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South Florida

ms-sillyak-screwed

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ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

?

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jerseyangel Proficient
jerseyangel
Posted

Ms SS--Darn, if I lived in Florida, I would join your club! We could meet on Sunday nights--around 7:30 and then stick around and have a Sopranos party afterwards :D

Really--good luck with it!

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

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bklyn Enthusiast
bklyn
Posted

I belong to the SE Florida support group. Have you been to a meeting?

  • 1 month later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

  • 2 months later...
beaglemania Rookie
beaglemania
Posted

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

So I know there's one In Boca you could go to, I would go to it if it weren't so far away.

lindalee Enthusiast
lindalee
Posted

Didn't you go to the doctor? Hope it went well. I would go to your group but too far away. Have you ever looked into the SCD? LL

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samking72 Rookie
samking72
Posted

Im in Orlando... very long drive. I wish I was closer.

beaglemania Rookie
beaglemania
Posted
Im in Orlando... very long drive. I wish I was closer.

I know my mom knows people who have Celiac Disease. Hopefully we may start a group soon in Stuart, Florida. Its about an hour drive from West Palm Beach and the Gardens Mall.

rumbles Newbie
rumbles
Posted

What part of SE Florida?

beaglemania Rookie
beaglemania
Posted

I live in Stuart. In Martin County. Next to Port St. Lucie. And an hour from The Gardens Mall in PGA.

NicoleAJ Enthusiast
NicoleAJ
Posted

My parents live in Miami Shores, but I live in PA. Let me know if you start a group in Miami because I'd like to attend when I go home to visit them in the summer and over holidays.

  • 2 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

Cheri A Contributor
Cheri A
Posted

Silly ~ sorry that I'm not in FL anymore to hook up w/you. I used to live in South Florida. My family is still there. But, I'm in Minnesota now :blink:

  • 4 months later...
Stebetty12 Newbie
Stebetty12
Posted

I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

steveindenver Contributor
steveindenver
Posted

Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!

  • 4 weeks later...
jacki Newbie
jacki
Posted
Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!
jacki Newbie
jacki
Posted

Legal Seafood at Town Center Mall has a gluten Free menu. There is a new pizza place in Deerfield beach, called Pizza Fusion that has gluten free pizza. Another Pizza Fusion will be opening in Boca, Powerline and Palmetto in April. If you bring your own pasta to Sweet Tomatoes, they will make it for you, but if you are highly sensitive, I would be careful.

steveindenver Contributor
steveindenver
Posted

I'm heading down there in April to visit my mom in Boca area. I hope the new Pizza Fusion is open by then, as I eager to try it!!! If not, we're driving to Deerfield.

Cheri A Contributor
Cheri A
Posted

Definitely visit Pizza Fusion!! I was in South FL visiting family over the holidays and took my dd there for pizza! She loved it and even got a brownie too! One word of warning, though... give them a call before you go there because they need a little notice for the gluten-free crust.

mamaw Community Regular
mamaw
Posted

We will be coming to Florida in April07. Disney for a week then we will go down the East coast. First stop is Junipter, hopefully the guys can get out on a head boat to do some fishing. Then I ask that we stop to try Pizza Fusion. I sure hope it is worth the stop over.Then we are going over 75 to the gulf side. Stopping in Port Charlotte, then onto to Palmetto.If anyone knows any good eating places on this route,Please let me know.

Oh yeah, fishing head boats too???? I forgot we want to stop at Cape Canaveral.

If there are any good gluten-free shopping on our route please fiil us in on that too. I'm always on the look-out for new gluten-free foods that will knock our socks off... I don't get that where I live......

thanks

mamaw

Jprock Newbie
Jprock
Posted

The Southeast Chapter (CSA affiliated) meets too far south for me as I'm in northern Palm Beach County. The Palm Beach County Chapter (CDF affiliated) meets in the Delray area - again, too far away for me, especially during the work week.

I'd love to have a support group in the northern part of the county; anybody out there want to get involved?

  • 4 weeks later...
lovetofysh Newbie
lovetofysh
Posted
I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

I too am in South FL (Miami) and was recently diagnosed with Celiac. I have done numerous searches on the internet and have found nothing available in this area as well. My search is continuing and I will let you know if I find something!!!

  • 2 months later...
Vince Newbie
Vince
Posted

I live in Boynton Beach and am a Celiac. I do go to school in Connecticut but I am here on breaks and would be interested in interacting with other Celiacs.

RKB-MD Rookie
RKB-MD
Posted

I am possibly moving to Pembroke Pines area in August and would be interested in meeting some others. Is there a WF nearby that has a monthly meeting?

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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