Looking for opinions

[Jules04528]

Hi!

I have migraine and over the summer I realized dairy and gluten seemed to be causing many symptoms and trigger a migraine attack.

I stopped dairy in July and noticed gluten issues and stopped gluten in early September. After stopping, I have been feeling better and having less migraine attacks.

I had a Dr visit yesterday and did a blood test and just got results showing T-Transglutaminase IgG is slightly elevated but everything else is normal range  

My Dr thinks I probably don’t have celiac however, everything I’ve read says you need to be eating gluten to show positive results. 
 

Could my test results be inaccurate since I’m not eating gluten currently?

[trents]

Welcome to the forum, Jules! Yes. Stopping gluten almost a month ago would likely cause antibody levels to drop significantly. The Mayo Clinic guidelines for the pretest gluten challenge is the daily consumption of two slices of wheat bread (or the equivalent) for 6-8 weeks leading up to the blood draw for antibody testing and for two weeks leading up to the endoscopy/biopsy procedure. I would talk to your physician about this and explain that you had already started eliminating gluten from your diet weeks before the blood draw. There is a profound lack of knowledge in the medical community at large with regard to gluten-related disorders and it wouldn't surprise me if the doctor did not know that you should be eating gluten pretest. If I were you I would consider asking the doctor to refer you to a GI doc for an endoscopy/biopsy and then go back on gluten for at least two weeks prior to the procedure.

It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) for which there is no good test available. But NCGS and celiac disease share many of the same symptoms and both require lifelong abstinence from gluten. A diagnosis of NCGS would require that celiac disease first be ruled out.

On the other hand, you could just assume, for good reason since cutting gluten reduces your symptoms, that you either have celiac disease or NCGS and commit to a gluten free lifestyle. At the end of the day the outcome would be the same. Many people, however, seem to need confirmation of celiac disease in order to stay committed to gluten-free eating.

Edited September 30, 2022 by trents

[Jules04528]

Thanks so much for confirming what I was thinking.  I did tell my Dr I had not been eating gluten for 3 weeks and got sick after having it accidentally but, I feel like he didn’t get it.  I’ll be following up with the Dr for sure.