Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mistakes

Sof

By Sof
in Coping with Celiac Disease

 Share

Recommended Posts

Sof Apprentice
Sof
Posted

My main symptom of gluten ingestion is acne. My skin has been acting out in the last weeks, I could not figure out the problem. Well, today I did. I’ve been eating wakame salad lately and I just discovered it’s seasoned with soy sauce.

I always make mistakes, will this ever end?

Any suggestions apart from not eating out?

Thank you! This forum has been always so helpful ❤️

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted
13 minutes ago, Sof said:

My main symptom of gluten ingestion is acne. My skin has been acting out in the last weeks, I could not figure out the problem. Well, today I did. I’ve been eating wakame salad lately and I just discovered it’s seasoned with soy sauce.

I always make mistakes, will this ever end?

Any suggestions apart from not eating out?

Thank you! This forum has been always so helpful ❤️

Saf, Were you ever tested for DH?  Do you ever get symmetrical break outs on your body?  My Dermatologist tested me for DH and the results proved I had it as well as celiac. 

Sof Apprentice
Sof
Posted
  • Author
51 minutes ago, captaincrab55 said:

Saf, Were you ever tested for DH?  Do you ever get symmetrical break outs on your body?  My Dermatologist tested me for DH and the results proved I had it as well as celiac. 

No, I didn’t get tested but it’s not DH, it’s inflammatory cystic acne. On cheeks, chin, shoulders and back and it’s never symmetrical, it affects more my right shoulder and in the face it switches sides, it depends on  the outbreak.

And after writing this I’ve been recalling last week’s memories because I had wakame salad twice and I remember got diarrhea twice, probably the 2 days after I ate it :((

knitty kitty Grand Master
knitty kitty
Posted

I have had skin problems due to gluten and also due to Niacin deficiency.  (Nicotinic acid is the form of Vitamin B3 that causes flushing.)  Supplementing with Nicotinic Acid helps immensely to clear my skin.  Vitamins A, D and  C also help.  

Remember cutting out gluten cuts out the vitamins added to gluten containing products.  Discuss with your doctor the benefits of supplementing with vitamins and minerals while healing. 

I found some interesting reading....

Nicotinic acid suppresses sebaceous lipogenesis of human sebocytes via activating hydroxycarboxylic acid receptor 2 (HCA2)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6714165/

And...

High dose niacin in the treatment of acne vulgaris: a pilot study

https://www.researchgate.net/publication/314425582_High_dose_niacin_in_the_treatment_of_acne_vulgaris_a_pilot_study

And... (Read the acne and Celiac sections.....)

The Role of Nutrition in Immune-Mediated, Inflammatory Skin Disease: A Narrative Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8840467/

And...

https://ods.od.nih.gov/factsheets/Niacin-HealthProfessional/

Sof Apprentice
Sof
Posted
  • Author
6 hours ago, knitty kitty said:

I have had skin problems due to gluten and also due to Niacin deficiency.  (Nicotinic acid is the form of Vitamin B3 that causes flushing.)  Supplementing with Nicotinic Acid helps immensely to clear my skin.  Vitamins A, D and  C also help.  

Remember cutting out gluten cuts out the vitamins added to gluten containing products.  Discuss with your doctor the benefits of supplementing with vitamins and minerals while healing. 

I found some interesting reading....

Nicotinic acid suppresses sebaceous lipogenesis of human sebocytes via activating hydroxycarboxylic acid receptor 2 (HCA2)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6714165/

And...

High dose niacin in the treatment of acne vulgaris: a pilot study

https://www.researchgate.net/publication/314425582_High_dose_niacin_in_the_treatment_of_acne_vulgaris_a_pilot_study

And... (Read the acne and Celiac sections.....)

The Role of Nutrition in Immune-Mediated, Inflammatory Skin Disease: A Narrative Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8840467/

And...

https://ods.od.nih.gov/factsheets/Niacin-HealthProfessional/

Thank you!! Super helpful :))

Hb333 Apprentice
Hb333
Posted
16 hours ago, knitty kitty said:

I have had skin problems due to gluten and also due to Niacin deficiency.  (Nicotinic acid is the form of Vitamin B3 that causes flushing.)  Supplementing with Nicotinic Acid helps immensely to clear my skin.  Vitamins A, D and  C also help.  

Remember cutting out gluten cuts out the vitamins added to gluten containing products.  Discuss with your doctor the benefits of supplementing with vitamins and minerals while healing. 

I found some interesting reading....

Nicotinic acid suppresses sebaceous lipogenesis of human sebocytes via activating hydroxycarboxylic acid receptor 2 (HCA2)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6714165/

And...

High dose niacin in the treatment of acne vulgaris: a pilot study

https://www.researchgate.net/publication/314425582_High_dose_niacin_in_the_treatment_of_acne_vulgaris_a_pilot_study

And... (Read the acne and Celiac sections.....)

The Role of Nutrition in Immune-Mediated, Inflammatory Skin Disease: A Narrative Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8840467/

And...

https://ods.od.nih.gov/factsheets/Niacin-HealthProfessional/

Hello, what supplements and in what dose do you take to help your acne?

knitty kitty Grand Master
knitty kitty
Posted

I take Life Extension Niacin, 500 mg. 

Make sure the Niacin you get is gluten free and is the kind that causes flushing.  

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
Posterboy Mentor
Posterboy
Posted
On 9/27/2022 at 5:27 PM, knitty kitty said:

I take Life Extension Niacin, 500 mg. 

Make sure the Niacin you get is gluten free and is the kind that causes flushing.  

Sof, Knitty Kitty Et Al,

I have been busy with other things lately but I wanted to circle back and give you some important information.

Knitty Kitty has given you GREAT advice.

She have given you the PERFECT Advice!  She beat me too it.....but I wanted to "UNPACK" it a little more.

What she quoted/cited couldn't of been better but most doctor's medical clinicians have not yet incorprated this ground breaking reseasrch into their medical practices.

Here is the research on Niacin role in Acne.....quoted again here for easy reference...

https://www.researchgate.net/publication/314425582_High_dose_niacin_in_the_treatment_of_acne_vulgaris_a_pilot_study

I will quote the whole abstract because it is informative here...

Abstract

"Introduction： Acne patients are frequently associated with abnormal lipid profile. It may be useful to apply high dose of niacin that regulates the lipid profile along with acne treatment. There is no report about high dose of niacin in treatment of acne. Objective： To evaluate the therapeutic effect and safety of high-dose niacin in acne vulgaris. Methods Acne patients were randomly allocated to two treatment groups. Both groups were treated orally with the tablets for 12 weeks; the niacin group at an increasing dose of niacin tablet: 2000 mg (40 mg/kg/d). The control group (nicotinamide group) at a dose of nicotinamide tablet: 600 mg (10 mg/kg/d). All patients were asked not to consume certain foods such as milk and alcohol. A high-protein, low-fat and low-glycemic-load diet was recommended in both groups. Results： A total of 108 patients were finished the study. Niacin group: 56 patients; control group: 52 patients. After 12 weeks of treatment, niacin and nicotinamide caused improvement in acne patients. Percentage Improvement in the niacin group (82.37±7.837) %was significantly higher than in the nicotinamide group (63.19±10.18)%, P<0.01. The number of successful cases in the niacin group was significantly higher than in the nicotinamide group after 12 weeks of treatment, (χ 2 = 10.55, P<0.01). Conclusions： High dose niacin can really do it work in treatment of acne vulgaris. The therapeutic effcct of High dose of niacin in treatment of acne vulgaris is more effective than Nicotinamide" which is an alternative spelling of Niacinamide and often the easiest form to find Niacin in often.....because it does not flush the way Niacin (aka Nicotinic Acid) does etc.

There are two things to note here.....both work extremely well when taken "Long Enough" and I would say frequent enough!

With B-Vitamins being water soluble the frequency is much more important than dosage amounts.

And the duration is important here .......12 weeks or approx. 3 months time Niacin as Nicotinic Acid put Acne Vulgaris into remission!

And almost 2/3 of those who took at Niacinamide also saw symptom relief!

Take which ever is the easiest to find and the one you are most comfortable with....

I wrote a blog post about why you would want to take Niacin/Niacinamide in the first place that might be helpful to you if these tips don't help you....or you want to know more about Vitamin B3 commonly known as Niacin.

I hope this is helpful but it is not medical advice.

2 Tim 2:7 "Consider what I say; and the Lord give thee understanding in all things."

Posterboy by the grace of God,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,539
    • Most Online (within 30 mins)
      7,748
    Nattific
    Newest Member
    Nattific
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Morgan Tiernan
      How to navigate living with dermatitis herpetiformis

      By Morgan Tiernan · Posted

      Hi all! Ive been away for a while navigating this new illness and also studying at university. But im back with so more updates and info, thank you all for your help and support.    Update: I suffered with an infection of my dermatitis herpetiformis a month or so ago. This resulted in a trip to a&e with an extremely swollen face, and a 2 week dose of doxycycline. Of course the infection went down but my dermatitis herpetiformis still remains to pop up every now and again. However, I’m coming up to almost a year being gluten free and I can honestly say the outbreaks are less often and more mild. But I’ve been eating extremely strict on a gluten-free diet (not much eating out and very cross contamination aware), so fingers crossed this continues.  As I am UK based, I have finally got through to dermatology and rheumatology in the NHS (no more private appointments which is great!) She was amazing and agreed on what sounds like dermatitis herpetiformis. However, she has also diagnosed me with chronic urticaria (hives) which will explain the swelling of my face, eyes, lips, and even sometimes tongue! So might be an allergy on the case, or perhaps another autoimmune condition due to the undiagnosed coeliac until this year. A skin biopsy has now been arrange for next month which is positive (there’s talks of me eating gluten for a day to activate the rash also, scary but they will have medication on site!)  Currently, I’m feeling more positive about my diagnosis and am so thankful to my hospital for the ongoing support I wasn’t able to get from my GP.  Things are looking up!
    • Morgan Tiernan
      Does anyone else have seborrheic dermatitis

      By Morgan Tiernan · Posted

      Hi there! This is something I’ve often wondered too! I’m still going through the process of getting an official dermatitis herpetiformis diagnosis, however I’ve been battling for 3 years and the dermatologists are pretty certain it’s dermatitis herpetiformis/celiac disease with it’s classic appearance and symptoms (it’s nasty stuff!) About 2 years ago before dermatitis herpetiformis was on the cards, I suffered with a terrible episode of seb dermatitis, it was absolutely everywhere and was probs left undiagnosed for months before I could get in with a dermatologist! I used ketaconazole and it seemed to do the trick. However, knowing what we do now, the dermatitis herpetiformis was definitely aggravating/causing this and I found that it was the use of too many steroid creams (they thought I had eczema) and heavy moisturisers bothering my dermatitis herpetiformis.  Since being gluten free for a year, I haven’t really suffered with an episode of the seb dermatitis for a while. Just trying to navigate the dermatitis herpetiformis outbreaks now.  But definitely feel there could be a correlation! 
    • smilebehappy
      nuts.com -- no longer Celiac safe?

      By smilebehappy · Posted

      Hi, just went to the Tierra Farm site and while no wheat or gluten is listed there was this: Ingredients Dry Roasted Organic Pumpkin Seeds, Sea Salt. *Processed in a facility that handles tree nuts, soy, sesame and milk.  So many of us have other allergies and sensitivities, always check and recheck. These may not be appropriate for all. I have been fine with nuts.com certified gluten free in the past but have not ordered anything in a while so things can change. Hopefully they will continue to be ok.  
    • leahsch
      Rosacea

      By leahsch · Posted

      I have had very mild rosacea on my cheeks for years. I also am celiac abd have recently been diagnosed with rosacea in one eye. I have been prescribed eye drops during the day and a gel at night. 
    • JD-New to Celiac
      Anyone understand genetic testing

      By JD-New to Celiac · Posted

      Although diagnosed with celiac and dermatitis herpetiformis, I was curious about the celiac genetics and had that testing done on my own. Unfortunately, the lab does not explain the results and any doctor I have asked said I would need to see someone specializing in genetics. I was hoping someone out there might help me understand. Here is what came back and although I understand the HLA DQ2 and HLA DQ8, I wasn't sure what the variants mean and why they repeat twice. Someone said it was a double marker meaning both of my parents gave me copies. I also read having this combination makes my celiac potentially much worse. HLA DQ2 - Positive | HLA DQ8 - Negative HLA Variants Detected: HLA DQA1*05 and again HLA DQA1*05 HLA DQB1*0201 and again HLA DQB1*0201
×
×
  • Create New...