Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

South Florida


ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast

?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Ms SS--Darn, if I lived in Florida, I would join your club! We could meet on Sunday nights--around 7:30 and then stick around and have a Sopranos party afterwards :D

Really--good luck with it!

ms-sillyak-screwed Enthusiast

-

bklyn Enthusiast

I belong to the SE Florida support group. Have you been to a meeting?

  • 1 month later...
ms-sillyak-screwed Enthusiast

-

  • 2 months later...
beaglemania Rookie

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

So I know there's one In Boca you could go to, I would go to it if it weren't so far away.

lindalee Enthusiast

Didn't you go to the doctor? Hope it went well. I would go to your group but too far away. Have you ever looked into the SCD? LL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samking72 Rookie

Im in Orlando... very long drive. I wish I was closer.

beaglemania Rookie
Im in Orlando... very long drive. I wish I was closer.

I know my mom knows people who have Celiac Disease. Hopefully we may start a group soon in Stuart, Florida. Its about an hour drive from West Palm Beach and the Gardens Mall.

rumbles Newbie

What part of SE Florida?

beaglemania Rookie

I live in Stuart. In Martin County. Next to Port St. Lucie. And an hour from The Gardens Mall in PGA.

NicoleAJ Enthusiast

My parents live in Miami Shores, but I live in PA. Let me know if you start a group in Miami because I'd like to attend when I go home to visit them in the summer and over holidays.

  • 2 weeks later...
ms-sillyak-screwed Enthusiast

-

Cheri A Contributor

Silly ~ sorry that I'm not in FL anymore to hook up w/you. I used to live in South Florida. My family is still there. But, I'm in Minnesota now :blink:

  • 4 months later...
Stebetty12 Newbie

I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

steveindenver Contributor

Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!

  • 4 weeks later...
jacki Newbie
Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!
jacki Newbie

Legal Seafood at Town Center Mall has a gluten Free menu. There is a new pizza place in Deerfield beach, called Pizza Fusion that has gluten free pizza. Another Pizza Fusion will be opening in Boca, Powerline and Palmetto in April. If you bring your own pasta to Sweet Tomatoes, they will make it for you, but if you are highly sensitive, I would be careful.

steveindenver Contributor

I'm heading down there in April to visit my mom in Boca area. I hope the new Pizza Fusion is open by then, as I eager to try it!!! If not, we're driving to Deerfield.

Cheri A Contributor

Definitely visit Pizza Fusion!! I was in South FL visiting family over the holidays and took my dd there for pizza! She loved it and even got a brownie too! One word of warning, though... give them a call before you go there because they need a little notice for the gluten-free crust.

mamaw Community Regular

We will be coming to Florida in April07. Disney for a week then we will go down the East coast. First stop is Junipter, hopefully the guys can get out on a head boat to do some fishing. Then I ask that we stop to try Pizza Fusion. I sure hope it is worth the stop over.Then we are going over 75 to the gulf side. Stopping in Port Charlotte, then onto to Palmetto.If anyone knows any good eating places on this route,Please let me know.

Oh yeah, fishing head boats too???? I forgot we want to stop at Cape Canaveral.

If there are any good gluten-free shopping on our route please fiil us in on that too. I'm always on the look-out for new gluten-free foods that will knock our socks off... I don't get that where I live......

thanks

mamaw

Jprock Newbie

The Southeast Chapter (CSA affiliated) meets too far south for me as I'm in northern Palm Beach County. The Palm Beach County Chapter (CDF affiliated) meets in the Delray area - again, too far away for me, especially during the work week.

I'd love to have a support group in the northern part of the county; anybody out there want to get involved?

  • 4 weeks later...
lovetofysh Newbie
I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

I too am in South FL (Miami) and was recently diagnosed with Celiac. I have done numerous searches on the internet and have found nothing available in this area as well. My search is continuing and I will let you know if I find something!!!

  • 2 months later...
Vince Newbie

I live in Boynton Beach and am a Celiac. I do go to school in Connecticut but I am here on breaks and would be interested in interacting with other Celiacs.

RKB-MD Rookie

I am possibly moving to Pembroke Pines area in August and would be interested in meeting some others. Is there a WF nearby that has a monthly meeting?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.