Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post endoscopy pathology results?


berrychuuu

Recommended Posts

berrychuuu Newbie

Hello!

I’m sorry if this is not posted in the correct location. I have been diagnosed with celiacs and had an endoscopy and colonoscopy done. My immediate results showed a healthy stomach and colon, while my duodenum showed positive celiac traits, and it was biopsied along with my colon.

A week later I got my final pathology results and my colon is still normal, but I have a result labeled “stomach” and that I have chronic gastritis and extensive intestinal metaplasia, but nothing like that was listed in my immediate report, nor was it reported that stomach biopsies were taken.

I’m very confused, do you think I got possibly misdiagnosed or someone else’s sample reports got mixed with mine? I have an appointment with the GI this Friday to discuss it. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Just ask those same questions to the GI doc on Friday. Gastritis would not require a biopsy. It can be visible during the scoping. Also, the metaplasia of the intestines is not specified as to which part of the 30' long intestinal track so it's anyone's guess as to what that is saying. It could be referring to mucosal damage in the small bowel which is the hallmark of celiac disease.

berrychuuu Newbie
23 minutes ago, trents said:

Just ask those same questions to the GI doc on Friday. Gastritis would not require a biopsy. It can be visible during the scoping. Also, the metaplasia of the intestines is not specified as to which part of the 30' long intestinal track so it's anyone's guess as to what that is saying. It could be referring to mucosal damage in the small bowel which is the hallmark of celiac disease.

Thank you for the reassurance! I thought it was a bit strange since the same-day results of the EGD said no visibility of irritation, polyps, ulcers, etc in my stomach. Then the pathology biopsy results are saying chronic gastritis, so I wondered what was going on since gastritis is visually observed. Thank you for providing reassurance on the metaplasia as well, it said it was tested under the category of “stomach” so when I searched it and saw the results and “pre-cancer” everywhere I felt so sick to my stomach and confused.

I’ll make sure to report back Friday in case any one else needs this in the future!

Scott Adams Grand Master

If they told you that you had mucosal damage consistent with celiac disease, it would be important to ask for a celiac disease blood panel. Just be sure to keep eating gluten until all tests are completed. Let us know how it turns out!

berrychuuu Newbie
43 minutes ago, Scott Adams said:

If they told you that you had mucosal damage consistent with celiac disease, it would be important to ask for a celiac disease blood panel. Just be sure to keep eating gluten until all tests are completed. Let us know how it turns out!

I’ve had my blood taken already with a positive celiac result which is what lead me to the EGD/colonoscopy, I think I’m more confused on their analyzed results of the biopsies they’ve taken unfortunately 😞. However I’ll still report back with their clarifications to see what happened with how they worded my results!

Scott Adams Grand Master

With the celiac disease biopsies, ask them if they did a "Marsh" score on them. This is the standard method of rating the damage to the villi in those with celiac disease.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.