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Feels like I can’t eat anything


SargeMaximus

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knitty kitty Grand Master

@SargeMaximus,

Yeah, the food choices on the menu may say gluten free, but the food is cooked in the same kitchen, on the same grill as gluten foods.   Gluteny pancakes may have been cooked on the same grill as your hash browns.  Your English muffin may have been toasted in the same toaster as gluteny toast.  Unfortunately, it happens.

The digestive problems After going gluten free may be due to the exogenous opioids found in gluteny foods.  Yes, gluten and dairy affects the opioid receptors in the body and brain.  So the gluteny opioids can hide how much the body is actually hurting, just like with pharmaceutical opioids.  

Digestive problems after going gluten free can be due to existing damage that needs time to heal, and also by nutritional deficiencies.  Reverting to gluten can cause continuing inflammation that takes weeks or months to resolve after each exposure to gluten.  

When my tummy gets angry, I take L-Theanine, tryptophan and Vitamin B6 Pyridoxine.  Benfotiamine helps as well.  These are nutrients that help sooth and heal the digestive tract.  Oolong tea has L-Theanine, so try a cup of Oolong tea after your evening meal.  

Our bodies can burn fats and proteins as fuel.  Benfotiamine helps with that.  Our bodies switch to burning fats and proteins on the AIP or Paleo diet.  It takes about four days for the body to adjust to burning fats and proteins anaerobically.  If carbohydrates are eaten, the body immediately switches back to burning carbs aerobically.  Consistency is the key here.  The AIP diet removes foods that are inflammatory, giving the body time to heal.  

Grains, legumes (beans) and nuts are really hard on the digestive tract.  Skipping these for several weeks can give your digestive tract time to heal and calm the autoimmune reaction.  A Low Histamine Diet can be helpful, too. 

You have to find what works for you.  I know it's very difficult to make the mental adjustments needed to stay gluten free.  I had such great improvement on the AIP diet, I was amazed.  It was a big adjustment not to eat carbohydrates.  I kept thinking that I have Neanderthal genes, so I need to eat like a Neanderthal.  Yes, Celiac genes have been traced back to Neanderthals.  Neanderthals didn't practice agriculture and didn't grow wheat.  

Keep us posted on your progress!


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SargeMaximus Collaborator
17 hours ago, knitty kitty said:

@SargeMaximus,

Yeah, the food choices on the menu may say gluten free, but the food is cooked in the same kitchen, on the same grill as gluten foods.   Gluteny pancakes may have been cooked on the same grill as your hash browns.  Your English muffin may have been toasted in the same toaster as gluteny toast.  Unfortunately, it happens.

The digestive problems After going gluten free may be due to the exogenous opioids found in gluteny foods.  Yes, gluten and dairy affects the opioid receptors in the body and brain.  So the gluteny opioids can hide how much the body is actually hurting, just like with pharmaceutical opioids.  

Digestive problems after going gluten free can be due to existing damage that needs time to heal, and also by nutritional deficiencies.  Reverting to gluten can cause continuing inflammation that takes weeks or months to resolve after each exposure to gluten.  

When my tummy gets angry, I take L-Theanine, tryptophan and Vitamin B6 Pyridoxine.  Benfotiamine helps as well.  These are nutrients that help sooth and heal the digestive tract.  Oolong tea has L-Theanine, so try a cup of Oolong tea after your evening meal.  

Our bodies can burn fats and proteins as fuel.  Benfotiamine helps with that.  Our bodies switch to burning fats and proteins on the AIP or Paleo diet.  It takes about four days for the body to adjust to burning fats and proteins anaerobically.  If carbohydrates are eaten, the body immediately switches back to burning carbs aerobically.  Consistency is the key here.  The AIP diet removes foods that are inflammatory, giving the body time to heal.  

Grains, legumes (beans) and nuts are really hard on the digestive tract.  Skipping these for several weeks can give your digestive tract time to heal and calm the autoimmune reaction.  A Low Histamine Diet can be helpful, too. 

You have to find what works for you.  I know it's very difficult to make the mental adjustments needed to stay gluten free.  I had such great improvement on the AIP diet, I was amazed.  It was a big adjustment not to eat carbohydrates.  I kept thinking that I have Neanderthal genes, so I need to eat like a Neanderthal.  Yes, Celiac genes have been traced back to Neanderthals.  Neanderthals didn't practice agriculture and didn't grow wheat.  

Keep us posted on your progress!

Fascinating stuff about the Neanderthals. And yeah gluten could be in the Denny’s but that again points back to times when I went to Denny’s but never had bowel trouble.

Even if the opioid things are messed with, that’s more pain tolerance than normal stools versus diarrhea. Diarrhea is only recent. I’ll look into getting oolong, thanks for that. 
 

Recently I been getting gluten free bread. So far so good this weekend. I also take a probiotic pill with kale (something for the probiotic to eat in my gut) so maybe that’s helping.

 

Noticing a reduced tolerance to alcohol this weekend. Taking half a shot has me feeling buzzed and near drunk. Very strange. Not sure what that’s cause by but I’m going alcohol free again till I sort my diet out. I don’t drink and only been drunk once in my life so I doubt it’s a liver thing. I only added scotch recently and haven’t had a drop of alcohol for years. Maybe I’m just not used to it.

 

anyhow, that’s all to report atm

 

 

 

Lilac Newbie
On 12/23/2022 at 11:45 AM, SargeMaximus said:

Meh, I always air in the side of caution.

anyhow I’ll talk to my doc about this

You mean "err."  

Potassium is contraindicated in kidney disorders. But it's in so many healthy foods.  

SargeMaximus Collaborator
5 hours ago, Lilac said:

You mean "err."  

 

Obviously 

SargeMaximus Collaborator

Update: had phlegm all day. WaS constantly clearing my throat and stuff. Then, at dinner, I had: oatmeal, Greek yogurt, blueberries, sweet potatoes, ground beef and goats cheese. The phlegm cleared up but my belly got bloated. Can’t win it seems

knitty kitty Grand Master

I make lots of phlegm when I have dairy.... 

I also bloat like a balloon in Macy's parade....

Yogurt and goat's cheese?   

Mucosal reactivity to cow's milk protein in coeliac disease

"A mucosal inflammatory response similar to that elicited by gluten was produced by Cow Milk protein in about 50% of the patients with coeliac disease.  Casein, in particular, seems to be involved in this reaction."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

SargeMaximus Collaborator
4 hours ago, knitty kitty said:

I make lots of phlegm when I have dairy.... 

I also bloat like a balloon in Macy's parade....

Yogurt and goat's cheese?   

Mucosal reactivity to cow's milk protein in coeliac disease

"A mucosal inflammatory response similar to that elicited by gluten was produced by Cow Milk protein in about 50% of the patients with coeliac disease.  Casein, in particular, seems to be involved in this reaction."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/

Ok but like I said I had phlegm BEFORE the diary and it went away AFTER I ate the dairy


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knitty kitty Grand Master
(edited)

@SargeMaximus,

What did you have to eat before the phlegm?

Edited by knitty kitty
Typo
SargeMaximus Collaborator
1 hour ago, knitty kitty said:

@SargeMaximus,

What did you have to eat before the phlegm?

Sweet potatoes and ground beef I believe.

 

today I had a&w but I had my burger wrapped in lettuce instead of a bun. Fries and root beer as well. No digestive issues

SargeMaximus Collaborator

Update: IBS is back today (haven’t had it in over 10 years) here’s all I ate today:

Breakfast:

Gluten Free Oatmeal (says on the package) 

Coconut Oil

Sweet Potatoes

Ground Beef

Olive Oil

Orange Juice

Gluten Free Bread with Coconut Oil and Peanut Butter

Suppliments: B1 and Quercetin

Lunch:

Oatmeal

Sweet Potatoes 

Olive Oil

Ground Beef

2 Fried Eggs

Gluten Free Bread with coconut oil and peanut butter

Liquid lunch Enthusiast
22 hours ago, SargeMaximus said:

Gluten Free Oatmeal

Probably this, I tried some thinking they might be ok being gluten free and spent the rest of this week bloated and bleeding in loads of pain. Haven’t been this bad in ages, seems to be a more severe reaction after switching to gluten free.

Also burgers are often made with bread crumbs as a binder, same with sausages.

SargeMaximus Collaborator
21 minutes ago, Liquid lunch said:

Probably this, I tried some thinking they might be ok being gluten free and spent the rest of this week bloated and bleeding in loads of pain. Haven’t been this bad in ages, seems to be a more severe reaction after switching to gluten free.

Also burgers are often made with bread crumbs as a binder, same with sausages.

I didn’t eat any burgers that day. Meanwhile today I did and had good energy and no digestive issues all day

Wheatwacked Veteran
1 hour ago, Liquid lunch said:

Haven’t been this bad in ages, seems to be a more severe reaction after switching to gluten free.

Many have had the same response. Once the opiod effect wears off after being gluten free (figure about two weeks of withdrawel, you lose the analgesic effect and feel the pain more. So while you are first starting GFD it is extremely important to be super vigilant.  Even at high vitamin intake it may take a long time to replensish your cellular levels. For example taking 10,000 IU of vitamin D a day it took from 2015 to 2019 to raise my plasma level to 49 ng/ml and another two years to go from 49 to 80. 70 to 90 ng/ml seems to be the homeostasis level.

Quote

This study of more than 25 000 older adults in the US provides evidence that daily supplementation with 2000 IU/day vitamin D or a combination of vitamin D and omega 3 fatty acids for five years reduces autoimmune disease incidence, with more pronounced effects found after two years of supplementation. Autoimmune diseases are a group of heterogeneous conditions with similar underlying pathogenetic mechanisms and together are associated with considerable morbidity and mortality.   https://www.bmj.com/content/376/bmj-2021-066452#:~:text=This study of more than,after two years of supplementation.

Unfortunately, like most other studies of vitamin D they only look at intake and not the plasma level. The effect of intake will vary in individuals according to BMI, and malabsorbtion variables. Fat absorbs vitamin D so higher BMI will require more vitamin D to increase plasma levels.

They also talk about omega 3. The Standard American Diet is as high as 20:1 (omega 6: omega 3. Anything higher than 4:1 is inflammatory. White wheat flour is 22:1. 100% pasture fed milk is 1:1 while milk from regular commercial dairies is 5:1. I read that meat from cows supplemented with grains is as high as 20:1.

Quote

On average, the omega-6:3 ratio for grass-fed cattle is 2:1, while the ratio for grain-fed cattle is 9:1.[1] Human beings evolved on a diet with an omega-6:3 fatty acid ratio of approximately 1:1, whereas the ratio in today’s Western diets is around 20:1 or higher.   https://practicalfarmers.org/research/carcass-characteristics-meat-quality-and-fatty-acid-composition-of-100-grass-fed-beef/#:~:text=On average%2C the omega-6,around 20%3A1 or higher.

Quite often I will get heartburn from fried eggs, while tolerating scrambled quite well.

If you are low in thiamine, it is quite possible you are also deficient in B3, B5, B6, and Choline. You may have enough thiamine but B5 is needed to create ATP (energy from the Krebbs Cycle) so thimine may get it to the mitochodria, but no workers (B5) to finish the job. There is no easy test, add them in one at a time at 500 mg a day and see how it affects you. At insufficient intake if you miss a day or two you might feel it. You want to get to the point where you have two weeks reserves stored away.

I started eating Beef Bourginion and potatos every day and my morning glucose went from 180 mg/dl to 140 overnight. My doctor was happy. Another hack: 4 ounce each of orange juice, preferably not from concentrate, 4 ounce 100% pasture fed milk,  4 ounce carrots, a large egg and a teaspoon of Inulin. Liquify in a blender. Sometimes I add Tart Cherry Juice. Excellant source of vitamins and minerals. The carrots, milk and Tart Cherry are food sources of vitamin A.

SargeMaximus Collaborator

Update: things were good yesterday. Ate the oatmeal and sweet potatoes so no idea what caused the digestive issues before. Gonna try eating black beans today since I need so many calories. Finding it hard to eat enough. Even though I added an extra meal a day

SargeMaximus Collaborator

Update: Yesterday was weird. Granted, I didn’t eat till about 2 pm because I was out of food so I had to make beans, oatmeal, and sweet potatoes separately. Which takes time.

anyhow, absolutely starving all day. I ate a TON of food after I made it all but it seemed to have no effect. I slowly lost energy till I went to bed at about 10pm. Ate a cliff bar and that seemed to help. 
 

I get that gluten causes opioid effects but it shouldn’t affect my energy like that should it? Like NOTHING helped all day till I had that cliff bar. Very strange.

aside from that, just ordered some Benfotiamine 

SargeMaximus Collaborator

For some reason I can’t edit my post above. Anyhow another update: My right hand and fingers have been slightly swollen for a few days. I think it’s the sugar. I’ve had arthritis-like inflammation in my right hand since I was a teen and I can always tell when I’m eating something inflammatory since it flares up. When I eat a good diet it disappears. So whoever suggested I eat sugar for energy: Not gonna work. If that is indeed what is causing it. Here’s all I ate today just in case it’s one of these:

Cliff bar, Eggs, Sausage, Butter, Lettuce, Oatmeal, Coconut oil, Sweet potato, ground beef and pork mix, orange juice, coffee, ginger ale, peanuts

sypplinents: Quercetin, Zinc, Vit D3, B1, 

SargeMaximus Collaborator

Update again: Took an omega 3 pill and the swelling seems to be down. Even had some ginger ale in tea which didn’t cause a flare up so maybe it’s not the sugar, maybe it’s the potato chips (and excess omega 6. Seems more likely now)

So yeah, interesting weekend

SargeMaximus Collaborator

Update: Feeling irritated and brain fog last few days. Not eating any gluten except for whatever is in a clif bar (can’t be enough to matter, certainly isn’t as much as when I was eating pizza and burgers. Back then I felt fine, good even. Now I feel bad)

SargeMaximus Collaborator

Update: Been having Oolong Tea every day for about a week. Last few days I made a whole pot (stove top pot) of water and used it for oolong tea. Drank it all. Aside from extreme hunger I’m not noticing anything from it

SargeMaximus Collaborator

Update: Today my face is breaking out. Extreme redness and raw. All I ate yesterday out of the norm was a small bag of cheetos and some ginger ale. Everything else was all gluten free. I think I’m nearing a month of gluten free if you don’t count an occasional cliff bar. I haven’t had one of those for a while tho as I made my own substitution. It’s two pieces of gluten free bread, coconut oil, peanut butter, and honey with some whey protein powder sprinkled in. I’ve had whey for years so I doubt that is causing my redness

Wheatwacked Veteran

Thirty days is a good milestone. It really can be one day at a time, but worth it.

SargeMaximus Collaborator
19 hours ago, Wheatwacked said:

Thirty days is a good milestone. It really can be one day at a time, but worth it.

Yeah I’m close but I feel fatigued most days :(

SargeMaximus Collaborator

Update: benfotiamine came in the mail today. @knitty kitty how many is optimal? I’m currently starting with 1 per meal

 

Not much else to report. Had some stomach discomfort today but I think I had some undercooked food

SargeMaximus Collaborator

Update: For some reason I was absolutely drained today. Ate what I normally do except for 2 eggs which I wasn’t able to eat this morning. Other than that, all the same. Drained and sluggish all day. When I got home I felt like I was literally dying and ate so much food. Potato chips, oatmeal, sweet potatoes, ground beef, Greek yogurt, olive oil, several helpings of each of those listed, that was just after work! I also ate what I normally eat. So yeah, no idea what’s going on but being gluten free doesn’t seem to be improving anything atm

Wheatwacked Veteran

You'll have good days and bad days.  Some times it feels like one step forward and two back. Which vitamins are you taking now?

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    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
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    • trents
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