonoscopy will document the improvement.  I believe the gluten intolerance and my continued eating of gluten all my life caused my celiac disease and diabetes (which is also improving and hopefully will continue to go away).  So yes is the answer,  I think all kids need to be screened for gluten intolerance early in life.  I wish I had.  It would have eliminated all the arguments I had with my parents as a kid over foods that I refused to eat because they made me sick (literally).  They just thought I was a brat.

Wow ok.... so you don’t know for sure yet if gastritis is gone cause have not had a follow up endoscopy yet? Is the gastritis pain Completely gone ?if so how long did it take for you to find relief from it on a gluten free diet?mine will hurt so bad and burn and feels raw almost but I’m only a month gluten free. 

[ButWhatCanIEat]

On 10/24/2021 at 11:39 AM, Lyns5201 said:

I’m still trying to get to the bottom of what’s causing my gastritis... my medical team doesn’t even Know, it could be stress or gluten or both.. I’ve been gluten free three weeks now and just now getting some relief from my gastritis pain.. I’ve had all sorts of tests done, all negative of other things that cause gastritis..and another thing is only the antrum(lower stomach near small intestine is affected by it). They only saw it here as they took biopsies from my whole stomach. Anyone else had the same experience ? Does this ever get better? 

Maybe you just have gastritis? I've been taking antacids for years for gastritis, since before my celiac diagnosis. Nothing I eat makes it worse or better. I'm an anxious person so that could be a factor.

On 11/16/2021 at 7:05 AM, Jen1975 said:

I am not really doing any better.  The gastroenterologist told me to take antacids if I need to for my stomach but did not give me anything specific, I have tried Tums and Gaviscon but then found out Gaviscon interacts with one of my medicines so I had to stop taking it.  I have lost another 3 pounds in the last couple weeks, fortunately I have plenty of extra!  My main diet is still chicken & peas and I will not give up my m&ms since I cannot eat much of anything else.  I am trying to drink more water too.  I am at a point where I just take it day by day.  Thanks for checking in with me, it is nice to know that people care!

Oh I take pepcid in the morning and at night, every day. I had been taking ranitidine but something happened with that the other year. I really preferred it. Tums is just a bandaid sort of antacid, it isn't very strong.

[Bill K]

16 hours ago, Lyns5201 said:

Wow ok.... so you don’t know for sure yet if gastritis is gone cause have not had a follow up endoscopy yet? Is the gastritis pain Completely gone ?if so how long did it take for you to find relief from it on a gluten free diet?mine will hurt so bad and burn and feels raw almost but I’m only a month gluten free. 

I started getting relief the first month I was gluten-free, which was about 6 weeks prior to my celiac diagnosis and yes, my blood antigen tests were positive even with the gluten-free diet.  Once I was diagnosed, I tapered off the gastro meds.  I've taken them all and was taking prescription level doses of both lansoprazol and pepcid (which is basically twice the dose recommended on the bottle) with tums for the break throughs every night.  I got off them all with no ill affect.  I have had two reflux episodes in the last 6 months, both following suspected gluten intake (I just had to eat those french fries, not thinking the oil was contaminated by the gluten from the breading on the fried chicken, and forgetting to tell the waiter I couldn't handle the gravy).  I can now tell when I have gluten because I get gall bladder type pain and a headache, luckily no reflux. I am now able to eat tomato sauce and drink red wine, which used to be triggers for reflux,   I even got rid of the wedge I was sleeping on.  I used to have headaches every day, but they are rare now.  But you really need to look for a gastroenterologist who treats celiac patients.  They understand, while other gastro specialists are focused on ulcers and cancer and surgical solutions.  You need one who understands the role of nutrition and one who knows how to do small intestine endoscopy with biopsies.  My old gastro treated me for over 10 years with pills and never tested me for celiac and I didn't get any better.  My new gastro says it may take up to 2 years to eliminate the effects of gluten on your system, but my symptoms seem to have resolved much sooner.

[Jen1975]

On 11/16/2021 at 9:47 AM, trents said:

https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/candy/

Regular M&Ms have no gluten containing ingredients but that doesn't rule out cross contamination in processing and handling as they may be produced on machinery that processes other products with gluten. Also, there may be other ingredients in M&Ms that aggravate your tummy such as emulsifiers. 

Good point about the M&Ms, I didn’t think about anything else theY might come in contact with. 

[trents]

They contain emulsifiers and food coloring as well and who knows what else.