Should I List Celiac in my Medical History

[Ginger38]

I have not been formally diagnosed with celiac through an endoscopy. I had positive TTG IGA antibodies twice and symptoms majorly improved going gluten free. My question is should I list celiac disease as part of my medical history? Is it an important factor? I live in the US and based on experiences I could see docs asking who diagnosed me and who is my gastro… I just wasn’t sure what to do. I have a cardiologist and allergist and a few others along with my regular doctor and dentist. 

[Scott Adams]

If you were never formally diagnosed by a doctor with celiac disease I would not put "celiac disease" anywhere as part of your health history. The reason I say this is that it may lead to more expensive and harder to get private health and life insurance, so why subject yourself to this if you were not diagnosed with it?

[RMJ]

If you WANT to have it in your medical record, to be really accurate you could say “abnormal celiac antibody test.”  That is what was in my record prior to my endoscopy.

[Jays911]

6 hours ago, RMJ said:

If you WANT to have it in your medical record, to be really accurate you could say “abnormal celiac antibody test.”  That is what was in my record prior to my endoscopy.

Great answer. Kudos. 

[Ginger38]

8 hours ago, Scott Adams said:

If you were never formally diagnosed by a doctor with celiac disease I would not put "celiac disease" anywhere as part of your health history. The reason I say this is that it may lead to more expensive and harder go get private health and life insurance, so why subject yourself to this if you were not diagnosed with it?

Thanks for the info! I didn’t realize it could negatively impact things for me. 

7 hours ago, RMJ said:

If you WANT to have it in your medical record, to be really accurate you could say “abnormal celiac antibody test.”  That is what was in my record prior to my endoscopy.

Thanks for the good info!

[Beverage]

I got a formal diagnosis from a naturopatic medical doctor (in the US). It was based on 3 things:  

1. positive blood tests for antibodies

2. positive DNA test

3. positive response to a gluten free diet

[Ginger38]

On 6/28/2022 at 6:08 PM, Beverage said:

I got a formal diagnosis from a naturopatic medical doctor (in the US). It was based on 3 things:  

1. positive blood tests for antibodies

2. positive DNA test

3. positive response to a gluten free diet

That’s interesting, I’m not sure they have any of those doctors where I live but it would be nice