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South Florida

ms-sillyak-screwed

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ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

?

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jerseyangel Proficient
jerseyangel
Posted

Ms SS--Darn, if I lived in Florida, I would join your club! We could meet on Sunday nights--around 7:30 and then stick around and have a Sopranos party afterwards :D

Really--good luck with it!

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

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bklyn Enthusiast
bklyn
Posted

I belong to the SE Florida support group. Have you been to a meeting?

  • 1 month later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

  • 2 months later...
beaglemania Rookie
beaglemania
Posted

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

So I know there's one In Boca you could go to, I would go to it if it weren't so far away.

lindalee Enthusiast
lindalee
Posted

Didn't you go to the doctor? Hope it went well. I would go to your group but too far away. Have you ever looked into the SCD? LL

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samking72 Rookie
samking72
Posted

Im in Orlando... very long drive. I wish I was closer.

beaglemania Rookie
beaglemania
Posted
Im in Orlando... very long drive. I wish I was closer.

I know my mom knows people who have Celiac Disease. Hopefully we may start a group soon in Stuart, Florida. Its about an hour drive from West Palm Beach and the Gardens Mall.

rumbles Newbie
rumbles
Posted

What part of SE Florida?

beaglemania Rookie
beaglemania
Posted

I live in Stuart. In Martin County. Next to Port St. Lucie. And an hour from The Gardens Mall in PGA.

NicoleAJ Enthusiast
NicoleAJ
Posted

My parents live in Miami Shores, but I live in PA. Let me know if you start a group in Miami because I'd like to attend when I go home to visit them in the summer and over holidays.

  • 2 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

Cheri A Contributor
Cheri A
Posted

Silly ~ sorry that I'm not in FL anymore to hook up w/you. I used to live in South Florida. My family is still there. But, I'm in Minnesota now :blink:

  • 4 months later...
Stebetty12 Newbie
Stebetty12
Posted

I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

steveindenver Contributor
steveindenver
Posted

Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!

  • 4 weeks later...
jacki Newbie
jacki
Posted
Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!
jacki Newbie
jacki
Posted

Legal Seafood at Town Center Mall has a gluten Free menu. There is a new pizza place in Deerfield beach, called Pizza Fusion that has gluten free pizza. Another Pizza Fusion will be opening in Boca, Powerline and Palmetto in April. If you bring your own pasta to Sweet Tomatoes, they will make it for you, but if you are highly sensitive, I would be careful.

steveindenver Contributor
steveindenver
Posted

I'm heading down there in April to visit my mom in Boca area. I hope the new Pizza Fusion is open by then, as I eager to try it!!! If not, we're driving to Deerfield.

Cheri A Contributor
Cheri A
Posted

Definitely visit Pizza Fusion!! I was in South FL visiting family over the holidays and took my dd there for pizza! She loved it and even got a brownie too! One word of warning, though... give them a call before you go there because they need a little notice for the gluten-free crust.

mamaw Community Regular
mamaw
Posted

We will be coming to Florida in April07. Disney for a week then we will go down the East coast. First stop is Junipter, hopefully the guys can get out on a head boat to do some fishing. Then I ask that we stop to try Pizza Fusion. I sure hope it is worth the stop over.Then we are going over 75 to the gulf side. Stopping in Port Charlotte, then onto to Palmetto.If anyone knows any good eating places on this route,Please let me know.

Oh yeah, fishing head boats too???? I forgot we want to stop at Cape Canaveral.

If there are any good gluten-free shopping on our route please fiil us in on that too. I'm always on the look-out for new gluten-free foods that will knock our socks off... I don't get that where I live......

thanks

mamaw

Jprock Newbie
Jprock
Posted

The Southeast Chapter (CSA affiliated) meets too far south for me as I'm in northern Palm Beach County. The Palm Beach County Chapter (CDF affiliated) meets in the Delray area - again, too far away for me, especially during the work week.

I'd love to have a support group in the northern part of the county; anybody out there want to get involved?

  • 4 weeks later...
lovetofysh Newbie
lovetofysh
Posted
I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

I too am in South FL (Miami) and was recently diagnosed with Celiac. I have done numerous searches on the internet and have found nothing available in this area as well. My search is continuing and I will let you know if I find something!!!

  • 2 months later...
Vince Newbie
Vince
Posted

I live in Boynton Beach and am a Celiac. I do go to school in Connecticut but I am here on breaks and would be interested in interacting with other Celiacs.

RKB-MD Rookie
RKB-MD
Posted

I am possibly moving to Pembroke Pines area in August and would be interested in meeting some others. Is there a WF nearby that has a monthly meeting?

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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