Gluten Intoxication

[ceciceco]

Hi Guys, 

I turn to this forum as I feel helpless. 
I have been diagnosed celiac since about 6 years now and a month ago, I have accidentally ate gluten, as the waiter in the restaurant confirmed my meal didn't contained gluten when it actually did. 

We went through the entire list of ingredients (Yes they didn't even made the meal themselves) and I could see written "Flour". So I insisted to look at the ingredients after quickly developing symptoms. Sorry if this message doesn't read easy. Just writing this note looks like a crazy effort for me.

Indeed, since this gluten attack, I have bloating, burning eyes, sadness, chill and constant freezing, and most of it: extreme tiredness (I sleep all the time, and that's very bad for work) and I have the biggest brain fog ever. 

I am turning to you guys as I really don't know what to do. 
1. Is that normal? Even after a month? 
2. Do you have any advice to cope those symptoms and/ or to help the healing? 

So far what I have done: 
- drinking a lot of water, camomile, peppermint tea
- probiotics
- vitamins
- bone broth and Miso soup
- no alcohol
- Sleeping sleeping sleeping 
- avoiding food that is hard to digest like some fruits or dairy
- intermittent fasting to give my stomach some rest 

Please, let me know if you would have any advice guys.. 😔 





 

[trents]

  On 3/2/2022 at 7:13 PM, ceciceco said:

Hi Guys, 

I turn to this forum as I feel helpless. 
I have been diagnosed celiac since about 6 years now and a month ago, I have accidentally ate gluten, as the waiter in the restaurant confirmed my meal didn't contained gluten when it actually did. 

We went through the entire list of ingredients (Yes they didn't even made the meal themselves) and I could see written "Flour". So I insisted to look at the ingredients after quickly developing symptoms. Sorry if this message doesn't read easy. Just writing this note looks like a crazy effort for me.

Indeed, since this gluten attack, I have bloating, burning eyes, sadness, chill and constant freezing, and most of it: extreme tiredness (I sleep all the time, and that's very bad for work) and I have the biggest brain fog ever. 

I am turning to you guys as I really don't know what to do. 
1. Is that normal? Even after a month? 
2. Do you have any advice to cope those symptoms and/ or to help the healing? 

So far what I have done: 
- drinking a lot of water, camomile, peppermint tea
- probiotics
- vitamins
- bone broth and Miso soup
- no alcohol
- Sleeping sleeping sleeping 
- avoiding food that is hard to digest like some fruits or dairy
- intermittent fasting to give my stomach some rest 

Please, let me know if you would have any advice guys.. 😔 





 

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The effects of one accidental glutening experience should not last a month IMO. Are you sure you haven't continued to get some gluten since then? And, maybe something else is wrong that has nothing to do with gluten but is coincidental.

[ceciceco]

  On 3/2/2022 at 7:58 PM, trents said:

The effects of one accidental glutening experience should not last a month IMO. Are you sure you haven't continued to get some gluten since then? And, maybe something else is wrong that has nothing to do with gluten but is coincidental.

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Thank you so much for your response.

Yes I am sure as I cook everything myself
 

Well I have checked if there could be anything else, but it really looks like it is the gluten as the symptoms I developed from the glutening experience never went away... 
 

[Scott Adams]

I'm sorry to hear of your ordeal, and want to share this article with you, although it may be too late:

 

[knitty kitty]

@ceciceco,

Welcome to the forum!

I would suggest excluding the Miso soup.  Miso is made from soybeans that have been fermented by a mold, Aspergillus, which might be grown on wheat or barley.  Some Celiacs develop sensitivity to soybeans and molds.  

Have you tried the Low Fodmap diet?

The AutoImmune Protocol Diet has been scientifically proven to heal the intestines and reduce inflammation.  This is my favorite diet if I get glutened.  After a few weeks I can expand to the Fodmap diet.  

The Fodmap diet allows Cruciferous vegetables, though.  Cruciferous vegetables (broccoli, cabbage, cauliflower, etc.) may be problematic.  They contain lots of sulfur that certain intestinal bacteria utilize and release sulfur gas as a byproduct, causing bloating.  

Make sure you are getting plenty of Vitamin D which helps regulate the immune system.  Vitamin D level should be above 78 nmol/l to be effective.  

Hope this helps!

[Russ H]

Hello ceciceco,

Unfortunately I don't think you can do anything. It is a matter of riding it out. The immune response to gluten varies greatly between different people. Coeliac disease seems to fall into 3 different categories: silent (sub-clinical), predominantly gastrointestinal, and gastrointestinal with extra-gastrointestinal effects. I have a theory that the latter category gets worse and longer symptoms from an accidental gluten exposure because it boosts cross-reacting antibodies, similar to having a vaccine booster. It takes months for these antibodies to come down. I know someone who only has gastrointestinal symptoms who occasionally cheats with gluten and he is ill for a day or so. It makes me ill for weeks.

[ceciceco]

  On 3/3/2022 at 6:55 PM, Scott Adams said:

I'm sorry to hear of your ordeal, and want to share this article with you, although it may be too late:

 

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Hi Scott, 

That does help. Thank you so much for sharing. And it is not too late.

[ceciceco]

  On 3/4/2022 at 9:52 PM, Russ314 said:

Hello ceciceco,

Unfortunately I don't think you can do anything. It is a matter of riding it out. The immune response to gluten varies greatly between different people. Coeliac disease seems to fall into 3 different categories: silent (sub-clinical), predominantly gastrointestinal, and gastrointestinal with extra-gastrointestinal effects. I have a theory that the latter category gets worse and longer symptoms from an accidental gluten exposure because it boosts cross-reacting antibodies, similar to having a vaccine booster. It takes months for these antibodies to come down. I know someone who only has gastrointestinal symptoms who occasionally cheats with gluten and he is ill for a day or so. It makes me ill for weeks.

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Thank you so much Russ for sharing the story. I feel less alone. I will be patient then.

  On 3/4/2022 at 12:29 AM, knitty kitty said:

@ceciceco,

Welcome to the forum!

I would suggest excluding the Miso soup.  Miso is made from soybeans that have been fermented by a mold, Aspergillus, which might be grown on wheat or barley.  Some Celiacs develop sensitivity to soybeans and molds.  

Have you tried the Low Fodmap diet?

The AutoImmune Protocol Diet has been scientifically proven to heal the intestines and reduce inflammation.  This is my favorite diet if I get glutened.  After a few weeks I can expand to the Fodmap diet.  

The Fodmap diet allows Cruciferous vegetables, though.  Cruciferous vegetables (broccoli, cabbage, cauliflower, etc.) may be problematic.  They contain lots of sulfur that certain intestinal bacteria utilize and release sulfur gas as a byproduct, causing bloating.  

Make sure you are getting plenty of Vitamin D which helps regulate the immune system.  Vitamin D level should be above 78 nmol/l to be effective.  

Hope this helps!

Expand Quote  

Hello Knitty Kitty, 

Thank you for taking the time to response to my post. You advice help a lot. I will go through the details of such a diet tomorrow, it seems very interesting. Thank you. 

[Awol cast iron stomach]

Sorry it happened to you.  I personally had to stop eating out entirely. 

My most recent cc was at the dentists office. ( Set back happened for me last month.   The pandemic led to staff turnover. I'm not certain if they cc me with equipment or dropping the ball with the products used on me. As they have it in my chart . I'm always repeating at start  of every visit I'm gluten-free . They say we know it's in your chart. I am strongly considering switching Dr. 

Knitty gave great ideas with AIP the other posters too. The only things I would add is I will puree my foods if my GI is struggling. Drink tons of water.

I personally have to up my magnesium, zinc, and vit D as well. My daily multivitamin and probiotic is not enough when I get cc. My body needs more as my autonomic nervous system and skin react too, so my body's demand to heal requires more.  I often need to support with additional electrolytes. I sometimes use slippery elm as well or non alcohol bitters to support digestion.

I also use epsom salt baths, sauna, and accupuncture as well for my overall inflammation, skin eruptions, and numerous other symptoms.

Hope you feel better soon. 

 

 

 

[ceciceco]

  On 3/5/2022 at 11:54 PM, Awol cast iron stomach said:

Sorry it happened to you.  I personally had to stop eating out entirely. 

My most recent cc was at the dentists office. ( Set back happened for me last month.   The pandemic led to staff turnover. I'm not certain if they cc me with equipment or dropping the ball with the products used on me. As they have it in my chart . I'm always repeating at start  of every visit I'm gluten-free . They say we know it's in your chart. I am strongly considering switching Dr. 

Knitty gave great ideas with AIP the other posters too. The only things I would add is I will puree my foods if my GI is struggling. Drink tons of water.

I personally have to up my magnesium, zinc, and vit D as well. My daily multivitamin and probiotic is not enough when I get cc. My body needs more as my autonomic nervous system and skin react too, so my body's demand to heal requires more.  I often need to support with additional electrolytes. I sometimes use slippery elm as well or non alcohol bitters to support digestion.

I also use epsom salt baths, sauna, and accupuncture as well for my overall inflammation, skin eruptions, and numerous other symptoms.

Hope you feel better soon. 

 

 

 

 

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Oh god. 

People just don't take this allergy seriously this is it. 
I actually did acupuncture last Saturday and it helped. 
I am taking all your advice into account. Thank you so much for taking the time to read and reply. Thanks to all of you.
Xx

[trents]

cecicec0, Celiac disease is not an allergy. It is an autoimmune disorder.

[ceciceco]

  On 3/7/2022 at 10:37 PM, trents said:

cecicec0, Celiac disease is not an allergy. It is an autoimmune disorder.

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Understood Trents